Down Syndrome Innovations Inc
- Assets
- $4.3m
- Revenue
- $1.5m
- Investments
- $0.0
- Employees
- 26
- Location
- Shawnee Mission, KS
- Founding
- 03/1987
- Data as of
- 12/2022
- EIN
- 43-1427760
Organization Overview
Down Syndrome Innovations Inc is located in Shawnee Mission, KS. The organization was established in 1987. According to its NTEE Classification (H25) the organization is classified as: Down Syndrome Research, under the broad grouping of Medical Research and related organizations. As of 12/2022, Down Syndrome Innovations Inc employed 26 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Down Syndrome Innovations Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Down Syndrome Innovations Inc generated $1.5m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 8.0% each year. All expenses for the organization totaled $2.0m during the year ending 12/2022. While expenses have increased by 15.7% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO PROVIDE SUPPORT AND RESOURCES FOR INDIVIDUALS WITH DOWN SYNDROME, THEIR FAMILIES AND THE PROFESSIONAS WHO SERVE THEM. DSI SEEKS TO PROVIDE THE ENTIRE COMMUNITY WITH INFORMATION AND EDUCATION TO BROADEN AWARENESS AND FOSTER POSITIVE ATITUDES REGARDING PEOPLE WITH DOWN SYNDROME. DSI CURRENTLY SERVES 37 COUNTIES IN KANSAS AND MISSOURI. WE PROVIDE SUPPOST TO OVER 1600 INDIVIDUALS WITH DOWN SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PUBLIC AWARENESS - DSI WELCOMES 50-60 NEW BABIES AND THEIR FAMILIES EACH YEAR. OUR PARENT-TO-PARENT PROGRAM PROVIDES A WELCOME BASKET, QUARTERLY SUPPORT BREAKFASTS AND PARENT-TO-PARENT MATCHES. OUR BI-MONTHLY CONNECTIONS NEWSLETTER IS DISTRIBUTED TO 3,500 HOUSEHOLDS AND CONTAINS UPCOMING EVENTS, COMMUNITY GROUP ACTIVITIES, AND UP-TO-DATE ARTICLES ON MEDICAL OR EDUCATIONAL BEST PRACTICES FOR PEOPLE WITH DOWN SYNDROME. DSI SUPPORTS 14 COMMUNITY GROUPS TO HOST 8-10 ACTIVITIES IN THEIR IMMEDIATE GEOGRAPHICAL REGION TO CONNECT MEMBERS ON A SMALLER SCALE. THROUGHOUT THE YEAR, DSI FACILITATES AWARENESS INITIATIVES IN SCHOOLS AND IN THE COMMUNITY OFTEN SHOWING JUST LIIKE YOU-DOWN SYNDROME FILM, TO FOSTER POSITIVE ATTITUDES AND EDUCATE INDIVIDUALS ABOUT DOWN SYNDROME. SHOULD ANY OF OUR MEMBERS EXPERIENCE AN OVERNIGHT STAY IN THE HOSPITAL, DSI PROVIDES A 50 MEAL VOUCHER TO SUPPORT COSTS ASSOCIATED WITH THE STAY. MEMBERS CAN SHOW SUPPORT OF THE DSI BRAND BY PURCHASING BRANDED ITEMS TO GENERATE AWARENESS WITHIN THEIR COMMUNITY. ALL OF THESE PROGRAMS AND OTHERS ARE SHARED IN DETAIL IN THE DSI ANNUAL REPORT.
PUBLIC EDUCATION - DSI HOSTS ANNUAL EDUCATIONAL CONFERENCES TO BRING TOGETHER EXPERTS IN THE FIELD TO DISCUSS BEST PRACTICES IN WORKING WITH INDIVIUDALS WITH DOWN SYNDROME. SCHOLARSHIPS ARE AVAILABLE FOR DSI SPONSORED OR NATIONAL SPONSORED CONFERENCES. DSI ALSO HOSTS SEMINARS AND WORKSHOPS THROUGHOUT THE YEAR AS REQESTED BY DSI MEMBERS. DSI PARTNERS WITH 45 LOCAL SCHOOL DISTRICTS WHO HAVE NAMED DOWN SYNDROME SPECIALISTS WHO ACT AS LIAISONS BETWEEN DSI, SCHOOLS, AND FAMILIES IMPACTED BY DOWN SYNDROME. WE OFFER THE SPECAILISTS A RESOURCE MANUAL, FREE REGISTRATION TO DSI CONFERENCES, BI-ANNUAL BREAKFASTS TO EXCHANGE IDEAS AND MAKE DSI AWARE OF SCHOOL DISTRICT NEEDS AND ONGOING UPDATES REGARDING RESEARCH AND BEST PRACTICES FOR EDUCATING STUDENTS WITH DOWN SYNDROM. DSI ALSO OFFERS INDIVIDUALIZED TRAINING AND PRIVATE CONSULTATIONS FOR SCHOOL DISTRICTS WHO HAVE DOWN SYNDROME SPECIALISTS. INFORMATION CAN BE ACCESSED BY ANYONE IN THE COMMUNITY THROUGH DSI'S 24-HOUR PHONE INFORMATION LINE.
