Charcot-Marie-Tooth Association
- Assets
- $9.6m
- Revenue
- $5.8m
- Investments
- $0.0
- Employees
- 11
- Location
- Glenolden, PA
- Founding
- 06/1986
- Data as of
- 12/2023
- EIN
- 22-2480896
Organization Overview
Charcot-Marie-Tooth Association is located in Glenolden, PA. The organization was established in 1986. As of 12/2023, Charcot-Marie-Tooth Association employed 11 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Charcot-Marie-Tooth Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Charcot-Marie-Tooth Association generated $5.8m in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 5.2% each year. All expenses for the organization totaled $6.3m during the year ending 12/2023. While expenses have increased by 5.0% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Charcot-Marie-Tooth Association has awarded 134 individual grants totaling $17,320,417. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
FIGHTING TO END CHARCOT-MARIE-TOOTH DISEASE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DISEASE. IT ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF A MEDICAL RESEARCH CONSULTANT TO OVERSEE THE SELECTION OF THE RECIPIENTS OF THE RESEARCH FUNDING AND TO WRITE THE GRANTS AND CONTRACTS WITH THESE RESEARCHERS.
CMTA ORGANIZES AND CONDUCTS SUPPORT GROUPS, CONFERENCES AND EDUCATIONAL WEBINARS FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS TO SHARE KNOWLEDGE AND PROMOTE AWARENESS OF CHARCOT-MARIE-TOOTH DISEASE. CMTA ALSO PUBLISHES A BI-MONTHLY NEWSLETTER AND OTHER EDUCATIONAL PUBLICATIONS WHICH ARE AVAILABLE TO THE PUBLIC. CMTA ALSO MAINTAINS A WEBSITE FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS TO ASSIST IN UNDERSTANDING AND TREATING CHARCOT-MARIE-TOOTH DISEASE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Gilles Bouchard Chairman | OfficerTrustee | 0 | $0 |
Kevin Sami Treasurer | OfficerTrustee | 0 | $0 |
Herbert Beron Secretary | OfficerTrustee | 0 | $0 |
David Apple Director (from Apr. 2023) | Trustee | 0 | $0 |
Dan Chamby Director | Trustee | 0 | $0 |
David Coldiron Director | Trustee | 0 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $155,297 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $4,201,875 |
| Noncash contributions included in lines 1a–1f | $145,147 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $4,357,172 |
| Total Program Service Revenue | $1,308,834 |
| Investment income | $45,563 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $32,309 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $5,761,508 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $2,776,496 |
| Grants and other assistance to domestic individuals. | $42,500 |
| Grants and other assistance to Foreign Orgs/Individuals | $144,564 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $303,474 |
| Compensation of current officers, directors, key employees. | $81,863 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $697,289 |
| Pension plan accruals and contributions | $16,122 |
| Other employee benefits | $11,303 |
| Payroll taxes | $88,974 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $50,799 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $30,300 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $936,158 |
| Advertising and promotion | $120,444 |
| Office expenses | $233,465 |
| Information technology | $88,271 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $187,597 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $6,291,966 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $908,308 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $8,457,711 |
| Investments—other securities | $0 |
| Investments—program-related | $199,999 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $9,566,018 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $6,460,062 |
| Net assets with donor restrictions | $3,105,956 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $9,566,018 |
Grants Awarded
Over the last fiscal year, Charcot-Marie-Tooth Association has awarded $2,768,752 in support to 14 organizations.
| Grant Recipient | Amount |
|---|---|
BRAINXELL PURPOSE: CMT RESEARCH | $31,900 |
CHARLES RIVER LABORATORIES PURPOSE: CMT RESEARCH | $98,480 |
ENVIGO PURPOSE: CMT RESEARCH | $35,079 |
CLEVELAND CLINICLERNER RESEARCH INST PURPOSE: CMT RESEARCH | $49,902 |
JACKSON LABORATORY PURPOSE: CMT RESEARCH | $81,228 |
NEW YORK STEM CELL FOUNDATION INC PURPOSE: CMT RESEARCH | $35,675 |