Epilepsy Foundation Of Delaware

Organization Overview

Epilepsy Foundation Of Delaware is located in Newark, DE. The organization was established in 1964. According to its NTEE Classification (G54) the organization is classified as: Epilepsy, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2023, Epilepsy Foundation Of Delaware employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Epilepsy Foundation Of Delaware is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 06/2023, Epilepsy Foundation Of Delaware generated $215.0k in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 0.3% each year. All expenses for the organization totaled $201.2k during the year ending 06/2023. While expenses have increased by 0.6% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2023

Describe the Organization's Mission:

Part 3 - Line 1

THE EPILEPSY FOUNDATION LEADS THE FIGHT TO STOP SEIZURES, FIND A CURE AND OVERCOME THE CHALLENGES CREATED BY EPILEPSY.

Describe the Organization's Program Activity:

Part 3 - Line 4a

THE EPILEPSY FOUNDATION OF DELAWARE IS A PRIVATE, NON-PROFIT ORGANIZATION THAT PROVIDES PROGRAMS AND SERVICES TO INDIVIDUALS AND FAMILIES AFFECTED WITH EPILEPSY AND SEIZURE DISORDERS AND THE GENERAL COMMUNITY THROUGHOUT THE STATE OF DELAWARE. WE HAVE TWO GENERAL TYPES OF SERVICES WE PROVIDE: INFORMATION AND SUPPORT, AND TRAINING AND OUTREACH.INFORMATION AND SUPPORT-DIRECT SUPPORT FOR INDIVIDUALS WITH EPILEPSY OR WHO HAVE A LOVED ONE WITH EPILEPSY. WE HELP WITH QUESTIONS ABOUT MEDICATIONS, TRANSPORTATION, WORK, DISABILITY, ETC. OVER 216 SERVED IN THIS PROGRAM. -MEET AND GREET SUPPORT GROUPS ARE HELD TWICE PER MONTH (VIA ZOOM AND IN PERSON) AND HAVE 10-15 ATTENDEES EACH GROUP-PROJECT UPLIFT IS OUR OVER THE PHONE SKILL BASED PROGRAM FOR ADULTS WITH EPILEPSY. IT IS 8 WEEKS LONG AND COMBINES CBT (COGNITIVE BEHAVIORAL THERAPY) SKILLS WITH MINDFULNESS. WE CONDUCTED TWO COHORTS WITH AN AVERAGE OF 3 ATTENDEES (IT IS ONLY FOR SMALL GROUPS)-PACES IS ALSO AN OVER THE PHONE SMALL GROUP PROGRAM TEACHING PEOPLE WITH EPILEPSY SKILLS ON HOW TO MANAGE MEDICATIONS, TALK TO THEIR DOCTOR, AND LIVE THEIR BEST LIVES. WE ALSO CONDUCTED TWO COHORTS WITH AN AVERAGE OF 3 ATTENDEES.TRAINING AND OUTREACH-TEENS-THIS IS A SEIZURE FIRST AID AND AWARENESS PROGRAM FOR TEENS IN SCHOOL HEALTH CLASSES. WE TRAINED 334 TEENS.-SCHOOL PERSONNEL- WE TRAINED 217 SCHOOL PERSONNEL (INCLUDING EARLY CHILDHOOD EDUCATORS) ON SEIZURE FIRST AID IN THE CLASSROOM. -LAW ENFORCEMENT-WE TRAINED 173 LAW ENFORCEMENT RECRUITS ON HOW TO IDENTIFY AND PROPERLY PROVIDE AID TO INDIVIDUALS HAVING SEIZURES-MEDICAL/OTHER-WE TRAINED 152 MEDICAL PROFESSIONALS, CAMP COUNSELORS AND OTHERS WHO ASKED TO KNOW HOW TO HELP SOMEONE HAVING A SEIZURE-SEIZURE FIRST AID-THIS IS A NATIONAL CERTIFICATION PROGRAM AND VAL IS A CERTIFIED INSTRUCTOR ON THE NATIONAL LEVEL. WE HAVE ALSO PROVIDED LOCAL SEIZURE FIRST AID CERTIFICATION AND OFFERED THIS TO ALL THE GROUPS ABOVE. IN ADDITION TO THE NUMBERS ABOVE, WE HAVE CERTIFIED 700 DELAWAREANS IN SEIZURE FIRST AID.-DELAWARE EPILEPSY CONFERENCE-WE HAD 86 PARTICIPANTS REGISTER FOR A HYBRID IN PERSON/VIRTUAL EPILEPSY EDUCATION CONFERENCE.


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Board, Officers & Key Employees

Name (title)Compensation
Christy Poole
President
$0
Ron Charnigo
Vice President
$0
Casey Curet
Secretary
$0
Tom Josiah
Treasurer
$0
Kathy Neal PHD
Board Member
$0
Ann Helbe
Board Member
$0

Financial Statements

Statement of Revenue
Federated campaigns$2,696
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $70,366
All other contributions, gifts, grants, and similar amounts not included above$45,347
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$118,409
Total Program Service Revenue$23,855
Investment income $224
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $72,545
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $215,033

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