Bladder Cancer Advocacy Network Inc

Organization Overview

Bladder Cancer Advocacy Network Inc is located in Bethesda, MD. The organization was established in 2005. According to its NTEE Classification (H01) the organization is classified as: Alliances & Advocacy, under the broad grouping of Medical Research and related organizations. As of 12/2023, Bladder Cancer Advocacy Network Inc employed 16 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Bladder Cancer Advocacy Network Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2023, Bladder Cancer Advocacy Network Inc generated $5.4m in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 4.8% each year. All expenses for the organization totaled $5.9m during the year ending 12/2023. While expenses have increased by 12.4% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2023

Describe the Organization's Mission:

Part 3 - Line 1

SEE PART III, LINE 1.

Describe the Organization's Program Activity:

Part 3 - Line 4a

RESEARCH:BCAN WORKS TO ADVANCE BLADDER CANCER RESEARCH. RECOGNIZING THE OVERWHELMING NEED FOR RESEARCH FUNDING, BCAN HAS INVESTED IN A NEW GENERATION OF RESEARCHERS WITH ITS YOUNG INVESTIGATOR RESEARCH AWARDS. IN ADDITION, BCAN SUPPORTS EXCEPTIONALLY NOVEL AND CREATIVE PROJECTS WITH GREAT POTENTIAL TO PRODUCE BREAKTHROUGHS IN THE MANAGEMENT OF BLADDER CANCER THROUGH ITS BLADDER CANCER.


WALK TO END BLADDER CANCERTHE WALK TO END BLADDER CANCER IS BCAN'S SIGNATURE AWARENESS EVENT AND PRIMARILY TAKES PLACE IN MAY. THE WALKS UNITE BLADDER CANCER SURVIVORS, LOVED ONES, AND THE MEDICAL COMMUNITY TO PROMOTE RECOGNITION AND UNDERSTANDING OF THE DISEASE. IN 2023, BCAN HAD OVER 2,500 PARTICIPANTS REGISTER TO WALK ACROSS THE UNITED STATES EXCLUDING THE PARTICIPANTS BCAN HOSTED VIRTUALLY.ADVOCACYAS THE VOICE FOR THE PATIENT COMMUNITY, BCAN PARTICIPATES IN COALITIONS AND WORKS WITH OTHER MEMBERSHIP GROUPS TO WEIGH IN ON POLICY ISSUES THAT DIRECTLY IMPACT THOSE LIVING WITH BLADDER CANCER. BCAN PROVIDES THE BLADDER CANCER COMMUNITY WITH THE OPPORTUNITY TO BUILD CONNECTIONS, IDENTIFY BLADDER CANCER STATE AND NATIONAL LEGISLATIVE ISSUES OF IMPORTANCE, AND LEARN BEST PRACTICES FOR RAISING AWARENESS OF BLADDER CANCER WITHIN COMMUNITIES.PATIENT AND VOLUNTEER SUPPORTBCAN IS A GRASSROOTS ORGANIZATION AND VOLUNTEERS ARE AN IMPORTANT PART OF PATIENT OUTREACH. BCAN CONTINUES TO EXPAND ITS VOLUNTEER PROGRAMS WHICH WERE FORMALIZED IN 2014.- SURVIVOR 2 SURVIVOR MATCHES NEWLY DIAGNOSED PATIENTS WITH OTHER SURVIVORS WHO HAVE HAD A SIMILAR EXPERIENCE. THROUGH THESE PERSONAL CONNECTIONS, NEWLY DIAGNOSED PATIENTS LEARN MORE ABOUT LIVING WITH BLADDER CANCER AND TREATMENT OPTIONS.


EDUCATION AND INFORMATION:BCAN HOSTS A VARIETY OF EDUCATIONAL PROGRAMS AND PUBLISHES PRINTED MATERIALS TO EDUCATE THOSE COPING WITH A BLADDER CANCER DIAGNOSIS. BCAN'S COMPREHENSIVE PATIENT HANDBOOK, "BLADDER CANCER BASICS FOR THE NEWLY DIAGNOSED," HAS BEEN PROVIDED TO THOUSANDS OF PATIENTS, CAREGIVERS, UROLOGY PRACTICES, AND CANCER CENTERS ACROSS THE UNITED STATES. THE PATIENT INSIGHT WEBINAR SERIES IS AN INTERACTIVE PROGRAM THAT FEATURES TOP EXPERTS IN THEIR FIELD WHO ANSWER QUESTIONS AND ADDRESS PATIENT CONCERNS IN AN EASY FORMAT. THE SURVIVOR 2 SURVIVOR PROGRAM CONNECTS NEWLY DIAGNOSED BLADDER CANCER PATIENTS WITH SURVIVORS WHO HAVE HAD SIMILAR DIAGNOSES.


THINK TANK:THE BLADDER CANCER THINK TANK IS THE PREMIER SCIENTIFIC MEDICAL SYMPOSIUM DEDICATED SOLELY TO BLADDER CANCER. THROUGH COLLABORATION, UROLOGISTS, ONCOLOGISTS, SCIENTISTS, AND RESEARCHERS ARE PIONEERING NEW TREATMENT PROTOCOLS, INVESTIGATING GENETIC EXPRESSIONS, AND IMPROVING ACCESS TO QUALITY CARE FOR THOSE LIVING WITH THE DISEASE.


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Board, Officers & Key Employees

Name (title)Compensation
Jared Sher
Chair
$0
Gerald Mcnamara
Treasurer
$0
Beverly James
Secretary
$0
Diane Zipursky Quale
Founder
$0
Duncan Alexander
Director
$0
Jamie Gillespie
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$5,143,510
Noncash contributions included in lines 1a–1f $36,087
Total Revenue from Contributions, Gifts, Grants & Similar$5,143,510
Total Program Service Revenue$52,825
Investment income $251,314
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales -$104
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $5,449,892

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