National Organization Of Disorders Of The Corpus Callosum
- Assets
- $515.0k
- Revenue
- $215.8k
- Investments
- $0.0
- Employees
- 0
- Location
- Yorba Linda, CA
- Founding
- 08/2003
- Data as of
- 12/2023
- EIN
- 33-1029337
Organization Overview
National Organization Of Disorders Of The Corpus Callosum, operating under the name Nodcc, is located in Yorba Linda, CA. The organization was established in 2003. According to its NTEE Classification (H48) the organization is classified as: Brain Disorders Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Nodcc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Nodcc generated $215.8k in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 3.1% each year. All expenses for the organization totaled $143.0k during the year ending 12/2023. While expenses have increased by 3.5% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE NODCC HAS BECOME THE LEADING NONPROFIT ORGANIZATION FOR THE DISORDERS OF THE CORPUS CALLOSUM AND IS DEDICATED TO RAISING THE PROFILE, UNDERSTANDING AND ACCEPTANCE OF THESE DISORDERS THROUGH EDUCATION, NETWORKING, ADVOCACY AND BEING A CATALYST FOR RESEARCH.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE NODCC HAS SEVERAL OUTREACH PROGRAMS TO HELP RAISE THE AWARENESS AND IMPROVE EDUCATION AMONG THE STAKEHOLDERS IN THE COMMUNITY. WE HOST EDUCATIONAL EXHIBITS AT 4 PROFESSIONAL MEDICAL CONFERENCES & HOST 36 MONTHLY VIRTUAL MEETINGS FOR PARENTS/CAREGIVERS AND ADULTS WITH DCC IN OUR COMMUNITY.
THE NODCC IS DEEPLY COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY A DISORDER OF THE CORPUS CALLOSUM BY PROVIDING DIRECT SUPPORT AS WELL AS EDUCATIONAL RESOURCES IN COLLABORATION WITH A WIDE RANGE OF STAKEHOLDERS TO RAISE AWARENESS AND KNOWLEDGE. IN 2023, NODCC STAFF PROVIDED ONE ON ONE SUPPORT THROUGH PHONE CALLS, EMAILS, AND INTERACTIONS ON SOCIAL MEDIA TOTALING OVER 1,200 TOUCHES. WE PROVIDED 62 WELCOME PACKETS TO NEWLY DIAGNOSED FAMILIES. WE MAINTAIN AN INCREASING NUMBER OF RESOURCES ON OUR WEBSITE, BROCHURE, EDUCATIONAL BOOKLET EDUCATIONAL VIDEOS ON YOUTUBE.
THE NODCC CONFERENCE AND REGIONAL MEETINGS ARE A WAY OF PROVIDING SUPPORT AND COMMUNITY TO OUR FAMILIES AFFECTED BY DCC. IN 2023 WE HELD 4 REGIONAL MEETINGS AND BEGAN PLANNING FOR OUR BI-ANNUAL CONFERENCE IN 2024.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Lynn Snyder President | OfficerTrustee | 3 | $0 |
Kip Oren Vice Preside | OfficerTrustee | 3 | $0 |
Natalie Erb Treasurer | OfficerTrustee | 3 | $0 |
Al Cordasco Secretary | OfficerTrustee | 3 | $0 |
Katherine Claxton Director | Trustee | 1 | $0 |
Don Peterson Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $17,290 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $101,747 |
| Noncash contributions included in lines 1a–1f | $8,255 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $119,037 |
| Total Program Service Revenue | $56,853 |
| Investment income | $11,799 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $28,140 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $215,829 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $68,593 |
| Fees for services: Legal | $6,683 |
| Fees for services: Accounting | $2,572 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $650 |
| Office expenses | $10,853 |
| Information technology | $5,551 |
| Royalties | $0 |
| Occupancy | $5,005 |
| Travel | $677 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $4,601 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,572 |
| All other expenses | $3,820 |
| Total functional expenses | $142,994 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $133,168 |
| Savings and temporary cash investments | $50,760 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $331,111 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $515,039 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $515,039 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $515,039 |