Alternating Hemiplegia Of Childhood Foundation Inc
- Assets
- $1.4m
- Revenue
- $350.0k
- Investments
- $0.0
- Employees
- 0
- Location
- Southfield, MI
- Founding
- 12/1997
- Data as of
- 06/2023
- EIN
- 38-3225425
Organization Overview
Alternating Hemiplegia Of Childhood Foundation Inc is located in Southfield, MI. The organization was established in 1997. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Alternating Hemiplegia Of Childhood Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2023, Alternating Hemiplegia Of Childhood Foundation Inc generated $350.0k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 3 years, the organization has seen revenues fall by an average of (12.0%) each year. All expenses for the organization totaled $198.8k during the year ending 06/2023. As we would expect to see with falling revenues, expenses have declined by (21.1%) per year over the past 3 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
OUR MISSION IS TO FIND THE CAUSE(S) OF ALTERNATING AHC), DEVELOP EFFECTIVE TREATMENTS AND ULTIMATELY FIND A CURE, WHILE PROVIDING SUPPORT TO THE FAMILIES AND CHILDREN WITH AHC BY FUNDING RESEARCH TO ACCOMPLISH THESE GOALS
Describe the Organization's Program Activity:
Part 3 - Line 4a
GRANT GIVEN TO THE DR. STEVEN CLAPCOTE AT LEEDS UNIVERSITY IN THE UNITED KINGDOM TO DEVELOP MICE MODELS AND DEVELOP AN ANTAGONISM OF ENDOGENOUS NA/K-ATPASE INHIBITORS AS A THERAPEUTIC APPROACH FOR ALTERNATING HEMIPLEGIA OF CHILDHOOD AND RELATED DISEASES.
SEE SCHEDULE O, STATEMENT 1
GRANT TO ALTERNATING HEMIPLEGIA OF CHILDHOOD UK IN SUPPORT OF THE ATP1A3 MEDICAL SYMPOSIUM. IN ADDITION TO THE GRANT TO THE UK FOUNDATION WE ALSO SPONSORED A COUPLE BOARD MEMBERS TO ATTEND THE MEETING TO CONTINUE THE COLLABORATION OF THE GLOBAL ALTERNATING HEMIPLEGIA ORGANIZATIONS TO END AHC.
THE ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION HOSTED A FAMILY MEETING IN JUNE, 2023 IN GLENDALE CALIFORNIA. THE CONFERENCE ALLOWED FAMILIES TO MEET FACE-TO-FACE, HEAR PRESENTATIONS ON QUALITY-OF-LIFE TOPICS, GET RESEARCH UPDATES FROM THE LEADING PROJECTS IN ALTERNATING HEMIPLEGIA, PLUS MAKE CONNECTIONS THAT WILL LAST A LIFETIME. THE MEETING ALSO INCLUDED CLINICS WHERE FAMILIES MET WITH RESEARCHERS WHO ARE STUDYING ALTERNATING HEMIPLEGIA.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Katelyn Wilson Director | Trustee | 2 | $0 |
Kate Byrne Director | Trustee | 2 | $0 |
Sharon Ciccodicola Director | Trustee | 5 | $0 |
Heather Gates Director | Trustee | 2 | $0 |
Bill Gerber Director | Trustee | 1 | $0 |
Cate Cohen Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $115,270 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $115,270 |
| Total Program Service Revenue | $0 |
| Investment income | $41,428 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $185,279 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $349,997 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $31,488 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $35,750 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $11,160 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $2,243 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $1,365 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $61,747 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $3,510 |
| All other expenses | $0 |
| Total functional expenses | $198,796 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $137,440 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $1,221,649 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,359,089 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $1,359,089 |
| Total liabilities and net assets/fund balances | $1,359,089 |
Grants Awarded
Over the last fiscal year, Alternating Hemiplegia Of Childhood Foundation Inc has awarded $87,166 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
NORTHWESTERN UNIVERSITYFEINBERG SCHOOL OF MEDICINE PURPOSE: Medical Research | $13,000 |
THE JACKSON LABORATORY PURPOSE: Medical Research | $74,166 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Orthopaedic Associates Of Grand Rapids Research & Education Inst Grand Rapids, MI | $47,400 | $122,753 |
Alternating Hemiplegia Of Childhood Foundation Inc Southfield, MI | $1,359,089 | $349,997 |
Ellyn Satter Institute Inc Middleton, WI | $170,581 | $177,548 |
Defeat Msa Alliance Defeat Multiple System Atrophy Alliance St Clair Shores, MI | $249,803 | $201,953 |
Healthcare Infection Transmission Systems Consortium Linden, MI | $8,816 | $0 |
Pks Kids Green Bay, WI | $109,739 | $0 |
Venti-Now Cincinnati, OH | $58,723 | $0 |
International Association Ofendocrine Surgeons Ann Arbor, MI | $309,694 | $0 |
Radler Foundation For Innovation And Education Inc Greenfield, WI | $376,906 | $125,382 |
Westyns Light Colgate, WI | $26,493 | $0 |
Medsau Fund Springs Arbor, MI | $13,752 | $0 |
J Spencer Barnes Charitable Memorial Foundation Grand Rapids, MI | $36,016 | $854 |
Dyslexia Think Tank Dayton, OH | $7,400 | $0 |
Regans Hope A Cure For Sanfilippo Foundation New Albany, OH | $0 | $0 |
Mychild Cerebral Palsy Foundation Novi, MI | $870 | $0 |