Epilepsy Foundation New England Inc
- Assets
- $10.4m
- Revenue
- $6.6m
- Investments
- $0.0
- Employees
- 100
- Location
- Lowell, MA
- Founding
- 06/1984
- Data as of
- 06/2023
- EIN
- 22-2505819
Organization Overview
Epilepsy Foundation New England Inc is located in Lowell, MA. The organization was established in 1984. According to its NTEE Classification (G54) the organization is classified as: Epilepsy, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2023, Epilepsy Foundation New England Inc employed 100 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Epilepsy Foundation New England Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2023, Epilepsy Foundation New England Inc generated $6.6m in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 1.2% each year. All expenses for the organization totaled $5.9m during the year ending 06/2023. While expenses have increased by 1.5% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2018, Epilepsy Foundation New England Inc has awarded 13 individual grants totaling $662,883. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
EPILEPSY FOUNDATION NEW ENGLAND'S (EFNE) MISSION IS TO HELP PEOPLE AND FAMILIES EFFECTED BY EPILEPSY IN NEW ENGLAND.
Describe the Organization's Program Activity:
Part 3 - Line 4a
FUNDING SUPPORT & DONATION CENTER: EFNE'S DONATION CENTER FUNDS EFNE'S MISSION AND SUPPORTS ITS ADVANCEMENT OF RESEARCH IN EPILEPSY. THE DONATION CENTER COLLECTS GENTLY USED CLOTHING AND HOUSEWARES TO BE RESOLD. EFNE WORKS TO SHOWCASE ADVANCES AND RAISE MONEY FOR RESEARCH, IN PARTNERSHIP WITH THE EPILEPSY FOUNDATION OF AMERICA. THIS INCLUDES SHOWCASING RESEARCH IN OUR COMMUNICATION AND HOLDING EVENTS TO ENGAGE HEALTH CARE PROVIDERS, CLIENTS, AND DONORS IN UNDERSTANDING RESEARCH IN EPILEPSY.
RESOURCE AND SUPPORT SERVICES: EFNE PROVIDES EPILEPSY RESOURCE ROOMS IN ABOUT 12 HOSPITALS ACROSS NEW ENGLAND. THOUSANDS OF CLIENTS RECEIVE ACTIVE LISTENING AND MENTORING, EDUCATION, AND INFO/REFERRALS. IN FISCAL YEAR 2023, EFNE PROVIDED ONE-TIME GRANTS OF $50-$1,000 TO 48 FAMILIES AFFECTED BY EPILEPSY AND IN FINANCIAL CRISIS. EFNE PROVIDES APPROXIMATELY 50 SUPPORT GROUPS PER MONTH, SERVING 400-500 PEOPLE PER YEAR. EFNE'S 12-MEMBER VOLUNTEER REMEMBRANCE NETWORK PROVIDES BEREAVEMENT SUPPORT TO FAMILIES WHO HAVE LOST A LOVED ONE TO EPILEPSY. EFNE PROVIDES EDUCATIONAL PROGRAMS ABOUT EPILEPSY AND SEIZURE FIRST AID TO APPROXIMATELY 5,000 PEOPLE PER YEAR, INCLUDING SCHOOL CHILDREN, SCHOOL PERSONNEL, FIRST RESPONDERS, PARENTS AND THE GENERAL PUBLIC. WE MAINTAIN AN ONLINE KNOWLEDGE CENTER AND RESOURCE LIBRARY.
