Scleroderma Foundation New England Inc
- Assets
- $981.6k
- Revenue
- $295.4k
- Investments
- $0.0
- Employees
- 2
- Location
- Topsfield, MA
- Founding
- 06/1985
- Data as of
- 12/2021
- EIN
- 22-2603572
Organization Overview
Scleroderma Foundation New England Inc is located in Topsfield, MA. The organization was established in 1985. According to its NTEE Classification (G40) the organization is classified as: Diseases of Specific Organs, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Scleroderma Foundation New England Inc employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Scleroderma Foundation New England Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Scleroderma Foundation New England Inc generated $295.4k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (3.5%) each year. All expenses for the organization totaled $182.8k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (7.7%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
PROVIDE EDUCATIONAL AND EMOTIONAL SUPPORT TO PEOPLE WITH SCLERODERMA AND THEIR FAMILIES; TO STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY THE CAUSE AND CURE OF SCLERODERMA; AND TO
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROVIDE COUNSELING TO PATIENTS AND FAMILY MEMBERS WITH SCLERODERMA. ADDITIONALLY THE ORGANIZATION DONATES FUNDS TO THE NATIONAL SCLERODERMA FOUNDATION TO FUND RESEARCH.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Anne Sweeney Executive Director | Officer | 40 | $44,756 |
Lindsay DE Santis Former Executive Director | 40 | $39,452 | |
Jane Ladas President | OfficerTrustee | 10 | $0 |
Andrea Mahoney Vice President | OfficerTrustee | 1 | $0 |
Steve Lang Clerk | OfficerTrustee | 1 | $0 |
Chris Simms Treasurer | OfficerTrustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $325 |
| Fundraising events | $0 |
| Related organizations | $5,120 |
| Government grants | $58,623 |
| All other contributions, gifts, grants, and similar amounts not included above | $176,702 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $240,770 |
| Total Program Service Revenue | $0 |
| Investment income | $10,771 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $22,175 |
| Net Income from Fundraising Events | $21,708 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $295,424 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $19,845 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $84,208 |
| Compensation of current officers, directors, key employees. | $23,290 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $1,222 |
| Other employee benefits | $1,097 |
| Payroll taxes | $7,191 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $8,585 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $4,784 |
| Fees for services: Other | $475 |
| Advertising and promotion | $0 |
| Office expenses | $9,284 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $15,113 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $25,000 |
| Depreciation, depletion, and amortization | $488 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $182,782 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $296,236 |
| Savings and temporary cash investments | $5,005 |
| Pledges and grants receivable | $16,650 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $9,476 |
| Net Land, buildings, and equipment | $1,366 |
| Investments—publicly traded securities | $652,832 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $981,565 |
| Accounts payable and accrued expenses | $17,930 |
| Grants payable | $31,006 |
| Deferred revenue | $16,069 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $25,000 |
| Total liabilities | $90,005 |
| Net assets without donor restrictions | $437,830 |
| Net assets with donor restrictions | $453,730 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $981,565 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Scleroderma Foundation New England Inc has recieved totaling $600.
| Awarding Organization | Amount |
|---|---|
Turkanis Family Foundation Wilmington, DE PURPOSE: GENERAL & UNRESTRICTED | $600 |
Endowment Analysis
| Beg. Balance | $426,914 |
| Earnings | $42,018 |
| Grants | $20,207 |
| Ending Balance | $448,725 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Dystrophic Epidermolysis Bullosa Research Assn Of America Inc New York, NY | $2,216,777 | $1,109,789 |
Impact Melanoma Inc Concord, MA | $807,445 | $1,254,518 |
Lets Win Pancreatic Cancer Foundation New York, NY | $1,768,476 | $1,270,755 |
Halachic Organ Donor Society Inc New York, NY | $197,834 | $485,319 |
New England Section American Uroligical Association Inc Beverly, MA | $1,931,127 | $525,791 |
Help America Hear Inc Smithtown, NY | $105,244 | $195,272 |
Lets Talk Menopause Inc New York, NY | $18,818 | $0 |
Scleroderma Foundation New England Inc Topsfield, MA | $981,565 | $295,424 |
M Patricia Cronin Foundation To Fight Ovarian Cancer Quincy, MA | $0 | $0 |
Hepatitis C Mentor And Support Group Inc New York, NY | $390,250 | $0 |
Foundation For Medical Evaluation And Early Detection New York, NY | $685,200 | $64,021 |
National Gianna Center For Womens Health And Fertility Inc New York, NY | $115,920 | $75,621 |