Arthritis Research Center Foundation Inc, operating under the name National Data Bank For Rheumatic Dis, is located in Wichita, KS. The organization was established in 2000. According to its NTEE Classification (H51) the organization is classified as: Arthritis Research, under the broad grouping of Medical Research and related organizations. As of 12/2023, National Data Bank For Rheumatic Dis employed 12 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Data Bank For Rheumatic Dis is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, National Data Bank For Rheumatic Dis generated $1.7m in total revenue. The organization has seen a slow decline revenue. Over the past 9 years, revenues have fallen by an average of (1.8%) each year. All expenses for the organization totaled $1.5m during the year ending 12/2023. As we would expect to see with falling revenues, expenses have declined by (1.2%) per year over the past 9 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO INCREASE THE GENERAL BODY OF MEDICAL KNOWLEDGE REGARDING RHEUMATIC DISEASES (ARTHRITIS-RELATED ILLNESSES) BY PERFORMING RESEARCH USING THE DATA BANK AND PUBLISHING THAT RESEARCH IN PEER-REVIEWED MEDICAL JOURNALS. THE CLINICAL RESEARCH IS DESIGNED TO IMPROVE THE TREATMENT AND OUTCOMES OF THESE CONDITIONS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
BRISTOL MYERS SQUIBB: TO EXAMINE WHETHER INCREASES IN GC DOSAGE IN RESPONSE TO INCREASE IN DISEASE ACTIVITY RESULT IN WORSE OUTCOMES COMPARED TO CHANGES/ADDITIONS OF OTHER IMMUNOSUPPRESSIVE MEDICATIONS IN SLE PATIENTS AND HEALTH CARE UTILIZATION ASSOCIATED WITH LEVELS OF GC USE.
ALL OTHER PROGRAM SERVICE INITIATIVES, INCLUDING REGISTRY THAT USES THE INTERNET TO CREATE A COMMUNITY OF ARTHRITIS PATIENTS, WHO WILLINGLY PROVIDE PATIENT INFORMATION TO BE USED FOR DISCOVERY RESEARCH AND THE DEVELOPMENT OF PERSONALIZED MEDICINE FOR PEOPLE WITH ARTHRITIS, TO GATHER DATA TO BE USED FOR ANALYSES OF HEART DISEASE IN RHEUMATOID ARTHRITIS AND USING THE NDB RA PATIENT DATE FROM 1998 THROUGH JUNE 2011 TO DETERMINE THE MOST COMMON TREATMENT PATHWAYS OVER THE PAST DECADE AND CHARACTERIZE THE PATIENTS ON THESE PATHWAYS.
MEMS-PFIZER: TO ASSESS MTX AND ADVANCED THERAPY TREATMENT ADHERENCE AND CHARACTERIZE ADHERENCE PATTERNS USING ELECTRONIC MEDICATION MONITORING WITH MEDICATION EVENT MONITORING SYSTEM (MEMS) IN A COHORT OF RA PATIENTS BEING "NEWLY TREATED" (<1 YEAR SINCE INITIATION) WITH PO MTX, MONOTHERAPY OR IN COMBINATION WITH OTHER AGENTS, AND TOFACITANIB, ADALIMUMAB, GOLIMUMAB, AND ETANERCEPT (<6 MONTHS SINCE INITIATION)IN A REAL-WORLD SETTING.
UFCW: TO UNDERSTAND HOW UFCW MEMBERS IN THE US HAVE BEEN AFFECTED BY THE COVID-19 PANDEMIC, INCLUDING COVID-RELATED TOPICS SUCH AS TESTING, ILLNESS OUTBREAKS, AND VACCINATION.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Donna Hawley PHD Director | Trustee | 1 | $0 |
Theodore Pincus MD Director | Trustee | 1 | $0 |
James R O'dell MD Director | Trustee | 1 | $0 |
Hyon Choi MD Director | Trustee | 1 | $0 |
Kaleb Michaud Director | Trustee | 1 | $0 |
Rebecca Schumacher Secretary/treasurer | Officer | 40 | $87,784 |
Statement of Revenue | |
---|---|
Federated campaigns | $1,224,028 |
Membership dues | $0 |
Fundraising events | $0 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $39,702 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $1,263,730 |
Total Program Service Revenue | $414,789 |
Investment income | $5,236 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | $0 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $1,693,484 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $0 |
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $87,784 |
Compensation of current officers, directors, key employees. | $6,718 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $565,504 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $96,725 |
Fees for services: Management | $0 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $0 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $26,015 |
Advertising and promotion | $0 |
Office expenses | $30,493 |
Information technology | $0 |
Royalties | $0 |
Occupancy | $76,762 |
Travel | $2,575 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $0 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $21,489 |
Insurance | $0 |
All other expenses | $0 |
Total functional expenses | $1,544,556 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $167,942 |
Savings and temporary cash investments | $0 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $0 |
Net Land, buildings, and equipment | $56,432 |
Investments—publicly traded securities | $0 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $224,374 |
Accounts payable and accrued expenses | $0 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $0 |
Net assets without donor restrictions | $224,374 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $224,374 |