Vitiligo Support International Inc

VSI IS A PATIENT-DRIVEN ORGANIZATION, OFFERING THE BROADEST LEVEL OF PERSONAL, EDUCATIONAL, AND EMOTIONAL SUPPORT TO THE VITILIGO COMMUNITY. IT RESPONDS ANNUALLY TO THOUSANDS OF INQUIRIES RECEIVED BY TELEPHONE, LETTER, EMAIL, AND THROUGH ITS MEMBER FORUMS AND SOCIAL MEDIA. VSI IS COMMITTED TO MEET THESE REQUESTS BY PROVIDING UNBIASED, CURRENT, ACCURATE, AND RELEVANT INFORMATION TO PATIENTS, FAMILY, FRIENDS, PHYSICIANS, AND MEDIA. VSI HAS OVER 60,000 REGISTERED MEMBERS AND CONNECTS ANNUALLY WITH OVER A MILLION WEBSITE VISITORS FROM 200+ COUNTRIES. VSI'S QUARTERLY E-NEWSLETTERS ARE THE ONLY PATIENT RESOURCE OF ITS KIND. EACH EDITION DELIVERS THE MOST CURRENT INFORMATION AVAILABLE TO OUR WORLDWIDE CIRCULATION OF AROUND 35,000 SUBSCRIBERS. IN ADDITION, VSI PROMOTES CONGRESSIONAL AND PUBLIC AWARENESS OF THE NEED FOR INCREASED FUNDING FOR VITILIGO RESEARCH AND BETTER ACCESS TO TREATMENTS. IT PARTNERS WITH PRIMARY SKIN DISEASE RESEARCH AND PATIENT ORGANIZATIONS TO CONNECT WITH HEALTHCARE PROVIDERS, RESEARCHERS, AND PUBLIC POLICY LEADERS. AS A PATIENT ORGANIZATION MEMBER OF A COLLABORATION OF LEADING CLINICIANS AND RESEARCHERS DEDICATED TO THE DEVELOPMENT OF A FUNDING STREAM FOR VITILIGO RESEARCH, A BETTER UNDERSTANDING OF THE PATIENTS' POINT OF VIEW, AND IMPROVEMENT OF THE QUALITY OF LIFE FOR THOSE AFFECTED BY VITILIGO, VSI REPRESENTS THE PATIENTS' PERSPECTIVE SO THAT PATIENTS HAVE A VOICE IN IMPROVING CLINICAL CARE AND RESEARCH GUIDELINES. VSI ALSO ROUTINELY ASSISTS SCIENTISTS AND CLINICIANS WITH THEIR RECRUITMENT EFFORTS FOR CLINICAL TRIALS, SURVEYS, AND STUDIES BY PUBLISHING NOTICES IN ITS NEWSLETTERS, WEBSITE, AND SOCIAL MEDIA. IT ALSO SERVES IN AN ADVISORY CAPACITY TO INDUSTRY SEEKING TO UNDERSTAND THE NEEDS AND PERSPECTIVE OF THE VITILIGO COMMUNITY.