Amyotrophic Lateral Sclerosis Association
- Assets
- $1.3m
- Revenue
- $1.8m
- Investments
- $0.0
- Employees
- 22
- Location
- Wauwatosa, WI
- Founding
- 07/1990
- Data as of
- 01/2022
- EIN
- 39-1600965
Organization Overview
Amyotrophic Lateral Sclerosis Association, operating under the name ALS Association - Wisconsin Chapter, is located in Wauwatosa, WI. The organization was established in 1990. As of 01/2022, ALS Association - Wisconsin Chapter employed 22 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. ALS Association - Wisconsin Chapter is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 01/2022, ALS Association - Wisconsin Chapter generated $1.8m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 4.1% each year. All expenses for the organization totaled $1.8m during the year ending 01/2022. While expenses have increased by 2.6% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE CHAPTER'S CARE SERVICES STAFF PROVIDES SERVICES TO PEOPLE LIVING WITH ALS, THEIR FAMILIES AND THEIR CAREGIVERS, HELPING THEM LEARN ABOUT THE DISEASE, LOCATE RESOURCES IN THE COMMUNITY AND COPE WITH THE CHANGES OCCURRING IN THEIR LIVES. DURING THE YEAR ENDING JANUARY 31, 2022, THE CHAPTER SERVED OVER 500 PEOPLE LIVING WITH ALS IN WISCONSIN. THE FOLLOWING CARE SERVICES PROGRAMS AND SERVICES ARE AVAILABLE TO ASSIST INDIVIDUALS AND FAMILIES TO MEET THE DAILY CHALLENGES OF ALS AT NO COST: SUPPORT GROUPS; SERVICES AT ALS CERTIFIED TREATMENT CENTERS OF EXCELLENCE AT FROEDTERT HOSPITAL/MEDICAL COLLEGE OF WISCONSIN AND THE CLEMENT J. ZABLOCKI MILWAUKEE VA MEDICAL CENTER; SERVICES AT UNIVERSITY HOSPITAL & CLINICS MDA ALS CLINIC IN MADISON; SERVICES AT A DEVELOPING ALS MULTIDISCIPLINARY CLINIC IN THE NEUROSCIENCES CENTER AT GUNDERSEN HEALTH SYSTEM IN LA CROSSE; EQUIPMENT LOAN PROGRAM; AUGMENTATIVE COMMUNICATION PROGRAM; BRIAN TRINASTIC GRANT PROGRAM TO PROVIDE FINANCIAL RELIEF THROUGH REIMBURSEMENT; CARE AND RESEARCH SYMPOSIUM; CARE PROGRAM FOR YOUNG CAREGIVERS.
OUR CHAPTER WORKS WITH 39 OTHER CHAPTER'S ACROSS THE COUNTRY TO SUPPORT GLOBAL RESEARCH AND OUR EFFORTS ARE FOCUSED TOWARDS A SINGLE VISION OF A WORLD WITHOUT ALS. OUR CHAPTER DIRECTS FUNDS EACH YEAR TOWARDS SOME OF THE MOST PROMISING ALS RESEARCH PROJECTS. THESE PROJECTS ARE ALL RELATED TO FINDING THE CAUSE, A TREATMENT AND A CURE FOR ALS. THE ALS ASSOCIATION IS THE ONLY ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS. THE ORGANIZATION AS A WHOLE FUNDS AGGRESSIVE, CUTTING-EDGE RESEARCH USING THE NEWEST TECHNIQUES WHILE FOSTERING COLLABORATIVE INITIATIVES AMONG GOVERNMENT AGENCIES, THE PRIVATE SECTOR AND SCIENTISTS WHO ARE INVESTED IN TRANSLATIONAL RESEARCH.