SOCIAL EVENTS - DSI SUPPORTS MEMBERS THROUGHOUT THEIR LIFE SPAN BY HOSTING SPECIAL EVENTS TO HELP MEMBERS AND FAMILIES ENGAGE AND CONNECT WITH ONE ANOTHER. SOCIAL EVENTS OFFER UNIQUE OPPORTUNITIES FOR FAMILIES TO MEET, FORM FRIENDSHIPS, AND SHARE RESOURCES. WE HOST 5 ALL GUILD ACTIVITIES THROUGHOUT THE YEAR WHICH WELCOME THE MEMBER WITH DOWN SYNDROME AND IMMEDIATE FAMILTY MEMBERS TO ACTIVITIES LOCATED AROUND THE METRO. ELEMENTARY AGED STUDENTS MEET QUARTERLY AT THE DSI OFFICE FOR EVENTS AND PREPARATION FOR THE S.T.A.R.S. PROGRAM WHICH MEETS WEEKLY ONCE MEMBERS TURN 12 YEARS OLD. ADULTS CAN ENJOY MONTHLY DSG ACTIVITIES IN ADDITION TO REGULAR COMMUNITY EVENTS AVAILABLE TO THEM. EACH MEMBER IS RECOGNIZED DURING HIS/HER BIRTHDAY MONTH THROUGH THE DSI BIRTHDAY BLUB WHICH SENDS A CARD TO EACH MEMBER.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jason Drummond Chief Execut | Officer | 40 | $206,250 |
Amy Stoll Chief Develo | Officer | 40 | $96,412 |
Bob Fagan Vice Preside | OfficerTrustee | 1 | $0 |
Amy Fauss Secretary | OfficerTrustee | 1 | $0 |
Mike Frazier President | OfficerTrustee | 1 | $0 |
Deborah Kass Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $21,435 |
| Membership dues | $0 |
| Fundraising events | $378,254 |
| Related organizations | $0 |
| Government grants | $356,386 |
| All other contributions, gifts, grants, and similar amounts not included above | $408,129 |
| Noncash contributions included in lines 1a–1f | $123,783 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,164,204 |
| Total Program Service Revenue | $166,907 |
| Investment income | $11,970 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $4,727 |
| Net Income from Fundraising Events | $176,638 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,538,198 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $9,000 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $302,662 |
| Compensation of current officers, directors, key employees. | $67,622 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $781,863 |
| Pension plan accruals and contributions | $36,622 |
| Other employee benefits | $92,415 |
| Payroll taxes | $82,744 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $4,931 |
| Fees for services: Other | $112,199 |
| Advertising and promotion | $2,930 |
| Office expenses | $30,191 |
| Information technology | $46,456 |
| Royalties | $0 |
| Occupancy | $29,773 |
| Travel | $13,556 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $74,644 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $162,533 |
| Insurance | $41,787 |
| All other expenses | $66,141 |
| Total functional expenses | $2,036,245 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $289,778 |
| Savings and temporary cash investments | $127,429 |
| Pledges and grants receivable | $9,544 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $32,466 |
| Net Land, buildings, and equipment | $3,130,590 |
| Investments—publicly traded securities | $696,489 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $6,479 |
| Total assets | $4,292,775 |
| Accounts payable and accrued expenses | $110,577 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $1,518,683 |
| Other liabilities | $1,914 |
| Total liabilities | $1,631,174 |
| Net assets without donor restrictions | $2,617,122 |
| Net assets with donor restrictions | $44,479 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $4,292,775 |
Grants Awarded
Over the last fiscal year, Down Syndrome Innovations Inc has awarded $11,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
CHILDREN'S MERCY HOSPITAL PURPOSE: PUBLIC EDUCATION ASSISTANCE | $6,000 |
LUMIND RESEARCH FOUNDATION PURPOSE: ASSIST ONGOING RESEARCH TO IMPROVE THE LIVES OF PEOPLE WITH DOWNS SYNDROME | $5,000 |