Myelodysplastic Syndromes Foundation
- Assets
- $5.4m
- Revenue
- $2.5m
- Investments
- $0.0
- Employees
- 9
- Location
- Yardville, NJ
- Founding
- 04/2000
- Data as of
- 12/2022
- EIN
- 22-3283911
Organization Overview
Myelodysplastic Syndromes Foundation, operating under the name Mds Foundation Inc, is located in Yardville, NJ. The organization was established in 2000. According to its NTEE Classification (G30) the organization is classified as: Cancer, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2022, Mds Foundation Inc employed 9 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Mds Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Mds Foundation Inc generated $2.5m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 15.2% each year . All expenses for the organization totaled $2.2m during the year ending 12/2022. While expenses have increased by 9.7% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2017, Mds Foundation Inc has awarded 18 individual grants totaling $3,059,203. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
ESTABLISHED BY AN INTERNATIONAL GROUP OF PHYSICIANS AND RESEARCHERS TO PROVIDE AN ONGOING EXCHANGE OF INFORMATION RELATING TO MDS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE FOUNDATION CONTINUED ITS EXTENSIVE PATIENT ADVOCACY OUTREACH INITIATIVES IN 2022. THE FOUNDATION STAFF COMMUNICATES DAILY WITH PATIENTS AND CAREGIVERS PROVIDING SUPPORT AND EDUCATION REGARDING THE MYELODYSPLASTIC SYNDROMES IN THE FOLLOWING FORMATS: PATIENT INFORMATION VIA THE FOUNDATIONS "BUILDING BLOCKS OF HOPE" INITIATIVE, MDS FOUNDATION NEWSLETTERS, AND THROUGH THE MDS FOUNDATION WEBSITE AND SOCIAL MEDIA CAMPAIGNS. ON-SITE PATIENT LIASON SUPPORT IS ALSO PROVIDED INCLUDING REFERRALS TO THE MDS CENTERS OF EXCELLENCE, PROVIDING INFORMATION ON CURRENT TREATMENT OPTIONS AND AVAILABLE CLINICAL TRIALS, RESPONSES TO EMAIL AND SOCIAL MEDIA INQUIRIES, AND PROVIDING A CONNECTION BETWEEN MDS PATIENTS UPON REQUEST.
EDUCATIONAL SYMPOSIA AND A BI-ANNUAL CONFERENCE ARE CONDUCTED FOR SEVERAL SOCIETIES AND ASSOCIATIONS SUCH AS THE AMERICAN SOCIETY OF HEMATOLOGY AND THE ONCOLOGY NURSING SOCIETY. THESE INFORMATIVE AND INTERACTIVE SYMPOSIA ARE AIMED AT HEMATOLOGISTS AND NURSES WORKING IN HEMATOLOGY AS WELL AS FELLOWS IN HEMATOLOGY, PHARMACISTS WORKING WITH MDS PATIENTS AND ALLIED HEALTH PROFESSIONALS WORKING IN THE FIELD OF MDS PATIENT CARE AND TREATMENT.
THE MDS FOUNDATION PROVIDES RESEARCH GRANTS FOR SCIENTIFIC INVESTIGATORS. THE FOUNDATION IS DEDICATED TO FURTHERING THE RESEARCH INTO MDS AND WILL INVITE YOUNG INVESTIGATORS TO SUBMIT PROPOSALS FOR EITHER BASIC RESEARCH OR CLINICAL MANAGEMENT INTO THE CAUSATION, EPIDEMIOLOGY, MOLECULAR BIOLOGY, CYTOGENETICS, MORPHOLOGY, PROGNOSIS AND MANAGEMENT OF THE MYELODYSPLASTIC SYNDROMES. IN ADDITION, THE FOUNDATION SPONSORS INTERNATIONAL WORKING GROUPS OF SCIENTISTS AND PHYSICIANS TO FURTHER DIAGNOSTIC, PROGNOSTIC AND TREATMENT TECHNIQUES. THE FOUNDATION HAS ALSO ESTABLISHED A PROCEDURE FOR CREATING AWARENESS OF CLINICAL TRIALS IN THE FIELD OF MDS AS WELL AS ASSISTING IN THE CLINICAL TRIAL RECRUITMENT PROCESS BY UTILIZING ITS OUTREACH TO
Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Tracey A Iraca Executive Di | Officer | 40 | $93,661 |
Janice Butchko Secretary | Officer | 40 | $48,741 |
Sandra Kurtin PHD Anp-C Aocn Treasurer | OfficerTrustee | 4 | $0 |
Luca Malcovati MD Board Member | Trustee | 4 | $0 |
Michael R Savona MD Board Member | Trustee | 4 | $0 |
Peter L Greenberg MD Board Member | Trustee | 4 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Emrg Media Event Planning | 12/30/22 | $549,671 |
Colabhealth Group Facilitat | 12/30/22 | $266,876 |
Impact Brands Marketing | 12/30/22 | $158,052 |
Magdalen Medical Publishing Ltd Publishing | 12/30/22 | $110,050 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $54,195 |
| Fundraising events | $347,294 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,217,437 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,618,926 |
| Total Program Service Revenue | $405,541 |
| Investment income | $8,487 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$523,102 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,521,375 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $240,484 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $147,110 |
| Compensation of current officers, directors, key employees. | $16,853 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $373,122 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $34,639 |
| Payroll taxes | $42,107 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $29,131 |
| Fees for services: Accounting | $64,261 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $157,116 |
| Advertising and promotion | $171,198 |
| Office expenses | $208,998 |
| Information technology | $19,408 |
| Royalties | $0 |
| Occupancy | $36,628 |
| Travel | $21,620 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $210,363 |
| Interest | $1,063 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $198,133 |
| Insurance | $0 |
| All other expenses | $218,778 |
| Total functional expenses | $2,174,159 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $2,321,663 |
| Savings and temporary cash investments | $1,747,808 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $819,971 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $57,923 |
| Net Land, buildings, and equipment | $453,236 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $21,625 |
| Total assets | $5,422,226 |
| Accounts payable and accrued expenses | $256,783 |
| Grants payable | $0 |
| Deferred revenue | $2,826 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $21,726 |
| Total liabilities | $281,335 |
| Net assets without donor restrictions | $4,247,809 |
| Net assets with donor restrictions | $893,082 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $5,422,226 |
Grants Awarded
Over the last fiscal year, Myelodysplastic Syndromes Foundation has awarded $165,404 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
ALBERT EINSTEIN COLLEGE OF MEDICINE PURPOSE: YI AWARD | $100,000 |
DANA-FARBER CANCER INSTITUTE PURPOSE: QUALMS 26 | $25,000 |
H LEE MOFFITT CANCER CENTER& RESEARCH PURPOSE: IWG SEQUENCING | $40,404 |