National Organization For Albinism And Hypopigmentation
- Assets
- $979.9k
- Revenue
- $566.6k
- Investments
- $524.2k
- Employees
- 1
- Location
- East Hampstead, NH
- Founding
- 11/1985
- Data as of
- 12/2021
- EIN
- 23-2265173
Organization Overview
National Organization For Albinism And Hypopigmentation is located in East Hampstead, NH. The organization was established in 1985. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Organization For Albinism And Hypopigmentation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, National Organization For Albinism And Hypopigmentation generated $566.6k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 9.7% each year. All expenses for the organization totaled $298.2k during the year ending 12/2021. While expenses have increased by 3.4% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
NOAH'S MISSION IS TO ACT AS A CONDUIT FOR ACCURATE AND AUTHORITATIVE INFORMATION ABOUT ALL ASPECTS OF LIVING WITH ALBINISM AND TO PROVIDE A PLACE WHERE PEOPLE WITH ALBINISM AND THEIR FAMILIES IN THE U.S. AND CANADA CAN FIND ACCEPTANCE, SUPPORT AND FELLOWSHIP.
Describe the Organization's Program Activity:
Part 3 - Line 4a
BIENNIAL NATIONAL GRANTS - ANNUAL GRANTS TO SUPPORT PROGRAMS THAT PROMOTE ALBINISM AWARENESS AND EDUCATION
PRODUCE A QUARTERLY MAGAZINE "ALBINISM INSIGHT"
ORGANIZATIONAL CORE PROGRAM IMPLEMENTATION EXPENSES
OTHER SERVICES TO RAISE ALBINISM AWARENESS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Karen Bly Eff 71921 Executive Di | Officer | 40 | $38,260 |
Diana Mccown Until 71821 Interm Exec | Officer | 25 | $27,570 |
Sonja Harris Board Secret | OfficerTrustee | 1 | $0 |
Mark A Larue Board Treasu | OfficerTrustee | 1 | $0 |
Donte Mickens Chair | OfficerTrustee | 5 | $0 |
Elliot Ostrove Board Vice C | OfficerTrustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $482,007 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $482,007 |
| Total Program Service Revenue | $26,540 |
| Investment income | $16,484 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $6,743 |
| Net Income from Fundraising Events | $34,802 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $566,576 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $10,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $38,260 |
| Pension plan accruals and contributions | $1,015 |
| Other employee benefits | $0 |
| Payroll taxes | $3,359 |
| Fees for services: Management | $102,813 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $8,148 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $664 |
| Office expenses | $990 |
| Information technology | $10,000 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $29,336 |
| Total functional expenses | $298,189 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $375,018 |
| Savings and temporary cash investments | $49,859 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $27,926 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $524,173 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $2,944 |
| Total assets | $979,920 |
| Accounts payable and accrued expenses | $962 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $962 |
| Net assets without donor restrictions | $861,525 |
| Net assets with donor restrictions | $117,433 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $979,920 |
Grants Recieved
Over the last fiscal year, we have identified 5 grants that National Organization For Albinism And Hypopigmentation has recieved totaling $164,040.
| Awarding Organization | Amount |
|---|---|
Vision For Tomorrow Foundation Lagrange, IL PURPOSE: TO SPONSOR ALBINISM RESEARCH PROGRAM | $120,000 |
American Endowment Foundation Hudson, OH PURPOSE: DISEASE/DISORDER | $30,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $10,040 |
Goldstein Family Foundation Bettendorf, IA PURPOSE: GENERAL FUND | $3,000 |
Tao Jones Charitable Foundation Inc Miami Beach, FL PURPOSE: ALBINISM INFORMATION AND SUPPORT | $1,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
United Cerebral Palsy Association Of Metro Boston Inc Watertown, MA | $8,349,655 | $10,098,245 |
Meeting Street Massachusetts Inc Dartmouth, MA | $7,066,344 | $9,300,886 |
Aspire Developmental Services Inc Lynn, MA | $8,440,789 | $8,951,245 |
Elmhurst Inc Bath, ME | $8,917,102 | $4,047,528 |
Congenital Heart Surgeons Society Beverly, MA | $1,054,429 | $847,267 |
The Genesis Foundation For Children Inc Boston, MA | $829,412 | $775,105 |
The Familiescn2a Foundation Inc East Longmeadow, MA | $1,231,993 | $843,741 |
Zack S Place Enrichment Center Inc Woodstock, VT | $1,549,680 | $532,320 |
National Organization For Albinism And Hypopigmentation East Hampstead, NH | $979,920 | $566,576 |
Gene R Cohen Charitable Foundation Portland, ME | $798,403 | $173,437 |
Natalie W And Leo E Wolf Foundation Newbury, NH | $560,348 | $5,065 |
Thinkgenetic Foundation Inc Sudbury, MA | $87,349 | $0 |