Daystar For Medically Fragile Children Inc

Organization Overview

Daystar For Medically Fragile Children Inc, operating under the name Daystar Kids, is located in Rochester, NY. The organization was established in 2017. According to its NTEE Classification (P40) the organization is classified as: Family Services, under the broad grouping of Human Services and related organizations. As of 12/2022, Daystar Kids employed 60 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Daystar Kids is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2022, Daystar Kids generated $4.4m in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 19.1% each year . All expenses for the organization totaled $3.4m during the year ending 12/2022. While expenses have increased by 13.2% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

PEDIATRIC RESPITE AND DEVELOPMENTAL SERVICES FOR CHILDREN WITH COMPLEX HEALTH CARE CONDITIONS. SERVICES INCLUDE STEP-DOWN NURSING SERVICES; EARLY CHILDHOOD EDUCATIONAL ENRICHMENT GROUPS; INDIVIDUALIZED SPECIAL EDUCATION SERVICES; PRESCHOOL AND/OR EARLY INTERVENTION THERAPIES; AND FAMILY SUPPORT SERVICES FOR CHILDREN AGES 4 MONTHS TO 5 YEARS OF AGE. DAYSTAR SUPPORTS UP TO 56 ENROLLEES DAILY, AND IS THE ONLY FULL-DAY PROGRAM AVAILABLE TO CHILDREN WHO HAVE COMPLEX MEDICAL CONDITIONS; REQUIRE ONGOING NURSING SUPERVISION AND CARE, AND/OR RELY ON MEDICAL DEVICES TO COMPENSATE FOR LIFE-SUSTAINING ACTIVITIES. DAYSTAR'S INNOVATIVE PROGRAM HAS BEEN RECOGNIZED BY NYS OFFICE OF CHILDREN AND FAMILY SERVICES AS A "BEST PRACTICES MODEL AND IS LAUDED AS A COST-EFFECTIVE ALTERNATIVE TO HOME-BASED HEALTH CARE SERVICES; RECOGNIZED AS A PROVEN PREVENTION STRATEGY TO MINIMIZE HOSPITALIZATION, AND AN ECONOMIC CATALYST, HELPING FAMILIES PRESERVE THEIR ECONOMIC INDEPENDENCE AND RETURN TO THE WORKFORCE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

DAYSTAR KIDS PROVIDES YEAR-ROUND, FULL-DAY SPECIALIZED PEDIATRIC RESPITE SERVICES TO CHILDREN WITH COMPLEX HEALTH CARE CONDITIONS RANGING IN AGE FROM 4 MONTHS TO 5 YEARS OLD AND EMPOWERS CHILDREN WITH THE SKILLS THEY NEED TO SUCCESSFULLY ENTER KINDERGARTEN WITH THEIR PEERS. IN 2022, DAYSTAR KIDS PROVIDED SKILLED PEDIATRIC NURSING SERVICES, EARLY CHILDHOOD AND SPECIAL EDUCATION PROGRAMS, HEALTH CARE COORDINATION, AND RELATED THERAPIES ONSITE TO 60 ENROLLEES FROM 13 DIFFERENT SCHOOL DISTRICTS IN THE GREATER ROCHESTER AREA. DAYSTAR KIDS' MULTIDISCIPLINARY PROGRAMS DAYSTAR KIDS HAVE AN AVERAGE OF 7 PRIMARY DIAGNOSES AND REQUIRE ONGOING NURSING SUPERVISION AND SUPPORT TO MAINTAIN THEIR HEALTH STATUS AND AVOID HOSPITALIZATION.


DAYSTAR'S FAMILY SUPPORT SERVICES PROGRAM IS SUPPORTED BY NEW YORK STATE OFFICE FOR PEOPLE WITH WITH DEVELOPMENTAL DISABILITIES AND PROVIDES ESSENTIAL CARE COORDINATION SERVICES, TRANSITIONAL SUPPORT SERVICES, PREVENTIVE HEALTHCARE SERVICES, HEALTHCARE NAVIGATION ASSISTANCE, FAMILY ADVOCACY, AND ESSENTIAL EDUCATION AND TRAINING SERVICES TO UP TO 86 FAMILIES ANNUALLY WHO CARE FOR AN INFANT OR CHILD WITH COMPLEX HEALTHCARE CONDITIONS AND DEVELOPMENTAL DISABILITIES. DURING 2022, DAYSTAR SERVED 56 FAMILIES WHO WERE APPROVED FOR THIS SERVICE, EMPOWERING THEM TO EFFECTIVELY ADVOCATE AND MANAGE THEIR CHILD'S COMPLEX HEALTH CARE, SOCIAL-EMOTIONAL, AND EDUCATIONAL GOALS, WHILE SUPPORTING THEIR FAMILY'S NEED FOR ADDITIONAL CARE COORDINATION SUPPORTS.


DAYSTAR'S EARLY INTERVENTION AND PRESCHOOL SPECIAL SERVICES PROGRAM CONSISTS OF A DEDICATED TEAM OF RELATED PROVIDERS EXPERT IN WORKING WITH CHILDREN WITH MEDICAL COMPLEXITY TO PROVIDE ASSESSMENTS, EVALUATION SERVICES, AND THERAPY SERVICES. THIS PROGRAM IMPROVES SERVICE INTEGRATION, LINKING DAYSTAR'S CURRICULUM, THERAPEUTIC GOALS, AND HEALTH CARE DIRECTIVES TO SUPPORT THE INDIVIDUALIZED NEEDS OF EACH PATIENT, AND CREATES UNPARALLELED CONTINUITY OF CARE BY MINIMIZING PATIENT TRANSITIONS AND DISRUPTION OF SERVICES.


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Board, Officers & Key Employees

Name (title)Compensation
Kim Condon
Executive Director
$140,493
Diane Tucker
Director Of Finance
$90,128
Michael Schwabl
Vice President
$0
Steve Mccluski
Treasurer
$0
Kathy Rideout Edd Pnp-Bc Fnap
President
$0
Phil Castleberry
Secretary
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$266,717
Related organizations$0
Government grants $334,202
All other contributions, gifts, grants, and similar amounts not included above$1,092,913
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$1,693,832
Total Program Service Revenue$2,622,599
Investment income $118,831
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events -$34,488
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $4,401,041

Grants Recieved

Over the last fiscal year, we have identified 4 grants that Daystar For Medically Fragile Children Inc has recieved totaling $1,054,449.

Awarding OrganizationAmount
Morgan Stanley Global Impact Funding Trust Inc

Indianapolis, IN

PURPOSE: UNRESTRICTED GENERAL SUPPORT

$1,000,000
Rochester Area Community Foundation

Rochester, NY

PURPOSE: FOR GENERAL SUPPORT

$33,849
Rochester Area Community Foundation Depository Inc

Rochester, NY

PURPOSE: FOR GENERAL SUPPORT

$10,600
Rite Aid Healthy Futures

Camp Hill, PA

PURPOSE: SUPPORT THE LOCAL HEALTH AND WELLNESS PROGRAM

$10,000
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$3,275,380
Earnings-$481,672
Ending Balance$2,793,708

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