Myositis Support And Understanding Association
- Assets
- $111.4k
- Revenue
- $444.1k
- Investments
- $0.0
- Employees
- 0
- Location
- Lincoln, DE
- Founding
- 07/2015
- Data as of
- 12/2022
- EIN
- 47-4570748
Organization Overview
Myositis Support And Understanding Association is located in Lincoln, DE. The organization was established in 2015. According to its NTEE Classification (H01) the organization is classified as: Alliances & Advocacy, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Myositis Support And Understanding Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Myositis Support And Understanding Association generated $444.1k in total revenue. This organization has experienced exceptional growth, as over the past 4 years, it has increased revenue by an average of 45.1% each year . All expenses for the organization totaled $479.6k during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF MYOSITIS SUPPORT AND UNDERSTANDING ASSOCIATION, INC IS TO IMPROVE THE LIVES OF AND EMPOWER THOSE FIGHTING MYOSITIS THROUGH EDUCATION, SUPPORT, AWARENESS, ADVOCACY, PATIENT FINANCIAL ASSISTANCE AND ACCESS TO RESEARCH.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE FINANCIAL ASSISTANCE PROGRAM OFFER EMERGENCY NEEDS-BASED FINANCIAL ASSISTANCE FOR PEOPLE DIAGNOSED WITH MYOSITIS. WE PROVIDE FINANCIAL ASSISTANCE OF UP TO $2000 PER APPLICANT PER 24 MONTHS. IN 2022, WE PROVIDED FINANCIAL ASSISTANCE FOR 80 PEOPLE FOR A TOTAL OF $138,000.00
SCHOLARSHIP AWARDS
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jerry Williams President | OfficerTrustee | 30 | $0 |
Lynn Wilson Vice President | OfficerTrustee | 40 | $0 |
Manuel Lubinus Chief Science Officer | OfficerTrustee | 25 | $0 |
Benita Moyers Secretary | OfficerTrustee | 4 | $0 |
Shirley Schnieders Treasurer | OfficerTrustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $74,829 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $363,349 |
| Noncash contributions included in lines 1a–1f | $235,125 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $438,178 |
| Total Program Service Revenue | $5,790 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $444,144 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $176,513 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $232,285 |
| Fees for services: Legal | $13,925 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $530 |
| Office expenses | $688 |
| Information technology | $13,800 |
| Royalties | $0 |
| Occupancy | $138 |
| Travel | $22,214 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $5,109 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,238 |
| All other expenses | $5,855 |
| Total functional expenses | $479,614 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $108,621 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $1,578 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $1,238 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $111,437 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $98,796 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $111,437 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Breastcancer Org Ardmore, PA | $6,017,348 | $6,489,230 |
Bladder Cancer Advocacy Network Inc Bethesda, MD | $14,518,465 | $5,449,892 |
Myositis Support And Understanding Association Lincoln, DE | $111,437 | $444,144 |
Willens Family Foundation Short Hills, NJ | $10,761,702 | $1,228,818 |
Perlite Institute Inc Harrisburg, PA | $725,239 | $276,585 |
Institute Of Neuromorphic Engineering Foundation Inc College Park, MD | $94,915 | $0 |
Brain Cancer Answer Foundation Rehoboth Beach, DE | $2,012 | $0 |
Alliance Of Sleep Apnea Partners Inc Ellicott City, MD | $17,365 | $0 |
Scheuermanns Disease Fund McMurray, PA | $43,840 | $0 |
Caties Wish Foundation Mechanicsburg, PA | $3,530 | $22,716 |