Epilepsy Foundation Of Connecticut Inc
- Assets
- $3.3m
- Revenue
- $389.2k
- Investments
- $0.0
- Employees
- 9
- Location
- Middletown, CT
- Founding
- 08/1984
- Data as of
- 12/2022
- EIN
- 22-2535999
Organization Overview
Epilepsy Foundation Of Connecticut Inc is located in Middletown, CT. The organization was established in 1984. According to its NTEE Classification (G54) the organization is classified as: Epilepsy, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2022, Epilepsy Foundation Of Connecticut Inc employed 9 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Epilepsy Foundation Of Connecticut Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Epilepsy Foundation Of Connecticut Inc generated $389.2k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 8 years, the organization has seen revenues fall by an average of (22.2%) each year. All expenses for the organization totaled $386.8k during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF THE EPILEPSY FOUNDATION OF CONNECTICUT IS TO LEAD THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO INFORM CLIENTS REGARDING THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE EPILEPSY FOUNDATION OF CONNECTICUT: PROVIDED INFORMATION I.E. BROCHURES, MEDICATION INFORMATION, LEGAL RIGHTS, ADVOCACY, ETC. TO CLIENTS. CONDUCTED EDUCATIONAL PROGRAMS THAT SERVED PARTICIPANTS INCLUDING SCHOOL NURSES, ALLIED HEALTHCARE PROFESSIONALS, TEACHERS, CAMP COUNSELORS, LIFEGUARDS, EARLY CHILDCARE EDUCATORS, OTHER AGENCY AND EMPLOYEE TRAINING, SENIOR CITIZENS, TRANSIT COMPANIES, ELEMENTARY SCHOOL STUDENTS, MIDDLE SCHOOL STUDENTS, HIGH SCHOOL STUDENTS, POLICE OFFICERS, AND FIRST RESPONDERS. HOSTED EDUCATIONAL WEBINARS WITH PROFESSIONALS PROVIDING INFORMATION ABOUT VARIOUS EPILEPSY RELATED TOPICS. SUCCESSFULLY ADVOCATED FOR EMERGENCY LEGISLATION EXPANDING ACCESS TO AND REIMBURSEMENT OF TELEHEALTH SERVICES DURING THE COVID PANDEMIC. SPONSORED A CAMPING PROGRAM FOR CHILDREN AND TEENS WITH EPILEPSY. MANAGED A PARENT & FAMILY TELEPHONE SUPPORT NETWORK. MANAGED A FRIEND TO FRIEND TELEPHONE SUPPORT NETWORK. SPONSORED VIRTUAL SUPPORT GROUPS THROUGHOUT CONNECTICUT, SERVING DOZENS OF PEOPLE MONTHLY. PROVIDED TRANSPORTATION ASSISTANCE FOR CLIENTS WITH EPILEPSY. OFFERED THE HALYN MURTHA FAMILY ASSISTANCE FUND TO HELP PEOPLE WITH EPILEPSY IN NEED OF FINANCIAL ASSISTANCE TO COVER THE COST OF EPILEPSY TREATMENT, AND CARE SERVICES ASSOCIATED WITH THE CONDITION. ENROLLED CLIENTS IN THE HOBSCOTCH MEMORY & COGNITION PROGRAM. ENROLLED CLIENTS IN PROJECT UPLIFT PROGRAM THAT IMPROVED MENTAL HEALTH THROUGH MINDFULNESS AND COGNITIVE BEHAVIORAL SKILLS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Linda Wallace Former Execu | $103,616 | ||
Cherie Poirier Executive Di | Officer | 40 | $42,308 |
Denise Brower President | OfficerTrustee | 1 | $0 |
Taylor Brown CPA Treasurer | OfficerTrustee | 1 | $0 |
Lisa Cretella Secretary | OfficerTrustee | 1 | $0 |
Scott Demsey Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $177 |
| Membership dues | $0 |
| Fundraising events | $131,586 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $157,942 |
| Noncash contributions included in lines 1a–1f | $49,690 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $289,705 |
| Total Program Service Revenue | $32,742 |
| Investment income | $79,154 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$12,438 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $389,163 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $11,176 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $44,114 |
| Compensation of current officers, directors, key employees. | $21,498 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $155,823 |
| Pension plan accruals and contributions | $475 |
| Other employee benefits | $4,415 |
| Payroll taxes | $18,706 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $20,970 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $11,688 |
| Advertising and promotion | $5,381 |
| Office expenses | $24,901 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $41,397 |
| Travel | $2,450 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $3,215 |
| Interest | $136 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $2,432 |
| Insurance | $4,731 |
| All other expenses | $0 |
| Total functional expenses | $386,774 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $48,715 |
| Savings and temporary cash investments | $209,312 |
| Pledges and grants receivable | $6,000 |
| Accounts receivable, net | $5,341 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $1,551 |
| Net Land, buildings, and equipment | $3,367 |
| Investments—publicly traded securities | $2,889,160 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $116,035 |
| Total assets | $3,279,481 |
| Accounts payable and accrued expenses | $17,831 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $115,914 |
| Total liabilities | $133,745 |
| Net assets without donor restrictions | $3,126,489 |
| Net assets with donor restrictions | $19,247 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,279,481 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Epic Long Island Inc East Meadow, NY | $17,013,561 | $39,488,811 |
Epilepsy Foundation New England Inc Lowell, MA | $10,402,302 | $6,573,455 |
Epilepsy Institute New York, NY | $546,554 | $1,673,965 |
Epilepsy Foundation Of Northeastern New York Inc Albany, NY | $2,382,550 | $1,101,886 |
Epilepsy Assn Of Western New York Buffalo, NY | $222,118 | $477,007 |
Epilepsy Foundation Of Connecticut Inc Middletown, CT | $3,279,481 | $389,163 |
Pace Community Housing Corporation New Bedford, MA | $2,598,379 | $406,072 |
Frank Pace Jr Foundation Ridge, NY | $1,816,385 | $59,599 |
Sail For Epilepsy Ltd Boston, MA | $187,644 | $0 |
Epilepsy Fund Of Western New York Inc Buffalo, NY | $1,879,702 | $363,851 |
United Steelworkers South Glens Falls, NY | $23,346 | $0 |
Ashley Rose Foundation Massapequa, NY | $502,265 | -$53,745 |
Kappa Delta Sorority New York, NY | $6,737 | $0 |
Pace Environmental Litigation Clinic Inc White Plains, NY | $0 | $0 |
Cure Cdkl5 Epilepsy Foundation New York, NY | $0 | $0 |