Sjogrens Foundation Inc
- Assets
- $3.7m
- Revenue
- $3.3m
- Investments
- $0.0
- Employees
- 17
- Location
- Reston, VA
- Founding
- 05/1986
- Data as of
- 06/2023
- EIN
- 11-2779073
Organization Overview
Sjogrens Foundation Inc is located in Reston, VA. The organization was established in 1986. According to its NTEE Classification (G40) the organization is classified as: Diseases of Specific Organs, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2023, Sjogrens Foundation Inc employed 17 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Sjogrens Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2023, Sjogrens Foundation Inc generated $3.3m in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 5.1% each year. All expenses for the organization totaled $2.8m during the year ending 06/2023. While expenses have increased by 4.0% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Sjogrens Foundation Inc has awarded 46 individual grants totaling $1,966,250. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990T
Mission & Program ActivityExcerpts From the 990T Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
SEE SCHEDULE O FOR DESCRIPTION OF ORGANIZATION'S PRIMARY MISSION.
Describe the Organization's Program Activity:
THE SJOGREN'S FOUNDATION AWARDED THREE RESEARCH GRANTS, UNDER THE ANNUAL SJOGREN'S FOUNDATION GRANT PROGRAM, TO UNIVERSITY AFFILIATED RESEARCHERS IN MAY 2023. TWO PILOT AWARDS WERE GRANTED AND ONE HIGH IMPACT AWARD. THE FOUNDATION ALSO EXPANDED THEIR RESEARCH POLICIES TO INCLUDE A DYNAMIC GRANT POLICY AND AWARDED OKLAHOMA MEDICAL RESEARCH FOUNDATION A GRANT TO EXPAND THEIR GENOME RESEARCH PROJECT. WORK IN THE BIOMARKER'S CONSORTIUM AND THE FNIH AMP AIM RESEARCH ON BIOMARKERS IN AUTOIMMUNE DISEASES CONTINUES.THE SJOGREN'S FOUNDATION ALSO WORKED CLOSELY WITH MULTIPLE PHARMA COMPANIES TO PREPARE FOR, AND BRING, PHASE 2 AND PHASE 3 CLINICAL TRIALS FORWARD. THE FOUNDATION SUPPORTED THESE PROGRAMS BY CONFERRING WITH COMPANIES ON DESIGNING SUCCESSFUL TRIALS AND PRESENTING INFORMATION TO PATIENTS ABOUT CLINICAL TRIALS AND ENROLLMENT.
OTHER PROGRAMS WITHIN THE FOUNDATION INCLUDE STRATEGIC GOVERNANCE PROJECTS, CONFERENCES AND MEETINGS RELATED TO TOPICS RELEVANT TO THOSE WITH SJOGREN'S, AS WELL AS VARIOUS INDUSTRY AND MEMBERSHIP PROJECTS AND SERVICES FOR THOSE WITH SJOGREN'S OR ENTITIES PROVIDING SUPPORT TO THOSE INDIVIDUALS.
NEWSLETTER - THE FOUNDATION PRODUCES TWO NEWSLETTERS. "CONQUERING SJOGREN'S" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. CS IS PRODUCED BI-MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S.
