Empowering Epilepsy
- Assets
- $512.6k
- Revenue
- $439.0k
- Investments
- $0.0
- Employees
- 4
- Location
- Beachwood, OH
- Founding
- 04/2015
- Data as of
- 12/2022
- EIN
- 47-1250482
Organization Overview
Empowering Epilepsy is located in Beachwood, OH. The organization was established in 2015. According to its NTEE Classification (G01) the organization is classified as: Alliances & Advocacy, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2022, Empowering Epilepsy employed 4 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Empowering Epilepsy is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Empowering Epilepsy generated $439.0k in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 48.5% each year . All expenses for the organization totaled $245.6k during the year ending 12/2022. While expenses have increased by 33.4% per year over the past 5 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
EMPOWERING EPILEPSY ENABLES PEOPLE WITH EPILEPSY TO TAKE CHARGE OF THEIR LIVES BY CONNECTING THEM TO EXPERTS AND PEERS FOR EDUCATION, CARE AND SUPPORT AT EVERY AGE AND STAGE. PROGRAMS OFFERED INCLUDE CONFERENCES AND SESSIONS WITH LEADING EPILEPTOLOGISTS, SUPPORT GROUPS WITH EXPERT Q&A, ART THERAPY, EVENTS AND RECREATION, EDUCATION, AND LIFESTYLE GUIDANCE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
EMPOWERING EPILEPSY FOCUSES SPECIFICALLY ON EPILEPSY EDUCATION. WE PROVIDE A VARIETY OF PROGRAMS AND SERVICES TO BETTER EDUCATE OUR COMMUNITY MEMBERS ABOUT EPILEPSY AND SEIZURES. WE PERSONALIZE THAT EDUCATION SPECIFICALLY TO EACH INDIVIDUAL, SO THAT PEOPLE WITH EPILEPSY KNOW HOW TO CORRECTLY TALK WITH THEIR DOCTORS ABOUT THEIR SEIZURE DIAGNOSIS AND TREATMENT PLAN. WE WANT TO WALK WITH THEM, HELPING THEM NAVIGATE THEIR PATH THROUGHOUT THEIR EPILEPSY JOURNEY. STEPS IN OUR PATIENT EDUCATION PROGRAM INCLUDE: CLIENT INTAKE, PHYSICIAN REFERRALS, DONATING GIFT BAGS FOR PATIENTS IN THE EPILEPSY MONITORING UNITS AT 6 LEVEL 4 EPILEPSY CENTERS IN NORTHEAST OHIO, PROVIDING A PERSONALIZED EPILEPSY EDUCATION PROGRAM, PROVIDING MONTHLY VIRTUAL AGE BASED SUPPORT GROUPS, PROVIDING IN-PERSON SUPPORT GROUPS IN CLEVELAND, AKRON AND WARREN, OHIO, PROVIDING EDUCATIONAL CONFERENCES AND SESSIONS THROUGHOUT THE YEAR AT OUR EMPOWERING EPILEPSY HEADQUARTERS, HOLDING EDUCATIONAL BOOTHS AT HEALTH AND WELLNESS FAIRS, AND PROVIDING COMMUNITY EDUCATION ABOUT EPILEPSY AND SEIZURES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Leigh Goldie Executive Dir. | Officer | 50 | $60,000 |
William Chapnick VP Of Marketing & Communications | 50 | $32,500 | |
Holly Maggiano MD Board Member | Trustee | 3 | $0 |
Michael Kohrman MD Medical Advisor | Trustee | 1 | $0 |
Dianne Kulasa-Lukemsnarnp-Cn Board Member | Trustee | 1 | $0 |
Prakash Kotagal MD Board Member | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $7,879 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $477,717 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $485,596 |
| Total Program Service Revenue | $2,283 |
| Investment income | -$47,793 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$1,170 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $438,997 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $60,584 |
| Compensation of current officers, directors, key employees. | $9,088 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $44,886 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $8,024 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $1,553 |
| Fees for services: Accounting | $11,430 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $1,580 |
| Advertising and promotion | $0 |
| Office expenses | $10,954 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $24,751 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $4,238 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $5,873 |
| Insurance | $218 |
| All other expenses | $23,156 |
| Total functional expenses | $245,608 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $24,448 |
| Savings and temporary cash investments | $22,485 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $11,280 |
| Prepaid expenses and deferred charges | $1,374 |
| Net Land, buildings, and equipment | $30,651 |
| Investments—publicly traded securities | $422,355 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $512,593 |
| Accounts payable and accrued expenses | $9,471 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $1 |
| Total liabilities | $9,472 |
| Net assets without donor restrictions | $486,669 |
| Net assets with donor restrictions | $16,452 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $512,593 |