Epilepsy Foundation Of Delaware

Organization Overview

Epilepsy Foundation Of Delaware is located in Newark, DE. The organization was established in 1964. According to its NTEE Classification (G54) the organization is classified as: Epilepsy, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2021, Epilepsy Foundation Of Delaware employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Epilepsy Foundation Of Delaware is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 06/2021, Epilepsy Foundation Of Delaware generated $180.3k in total revenue. The organization has seen a slow decline revenue. Over the past 6 years, revenues have fallen by an average of (2.5%) each year. All expenses for the organization totaled $168.2k during the year ending 06/2021. As we would expect to see with falling revenues, expenses have declined by (2.2%) per year over the past 6 years. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

THE EPILEPSY FOUNDATION LEADS THE FIGHT TO STOP SEIZURES, FIND A CURE AND OVERCOME THE CHALLENGES CREATED BY EPILEPSY.

Describe the Organization's Program Activity:

Part 3 - Line 4a

THE EPILEPSY FOUNDATION OF DELAWARE IS A PRIVATE, NON-PROFIT ORGANIZATION THAT PROVIDES PROGRAMS AND SERVICES TO INDIVIDUALS AND FAMILIES AFFECTED WITH EPILEPSY AND SEIZURE DISORDERS AND THE GENERAL COMMUNITY THROUGHOUT THE STATE OF DELAWARE. WE HAVE TWO GENERAL TYPES OF SERVICES WE PROVIDE: INFORMATION AND SUPPORT, AND TRAINING AND OUTREACH.INFORMATION AND SUPPORT-DIRECT SUPPORT FOR INDIVIDUALS WITH EPILEPSY OR WHO HAVE A LOVED ONE WITH EPILEPSY. WE HELP WITH QUESTIONS ABOUT MEDICATIONS, TRANSPORTATION, WORK, DISABILITY, ETC. OVER 140 SERVED IN THIS PROGRAM. -MEET AND GREET SUPPORT GROUPS ARE HELD TWICE PER MONTH (VIA ZOOM DURING COVID) AND HAVE 10-15 ATTENDEES EACH GROUP-PROJECT UPLIFT IS OUR OVER THE PHONE SKILL BASED PROGRAM FOR ADULTS WITH EPILEPSY. IT IS 8 WEEKS LONG AND COMBINES CBT (COGNITIVE BEHAVIORAL THERAPY) SKILLS WITH MINDFULNESS. WE CONDUCTED TWO COHORTS WITH AN AVERAGE OF 3 ATTENDEES (IT IS ONLY FOR SMALL GROUPS)-PACES IS ALSO AN OVER THE PHONE SMALL GROUP PROGRAM TEACHING PEOPLE WITH EPILEPSY SKILLS ON HOW TO MANAGE MEDICATIONS, TALK TO HEIR DOCTOR, AND LIVE THEIR BEST LIVES. WE ALSO CONDUCTED TWO COHORTS WITH AN AVERAGE OF 3 ATTENDEES.TRAINING AND OUTREACH-TEENS-THIS IS A SEIZURE FIRST AID AND AWARENESS PROGRAM FOR TEENS IN SCHOOL HEALTH CLASSES. WE TRAINED 284 TEENS.-SCHOOL PERSONNEL- WE TRAININED 159 SCHOOL PERSONNEL ON SEIZURE FIRST AID IN THE CLASSROOM. -LAW ENFORCEMENT-WE TRAINED 175 LAW ENFORCEMENT RECRUITS ON HOW TO IDENTIFY AND PROPERLY PROVIDE AID TO INDIVIDUALS HAVING SEIZURESMEDICAL/OTHER-WE TRAINED 100 MEDICAL PROFESSIONALS, CAMP COUNSELORS AND OTHERS WHO ASKED TO KNOW HOW TO HELP SOMEONE HAVING A SEIZURE-SEIZURE FIRST AID-THIS IS A NEW NATIONAL CERTIFICATION PROGRAM AND VAL IS A CERTIFIED INSTRUCTOR ON THE NATIONAL LEVEL. WE HAVE ALSO PROVIDED LOCAL SEIZURE FIRST AID CERTIFICATION AND OFFERED THIS TO ALL THE GROUPS ABOVE. IN ADDITION TO THE NUMBERS ABOVE, WE HAVE CERTIFIED 832 DELAWAREANS IN SEIZURE FIRST AID.-DELAWARE EPILEPSY CONFERENCE-WE HAD 125 PARTICIPANTS REGISTER FOR OUR FIRST EVER VIRTUAL DELAWARE EPILEPSY CONFERENCE, UP SIGNIFICANTLY FROM THE YEAR BEFORE.


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Board, Officers & Key Employees

Name (title)Compensation
Val Budischak
Executive Director
$64,151
Ron Charnigo
Vice President
$0
Christy Poole
President
$0
Tom Josiah
Treasurer
$0
Casey Triolo
Secretary
$0
Kathy Neal PHD
Board Member
$0

Financial Statements

Statement of Revenue
Federated campaigns$3,264
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $77,977
All other contributions, gifts, grants, and similar amounts not included above$45,346
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$126,587
Total Program Service Revenue$8,500
Investment income $1,130
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $44,128
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $180,345

Grants Recieved

Over the last fiscal year, we have identified 2 grants that Epilepsy Foundation Of Delaware has recieved totaling $10,790.

Awarding OrganizationAmount
Acierno Family Foundation

Wilmington, DE

PURPOSE: THE FURTHERANCE OF CHARITABLE PROGRAMS

$10,000
Jp Morgan Chase Foundation

New York, NY

PURPOSE: GENERAL OPERATING SUPPORT

$790
View Grant Recipient Profile

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