Charcot-Marie-Tooth Association

Organization Overview

Charcot-Marie-Tooth Association is located in Glenolden, PA. The organization was established in 1986. As of 12/2021, Charcot-Marie-Tooth Association employed 12 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Charcot-Marie-Tooth Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Charcot-Marie-Tooth Association generated $5.2m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.1% each year. All expenses for the organization totaled $4.8m during the year ending 12/2021. While expenses have increased by 2.6% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Charcot-Marie-Tooth Association has awarded 110 individual grants totaling $12,975,470. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

FIGHTING TO END CHARCOT-MARIE-TOOTH DISEASE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DISEASE. IT ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF A MEDICAL RESEARCH CONSULTANT TO OVERSEE THE SELECTION OF THE RECIPIENTS OF THE RESEARCH FUNDING AND TO WRITE THE GRANTS AND CONTRACTS WITH THESE RESEARCHERS.


CMTA ORGANIZES AND CONDUCTS SUPPORT GROUPS, CONFERENCES AND EDUCATIONAL WEBINARS FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS TO SHARE KNOWLEDGE AND PROMOTE AWARENESS OF CHARCOT-MARIE-TOOTH DISEASE. CMTA ALSO PUBLISHES A BI-MONTHLY NEWSLETTER AND OTHER EDUCATIONAL PUBLICATIONS WHICH ARE AVAILABLE TO THE PUBLIC. CMTA ALSO MAINTAINS A WEBSITE FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS TO ASSIST IN UNDERSTANDING AND TREATING CHARCOT-MARIE-TOOTH DISEASE.


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Board, Officers & Key Employees

Name (title)Compensation
Amy Gray
Chief Executive Officer
$263,267
Jeana Sweeney
Chief Engagment & Gift Officer
$111,681
Kimberly Magee
Director Of Finance
$86,272
Gilles Bouchard
Chairman
$0
Gary Gasper
Treasurer
$0
Herbert Beron
Secretary
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$407,171
Related organizations$0
Government grants $339,445
All other contributions, gifts, grants, and similar amounts not included above$4,414,654
Noncash contributions included in lines 1a–1f $463,370
Total Revenue from Contributions, Gifts, Grants & Similar$5,161,270
Total Program Service Revenue$0
Investment income $9,495
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales -$2,086
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $5,168,679

Grants Awarded

Over the last fiscal year, Charcot-Marie-Tooth Association has awarded $2,233,076 in support to 17 organizations.

Grant RecipientAmount

UNIV OF IA-CARVER

PURPOSE: CMT RESEARCH

$602,543

PSYCHOGENICS INC

PURPOSE: CMT RESEARCH

$361,414

San Francisco, CA

PURPOSE: CMT RESEARCH

$265,704

NEW YORK STEM CELL FOUNDATION INC

Org PageRecipient Profile

New York, NY

PURPOSE: CMT RESEARCH

$153,000

Coral Gables, FL

PURPOSE: CMT RESEARCH

$147,687

OHIO STATE UNIVERSITY

Org PageRecipient Profile

Columbus, OH

PURPOSE: CMT RESEARCH

$128,018
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 3 grants that Charcot-Marie-Tooth Association has recieved totaling $2,150.

Awarding OrganizationAmount
Partners In Hope

Draper, UT

PURPOSE: CHARITABLE GIVING

$1,400
Mc Companies-Sharing The Good Life Foundation

Scottsdale, AZ

PURPOSE: PROGRAM SUPPORT

$500
Richard J And Ellen G Bodorffcharitable Foundation Inc

Easton, MD

PURPOSE: GENERAL OPERATING GRANT

$250
View Grant Recipient Profile

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