Schizophrenia And Related Disorders Alliance Of America

Organization Overview

Schizophrenia And Related Disorders Alliance Of America, operating under the name Schizophrenia & Psychosis Acti, is located in Alexandria, VA. The organization was established in 2008. According to its NTEE Classification (F70) the organization is classified as: Mental Health Disorders, under the broad grouping of Mental Health & Crisis Intervention and related organizations. As of 12/2023, Schizophrenia & Psychosis Acti employed 4 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Schizophrenia & Psychosis Acti is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2023, Schizophrenia & Psychosis Acti generated $1.5m in total revenue. This organization has experienced exceptional growth, as over the past 9 years, it has increased revenue by an average of 13.5% each year . All expenses for the organization totaled $1.6m during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2023

Describe the Organization's Mission:

Part 3 - Line 1

TO PROMOTE HOPE AND RECOVERY FOR INDIVIUALS LIVING WITH SCHIZOPHRENIA-RELATED BRAIN ILLNESSES AND ENSURE THEY RECEIVE RESPECT, ACCEPTANCE, APPROPRIATE TREATMENT AND OPPORTUNITY TO LIVE A MEANINGFUL AND SATISFYING LIFE IN A COMPASSIONATE COMMUNITY THAT IS FREE OF DISCRIMINATION.

Describe the Organization's Program Activity:

Part 3 - Line 4a

AWARENESS, EDUCATION, AND ACCESS:THE ORGANIZATION BUILDS AWARENESS OF AND EDUCATES ABOUT SCHIZOPHRENIA, PSYCHOSIS AND RELATED DISORDERS THROUGH EXTENSIVE WEBSITE RESOURCES, INITIATIVES, SOCIAL MEDIA OUTREACH AND PARTICIPATION IN MEDIA INTERVIEWS,WEBINARS,AND PUBLIC PROGRAMS. THE ORGANIZATION PROMOTES MEDICAL PROFESSIONALS TRAINING AND CAREER DEVELOPMENT THROUGH DIGITAL EDUCATION PARTNERSHIPS THAT OFFER CONTINUED EDUCATION AS WELL AS ATTENDING AND PRESENTING AT HEALTH EDUCATION CONFERENCES.ADDITIONALLY, THE ORGANIZATION PROVIDES ADMINISTRATIVE SUPPORT, MATERIALS, AND OVERSIGHT FOR TWO DIFFERENTSUPPORT GROUPS:1. SCHIZOPHRENIA ALLIANCE SELF-HELP/PEER SUPPORT GROUPS, WHICH ARE RUN BY AND FOR PEOPLE DIAGNOSED WITHPSYCHIATRIC BRAIN DISORDERS THAT INCLUDE PSYCHOSIS.2. FAMILIES FOR CARE WHICH IS A PEER SUPPORT GROUP FOR FAMILIES OF THOSE WITH SCHIZOPHRENIA ORSCHIZOPHRENIA-RELATED BRAIN ILLNESSES.


POLICY & SYSTEM-LEVEL CHANGE:THE ORGANIZATION BACKS FEDERAL, STATE, AND LOCAL POLICIES WITH THE BEST CHANCES TO SAVE LIVES, ADVOCATE FORPATIENTS RIGHTS TO LIFE-SUSTAINING TREATMENTS/SERVICES AND MEDICAL PROFESSIONALS ABILITY TO PROVIDE SUCHTREATMENTS WITHOUT JUDICIAL OVERSIGHT. THE ORGANIZATION EMPOWERS COMMUNITY MEMBERS TO JOIN MOVEMENTSAGAINST DISCRIMINATION OF PEOPLE WITH SCHIZOPHRENIA AND PSYCHOSIS DISORDERS, INCLUDING MEETINGS WITH CONGRESSMEMBERS AND BY HOSTING CAPITOL HILL BRIEFINGS.THE ORGANIZATION ALSO PROMOTES PUBLIC AWARENESS OF ANOSOGNOSIA AS A NEUROLOGICAL CONDITION; ADVANCESINITIATIVES SUCH AS PETITIONING THE WORLD HEALTH ORGANIZATION TO UPDATE ITS INTERNATIONAL CLASSIFICATION OFDISEASES BY ACCURATELY CLASSIFYING ANOSOGNOSIA AS A HIGHLY PREVALENT NEUROLOGICAL CONDITION TO MAKE IT EASIER FORPATIENTS WITH ANOSOGNOSIA TO RECEIVE PROPER CARE.


RESEARCH:THE ORGANIZATION FUNDS RESEARCH SUCH AS:1. SEEKING NEW DISEASE BIOMARKERS AND OTHER EARLY DISEASE INDICATORS THAT COULD IMPROVE DIAGNOSIS ANDTREATMENT.2. QUANTIFYING THE SOCIETAL COSTS OF SCHIZOPHRENIA AND RELATED DISORDERS, UNDERSCORING THE COUNTRYSDEVASTATING FAILURE TO PROVIDE APPROPRIATE MEDICAL CARE FOR PEOPLE LIVING WITH SCHIZOPHRENIA AND THEURGENT NEED FOR POLICY CHANGES TO PROMOTE COMPREHENSIVE SOLUTIONS.3. SURVEYING CAREGIVERS OF ADULTS WITH SCHIZOPHRENIA OR SCHIZOAFFECTIVE DISORDER TO SPOTLIGHT THE DISEASESNEGATIVE IMPACT ON FINANCES, CAREER, AND FAMILY LIVES.


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Board, Officers & Key Employees

Name (title)Compensation
Gordon Lavigne
Chief Executive Officer
$146,000
Marissa E Shepherd
Director Of Operations
$106,168
Michael Wolfe
Board Member
$0
Matcheri Keshavan
Board Member
$0
Anthony Brown
Board Member
$0
Theresa Frangiosa
Board Member
$0

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Alfonso V Guida Jr
Consulting Svrs
$113,052
Laura Gordon Consulting Llc
Consulting Service
$128,217
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$1,522,530
Noncash contributions included in lines 1a–1f $175,419
Total Revenue from Contributions, Gifts, Grants & Similar$1,522,530
Total Program Service Revenue$0
Investment income $8,561
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $1,546,410

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Schizophrenia And Related Disorders Alliance Of America
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