Huntingtons Disease Youth Organization
- Assets
- $260.8k
- Revenue
- $202.8k
- Investments
- $0.0
- Employees
- 1
- Location
- Livonia, MI
- Founding
- 03/2014
- Data as of
- 12/2021
- EIN
- 45-4955538
Organization Overview
Huntingtons Disease Youth Organization is located in Livonia, MI. The organization was established in 2014. According to its NTEE Classification (G19) the organization is classified as: Support N.E.C., under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Huntingtons Disease Youth Organization is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Huntingtons Disease Youth Organization generated $202.8k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.6% each year. All expenses for the organization totaled $178.8k during the year ending 12/2021. While expenses have increased by 4.8% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
SUPPORT YOUNG PEOPLE AROUND THE WORLD IMPACTED BY HUNTINGTON'S DISEASE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
YOUNG ADULT CONGRESS EVENT: INTERNATIONAL YOUNG ADULT EVENT FOR SUPPORT AND EDUCATION.
RESEARCH VIDEO SERIES: YOUNG PEOPLE NEED TO BE INFORMED ABOUT CLINICAL RESEARCH AND TRIALS IN AN EASY-TO-UNDERSTAND FORMAT. WE'VE PARTNERED WITH HDBUZZ TO TAKE THEIR ARTICLES AND CREATE 2 MINUTE LONG VIDEOS THAT BREAK DOWN THE ARTICLES FOR YOUNG PEOPLE TO BECOME THEIR BEST ADVOCATES.
HDYO UK GRANT SUPPORT: HDYO OF AMERICA SUPPORTED OUR SISTER ORGANIZATION, ALSO KNOWN AS HDYO, REGISTERED AS A CHARITY UNDER THE UNITED KINGDOM CHARITY COMISSION. OUR GRANTS PROVIDED FUNDS FOR THE CREATION AND SHARING OF JOINT RESOURCES INCLUDING A WEBSITE, BROCHURES, EDUCATIONAL PROGRAMS, AND MUCH MORE. OUR SISTER ORGANIZATION WORKS INSYNC WITH HDYO-AMERICA TO COMBINE OUR EFFORTS TO PROVIDE THE BEST SUPPORT POSSIBLE FOR ALL YOUNG PEOPLE AROUND THE WORLD IMPACTED BY HD.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jenna Heilman Chairperson | OfficerTrustee | 15 | $33,332 |
Eric Miller Board Member | Trustee | 2 | $0 |
Dr Bonnie Hennig Board Member | Trustee | 2 | $0 |
Donna Spencer Board Member | Trustee | 2 | $0 |
Seth Rotberg Board Member | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $202,772 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $202,772 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $202,772 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $125,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $45,327 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $1,941 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $2,750 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $2,790 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,008 |
| All other expenses | $0 |
| Total functional expenses | $178,816 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $260,342 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $500 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $260,842 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $224,842 |
| Net assets with donor restrictions | $36,000 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $260,842 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Huntingtons Disease Youth Organization has recieved totaling $45,000.
| Awarding Organization | Amount |
|---|---|
Fidelity Investments Charitable Gift Fund Boston, MA PURPOSE: For grant recipient's exempt purposes | $45,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Dragonfly Foundation Cincinnati, OH | $2,725,648 | $2,264,730 |
Stewarts Caring Place Fairlawn, OH | $5,098,464 | $1,361,993 |
Cancer Support Community Central Ohio Columbus, OH | $1,687,086 | $1,400,583 |
Community Cancer Network Inc Lafayette, IN | $68,005 | $139,656 |
Badger Childhood Cancer Network Inc Madison, WI | $359,917 | $275,971 |
Buddy Up Tennis Inc New Albany, OH | $312,244 | $310,873 |
Huntingtons Disease Youth Organization Livonia, MI | $260,842 | $202,772 |
Pink Ribbon Connection Inc Indianapolis, IN | $158,466 | $181,746 |
Carolyn L Farrell Foundation For Brain Health Westlake, OH | $129,417 | $184,251 |
Down Syndrome Support Team Saline, MI | $168,654 | $0 |
Grant County Cancer Coalition Inc Lancaster, WI | $244,138 | $0 |
Son Foundation Inc Indianapolis, IN | $370,438 | $0 |