Soft Bones Inc The Us Hypophosphatasia Foundation
- Assets
- $535.0k
- Revenue
- $585.2k
- Investments
- $0.0
- Employees
- 7
- Location
- Boonton, NJ
- Founding
- 05/2010
- Data as of
- 12/2023
- EIN
- 26-4619055
Organization Overview
Soft Bones Inc The Us Hypophosphatasia Foundation is located in Boonton, NJ. The organization was established in 2010. According to its NTEE Classification (H50) the organization is classified as: Nerve, Muscle & Bone Diseases Research, under the broad grouping of Medical Research and related organizations. As of 12/2023, Soft Bones Inc The Us Hypophosphatasia Foundation employed 7 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Soft Bones Inc The Us Hypophosphatasia Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Soft Bones Inc The Us Hypophosphatasia Foundation generated $585.2k in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 5.9% each year. All expenses for the organization totaled $774.5k during the year ending 12/2023. While expenses have increased by 13.0% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO BUILD AWARENESS OF THE DISEASE OF HYPOPHOSPHATASIA BY PROVIDING EDUCATIONAL MATERIALS, A SUPPORT NETWORK, A SHARING OF INFORMATION REGARDING RESEARCH AND TREATMENT OPTIONS TO PEOPLE DIAGNOSED WITH HYPOPHOSPHATASIA, THEIR FAMILIES, AND TO THE TREATING DOCTORS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
EDUCATION & RESOURCE PROGRAM - THE ORGANIZATION PROVIDES FREE EDUCATION & RESOURCES TO THOSE AFFECTED BY THE DISEASE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Deborah Fowler President | Officer | 1 | $0 |
Karen Carolonza Vice Preside | Officer | 1 | $0 |
Michelle Labruno Treasurer | Officer | 1 | $0 |
Heidi Floyd Secretary | Officer | 1 | $0 |
Adam Grenker ESQ Director | Trustee | 1 | $0 |
Scott Nettune Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $60,630 |
| Related organizations | $0 |
| Government grants | $6,333 |
| All other contributions, gifts, grants, and similar amounts not included above | $422,700 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $489,663 |
| Total Program Service Revenue | $0 |
| Investment income | $24,807 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $70,738 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $585,208 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $25,000 |
| Grants and other assistance to domestic individuals. | $27,257 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $216,541 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $18,917 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $2,980 |
| Fees for services: Accounting | $3,080 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $146,647 |
| Advertising and promotion | $3,768 |
| Office expenses | $24,295 |
| Information technology | $75,000 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $19,446 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $6,397 |
| All other expenses | $6,209 |
| Total functional expenses | $774,511 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $62,729 |
| Savings and temporary cash investments | $463,829 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $6,333 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $2,089 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $534,980 |
| Accounts payable and accrued expenses | $2,693 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $4,960 |
| Total liabilities | $7,653 |
| Net assets without donor restrictions | $527,327 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $534,980 |
Grants Awarded
Over the last fiscal year, Soft Bones Inc The Us Hypophosphatasia Foundation has awarded $57,328 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
OHIO STATE UNIVERSITY | | | $25,000 |
UNIVERSITY OF MICHIGAN | | | $25,000 |
HYMAN PHELPS & MCNAMARA | | | $7,328 |