OUR CHAPTER WORKS TO PROMOTE PUBLIC AWARENESS AND EDUCATION THROUGH ADVOCACY ACTIVITIES AT A STATE AND NATIONAL LEVEL. WE PROVIDE THE FOLLOWING RESOURCES TO PATIENTS AND FAMILIES THROUGHOUT WISCONSIN: BI-MONTHLY PATIENT INFORMATION AND UPDATES; A LENDING LIBRARY OF VARIOUS RESOURCES; BOOKS AND EDUCATIONAL ACTIVITIES FOR CHILDREN AND YOUNG CAREGIVERS; INFORMATION FOR NEWLY DIAGNOSED PATIENTS; INFORMATION ON VA BENEFITS. OUR CHAPTER CONDUCTS EVENTS TO GENERATE GENERAL PUBLIC AWARENESS AND USES TOOLS TO EXPAND THE AWARENESS THROUGH SOCIAL MEDIA AND THE INTERNET. THE CHAPTER PARTICIPATES IN ANNUAL CONFERENCES IN WASHINGTON D.C. TO ADVANCE PUBLIC POLICIES THAT WILL BENEFIT PEOPLE LIVING WITH ALS AND THEIR FAMILIES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Melanie Roach-Bekos Executive Director | Officer | 40 | $138,006 |
Meg Posorske Vice President | OfficerTrustee | 13 | $0 |
Mary Brennan-Druml President | OfficerTrustee | 5.25 | $0 |
Lauren Domnick Treasurer | OfficerTrustee | 13 | $0 |
Matthew O'neill Secretary | OfficerTrustee | 12 | $0 |
Carl Bahneman Director | Trustee | 1.5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $748,339 |
| Related organizations | $0 |
| Government grants | $141,788 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,011,172 |
| Noncash contributions included in lines 1a–1f | $138,860 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,901,299 |
| Total Program Service Revenue | $0 |
| Investment income | $480 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$10,931 |
| Net Income from Fundraising Events | -$84,594 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,806,254 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $204,552 |
| Grants and other assistance to domestic individuals. | $63,093 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $158,011 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $544,213 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $25,383 |
| Payroll taxes | $60,456 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $67,989 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $1,730 |
| Advertising and promotion | $12,843 |
| Office expenses | $56,307 |
| Information technology | $37,737 |
| Royalties | $0 |
| Occupancy | $35,997 |
| Travel | $11,959 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $100,335 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $329,530 |
| Insurance | $6,587 |
| All other expenses | $34,022 |
| Total functional expenses | $1,776,291 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $181,162 |
| Savings and temporary cash investments | $853,185 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $8,742 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $3,425 |
| Net Land, buildings, and equipment | $244,539 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $2,564 |
| Total assets | $1,293,617 |
| Accounts payable and accrued expenses | $92,770 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $92,598 |
| Total liabilities | $185,368 |
| Net assets without donor restrictions | $805,421 |
| Net assets with donor restrictions | $302,828 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,293,617 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Amyotrophic Lateral Sclerosis Association has recieved totaling $50.
| Awarding Organization | Amount |
|---|---|
Gannett Foundations Inc Mclean, VA PURPOSE: CHARITABLE PURPOSE | $50 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
American Bd Of Emergency Medicine East Lansing, MI | $44,767,678 | $20,372,727 |
Good Shepherd Geriatric Center Inc Mason City, IA | $49,080,316 | $22,498,287 |
Mary Free Bed Orthotics And Prosthetics Grand Rapids, MI | $19,898,229 | $18,562,852 |
Carondelet Long Term Care Facilities Inc St Louis, MO | $9,990,098 | $14,520,221 |
American Board Of Psychiatry And Neurology Inc Deerfield, IL | $183,693,828 | $29,385,701 |
Parents As Teachers National Center Inc St Louis, MO | $23,159,778 | $18,168,928 |
American Academy Of Sleep Medicine Darien, IL | $108,922,365 | $16,695,981 |
American College Of Chest Physicians Glenview, IL | $44,983,631 | $16,629,705 |
Families Of Sma Elk Grove Village, IL | $11,297,459 | $15,022,219 |
Chicago House And Social Service Agency Chicago, IL | $6,194,238 | $16,845,150 |
American Society For Gastrointestinal Endoscopy Downers Grove, IL | $35,447,362 | $13,302,200 |
Academy Of General Dentistry Chicago, IL | $42,353,738 | $16,214,063 |