AWARENESS ACTIVITIES, SUCH AS MEDIA PUBLIC RELATIONS, HELP THE GENERAL PUBLIC, PATIENTS, AND FAMILY MEMBERS BECOME FAMILIAR WITH SJOGREN'S AND UNDERSTAND THAT IT IS A SERIOUS AND SYSTEMIC AUTOIMMUNE DISEASE. PROFESSIONAL AWARENESS ACTIVITIES ENGAGE KEY HEALTHCARE PROVIDERS AND SPECIALISTS TO UNDERSTAND SJOGREN'S DISEASE AND TO RECOGNIZE THE MANY MANIFESTATIONS OF THE DISEASE IN ORDER TO CARE FOR PATIENTS. IN 2023, THE FOUNDATION DOUBLED ITS ATTENDANCE OF HCPS TO OUR STATE OF SJOGREN'S PROFESSIONAL CONFERENCE AND EXPANDED OUR OUTREACH OF SPECIALTIES TO INCLUDE NEUROLOGISTS. WE CONTINUE TO ADVANCE OUR RELATIONSHIPS WITH CLINICIANS, RESEARCHERS, GOVERNMENT SCIENTISTS AND CORPORATE SCIENTISTS WHO ARE INTERESTED IN THE FIELD OF SJOGREN'S. ADDITIONALLY, THE FOUNDATION CONTINUED PARTNERING WITH CME COMPANIES TO PRESENT MORE SOLUTIONS TO EDUCATE HEALTHCARE PROVIDERS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Donald E Thomas MD Chairman | OfficerTrustee | 2 | $0 |
Susan Barajas Chair-Elect | OfficerTrustee | 2 | $0 |
Ava Wu DDS Treasurer | OfficerTrustee | 2 | $0 |
David Schrader Secretary | OfficerTrustee | 2 | $0 |
Alan Baer MD Director, Chairman Of Msac | Trustee | 2 | $0 |
Allissa Latham Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $314,952 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,441,196 |
| Noncash contributions included in lines 1a–1f | $31,760 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,756,148 |
| Total Program Service Revenue | $489,669 |
| Investment income | $20,031 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $2,130 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $24,340 |
| Net Income from Fundraising Events | -$26,048 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $20,725 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,324,713 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $275,678 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $586,800 |
| Compensation of current officers, directors, key employees. | $24,411 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $839,659 |
| Pension plan accruals and contributions | $50,710 |
| Other employee benefits | $93,997 |
| Payroll taxes | $86,624 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $9,293 |
| Fees for services: Accounting | $34,173 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $6,885 |
| Fees for services: Other | $88,327 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $16,368 |
| Royalties | $0 |
| Occupancy | $89,006 |
| Travel | $27,729 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $946 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $39,447 |
| Insurance | $18,963 |
| All other expenses | $173,839 |
| Total functional expenses | $2,841,846 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $226,724 |
| Savings and temporary cash investments | $469,995 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $13,473 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $13,185 |
| Prepaid expenses and deferred charges | $18,879 |
| Net Land, buildings, and equipment | $77,324 |
| Investments—publicly traded securities | $2,657,226 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $23,126 |
| Other assets | $194,345 |
| Total assets | $3,694,277 |
| Accounts payable and accrued expenses | $92,492 |
| Grants payable | $350,150 |
| Deferred revenue | $394,017 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $291,895 |
| Total liabilities | $1,128,554 |
| Net assets without donor restrictions | $1,564,827 |
| Net assets with donor restrictions | $1,000,896 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,694,277 |
Grants Awarded
Over the last fiscal year, Sjogrens Foundation Inc has awarded $275,000 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
THE CURATORS OF THE UNIVERSITY OF MISSOURI PURPOSE: RESEARCH GRANT | $75,000 |
MIAMI VETERANS AFFAIRS MEDICAL CENTER PURPOSE: RESEARCH GRANT | $25,000 |
OKLAHOMA MEDICAL RESEARCH FOUNDATION PURPOSE: RESEARCH GRANT | $150,000 |
UNIVERSITY OF PITTSBURGH PURPOSE: RESEARCH GRANT | $25,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
American Association For The Study Of Liver Diseases Alexandria, VA | $34,254,767 | $16,078,688 |
Renal Physicians Association Rockville, MD | $6,002,718 | $3,133,746 |
Sjogrens Foundation Inc Reston, VA | $3,694,277 | $3,324,713 |
American Thyroid Association Inc Alexandria, VA | $13,976,206 | $3,337,385 |
Cellulose Insulation Manufacturers Association Washington, DC | $139,629 | $220,583 |
International Lyme And Associated Diseases Educational Foundation In Chevy Chase, MD | $413,411 | $0 |
Association Of Minority Health Professions Schools Inc Washington, DC | $549,950 | $96,390 |
Lyme Warrior Inc Newport, VA | $47,615 | $0 |
National Forum Of Esrd Networks Inc Henrico, VA | $568,671 | $75,260 |
Ohio Renal Association Wheeling, WV | $313,998 | $0 |
Childhood Brain Tumor Foundation Germantown, MD | $289,581 | $96,814 |
Vitiligo Support International Inc Lynchburg, VA | $256,055 | $0 |
Pigskin Club Of Washington Inc Washington, DC | $87,310 | $0 |
Celebrate Hope Foundation Inc Davidsonville, MD | $20,815 | $0 |
Care About Fibroids Inc Washington, DC | $7,891 | $0 |