YOUTH SERVICES: EFNE PROVIDES 10-12 SLEEPAWAY AND DAY CAMPS EACH YEAR, SERVING 250-300 PARTICIPANTS. EFNE'S YOUNG LEADERS NETWORK ENGAGES 525 TEENS AND YOUNG ADULTS IN SKILL-BUILDING AND SUPPORT THROUGH MONTHLY MEETINGS AND COMMUNITY SERVICE. PARTICIPANTS RECEIVE MENTORING FROM STAFF, VOLUNTEERS, AMERICORPS MEMBERS, AND INTERNS. YOUNG ADULT RETREATS PROVIDE TRANSITION-AGE YOUTH WITH COMMUNITY BUILDING AND SKILLS AS THEY TRANSITION TO ADULTHOOD FOR 40 PEOPLE PER YEAR. KIDS CONNECT BUILDS COMMUNITY AND PROVIDES RECREATION FOR 200+ MIDDLE SCHOOL STUDENTS. HUNDREDS OF ONLINE VIRTUAL SUPPORT GROUPS AND MEET UPS PROVIDE SUPPORT TO OUR YOUTH. EFNE'S HOPE LION CAMPAIGN HAS REACHED 800+ FAMILIES TO PROVIDE SUPPORT, EDUCATION, AND COMMUNITY AS THEY MOVE THROUGH THEIR JOURNEY WITH EPILEPSY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Andrea Anderson Director | Trustee | 0.4 | $0 |
Jason Bourque Director | Trustee | 0.4 | $0 |
Jennifer Cardillo Director | Trustee | 0.4 | $0 |
Brett Downing Director | Trustee | 0.4 | $0 |
John N Gaitanis MD Director | Trustee | 0.4 | $0 |
Philip Haydon PHD Director | Trustee | 0.4 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Ryder Transporation Services Truck Leases | 6/29/20 | $277,342 |
Graphic Communications Advertising & Outreach | 6/29/20 | $138,165 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $721,949 |
| Related organizations | $0 |
| Government grants | $1,477,373 |
| All other contributions, gifts, grants, and similar amounts not included above | $379,143 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,578,465 |
| Total Program Service Revenue | $3,910,457 |
| Investment income | $186,935 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$130,148 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $6,573,455 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $160,000 |
| Grants and other assistance to domestic individuals. | $56,067 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $509,705 |
| Compensation of current officers, directors, key employees. | $27,085 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $2,745,140 |
| Pension plan accruals and contributions | $22,622 |
| Other employee benefits | $251,539 |
| Payroll taxes | $240,212 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $142,482 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $27,630 |
| Fees for services: Other | $411,926 |
| Advertising and promotion | $74,569 |
| Office expenses | $153,302 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $158,835 |
| Travel | $50,246 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $28,351 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $5,124 |
| Insurance | $25,476 |
| All other expenses | $30,783 |
| Total functional expenses | $5,905,898 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $985,059 |
| Savings and temporary cash investments | $284,067 |
| Pledges and grants receivable | $20,000 |
| Accounts receivable, net | $285,578 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $180,879 |
| Net Land, buildings, and equipment | $1,492 |
| Investments—publicly traded securities | $8,577,201 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $68,026 |
| Total assets | $10,402,302 |
| Accounts payable and accrued expenses | $364,092 |
| Grants payable | $0 |
| Deferred revenue | $784 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $53,807 |
| Total liabilities | $418,683 |
| Net assets without donor restrictions | $9,520,218 |
| Net assets with donor restrictions | $463,401 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $10,402,302 |
Grants Awarded
Over the last fiscal year, Epilepsy Foundation New England Inc has awarded $160,000 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
THE BRIGHAM AND WOMEN'S HOSPITAL INC PURPOSE: RESEARCH | $75,000 |
MASSACHUSETTS GENERAL HOSPITAL INC PURPOSE: RESEARCH | $75,000 |
MAINE HEALTH PURPOSE: RESEARCH | $5,000 |
BOSTON MEDICAL CENTER PURPOSE: RESEARCH | $5,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Epilepsy Foundation New England Inc Lowell, MA | $10,402,302 | $6,573,455 |
Epilepsy Institute New York, NY | $546,554 | $1,673,965 |
Epilepsy Foundation Of Northeastern New York Inc Albany, NY | $2,382,550 | $1,101,886 |
Epilepsy Assn Of Western New York Buffalo, NY | $222,118 | $477,007 |
Epilepsy Foundation Of Connecticut Inc Middletown, CT | $3,279,481 | $389,163 |
Pace Community Housing Corporation New Bedford, MA | $2,598,379 | $406,072 |
Frank Pace Jr Foundation Ridge, NY | $1,816,385 | $59,599 |
Sail For Epilepsy Ltd Boston, MA | $187,644 | $0 |
Epilepsy Fund Of Western New York Inc Buffalo, NY | $1,879,702 | $363,851 |
United Steelworkers South Glens Falls, NY | $23,346 | $0 |
Ashley Rose Foundation Massapequa, NY | $502,265 | -$53,745 |
Kappa Delta Sorority New York, NY | $6,737 | $0 |
Pace Environmental Litigation Clinic Inc White Plains, NY | $0 | $0 |
Cure Cdkl5 Epilepsy Foundation New York, NY | $0 | $0 |