Center For Information And Study On Clinical Research Participation
- Assets
- $6.3m
- Revenue
- $8.7m
- Investments
- $0.0
- Employees
- 66
- Location
- Boston, MA
- Founding
- 09/2004
- Data as of
- 12/2022
- EIN
- 20-0588190
Organization Overview
Center For Information And Study On Clinical Research Participation is located in Boston, MA. The organization was established in 2004. According to its NTEE Classification (H99) the organization is classified as: Medical Research N.E.C., under the broad grouping of Medical Research and related organizations. As of 12/2022, Center For Information And Study On Clinical Research Participation employed 66 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Center For Information And Study On Clinical Research Participation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Center For Information And Study On Clinical Research Participation generated $8.7m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 18.9% each year . All expenses for the organization totaled $8.6m during the year ending 12/2022. While expenses have increased by 18.2% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
OUR CORE MISSION IS TO PROVIDE ACCESSIBLE, RELEVANT, USEFUL, HIGH-QUALITY EDUCATIONAL RESOURCES, PROGRAMS, AND SERVICES THAT INCREASE AWARENESS AND UNDERSTANDING OF THE CLINICAL RESEARCH PROCESS; RECOGNIZE AND APPRECIATE THE UNPRECEDENTED GIFT OF PARTICIPATION IN CLINICAL TRIALS; ENHANCE AND ENRICH THE PARTICIPATION EXPERIENCE FOR PATIENTS AND THEIR FAMILIES; AND PROMOTE ENGAGEMENT AND PARTNERSHIP BETWEEN CLINICAL RESEARCH PROFESSIONALS, PATIENTS, AND THE PUBLIC.
Describe the Organization's Program Activity:
Part 3 - Line 4a
HEALTH COMMUNICATION SERVICES - PROVIDE STUDY VOLUNTEERS WITH THE RESULTS OF THEIR CLINICAL TRIAL BY CREATING AND DELIVERING PLAIN LANGUAGE SUMMARIES, PLAIN LANGUAGE TRANSLATIONS OF INFORMED CONSENT DOCUMENTS, LEGAL DOCUMENTS, WEBSITES, PLAIN LANGUAGE SUMMARIES OF PUBLICATIONS & PROTOCOL SYNOPSES. HEALTH LITERACY EDUCATION AND WORKSHOPS.
MARKETING - PROVIDE EDUCATIONAL MATERIALS TO HELP THE PUBLIC LEARN ABOUT CLINICAL RESEARCH AND WHAT IT MEANS TO BE A CLINICAL RESEARCH VOLUNTEER. SPONSOR USA TODAY CLINICAL TRIALS AND OUTREACH CAMPAIGN TO EDUCATE THE PUBLIC AND BUILD AWARENESS OF CLINICAL RESEARCH PARTICIPATION. MINORITY OUTREACH MEDIA CAMPAIGN TO HIGHLIGHT THE IMPORTANCE OF DIVERSITY AMONG CLINICAL STUDY PARTICIPANTS.
RESEARCH SERVICES - ENGAGING PATIENTS AND THEIR SUPPORT NETWORK TO OBTAIN MEANINGFUL INSIGHTS FOR SPONSORS - INCLUDING BUT NOT LIMITED TO PHARMACEUTICAL, BIOTECHNOLOGY AND MEDICAL DEVICE COMPANIES, CONTRACT RESEARCH ORGANIZATIONS, ACADEMIC AND FOR-PROFIT INSTITUTIONS, FOUNDATIONS AND NONPROFIT ORGANIZATIONS. PROVIDE PATIENT & CARE PARTNER ADVISORY BOARDS, CLINICAL TRIAL JOURNEY WORKSHOPS, AND CUSTOM RESEARCH PROJECTS.
CONTENT LICENSING - LICENSING OR PURCHASE OF CISCRP EDUCATIONAL CONTENT, VIDEOS AND BROCHURES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kenneth Getz Board Chair | OfficerTrustee | 8 | $83,200 |
Jorge Guerra Board Member | Trustee | 0.1 | $0 |
Jessica Blaustein Board Member | Trustee | 0.1 | $0 |
Caroline Casey CFO | Officer | 40 | $209,710 |
Jill Mcnair Chief Growth Officer | 40 | $198,384 | |
Annick Debruin Sr. Director, Research Services | 40 | $178,283 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Phoenix Translations Translation Services | 12/30/20 | $897,831 |
Richard Mooney Graphic Design Services | 12/30/20 | $135,317 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $18,102 |
| All other contributions, gifts, grants, and similar amounts not included above | $430,872 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $448,974 |
| Total Program Service Revenue | $8,187,133 |
| Investment income | $14,385 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $4,311 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $8,654,803 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $324,761 |
| Compensation of current officers, directors, key employees. | $324,761 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $3,322,986 |
| Pension plan accruals and contributions | $79,844 |
| Other employee benefits | $348,711 |
| Payroll taxes | $277,844 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $7,635 |
| Fees for services: Accounting | $32,113 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $7,370 |
| Fees for services: Other | $86,070 |
| Advertising and promotion | $431,295 |
| Office expenses | $397,421 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $277,875 |
| Travel | $91,587 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $101,955 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $8,847 |
| Insurance | $50,753 |
| All other expenses | $31,295 |
| Total functional expenses | $8,577,457 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,660,599 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $245,702 |
| Accounts receivable, net | $2,803,180 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $17,806 |
| Prepaid expenses and deferred charges | $13,056 |
| Net Land, buildings, and equipment | $26,089 |
| Investments—publicly traded securities | $641,583 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $854,130 |
| Total assets | $6,262,145 |
| Accounts payable and accrued expenses | $780,831 |
| Grants payable | $0 |
| Deferred revenue | $522,540 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $880,310 |
| Total liabilities | $2,183,681 |
| Net assets without donor restrictions | $3,692,214 |
| Net assets with donor restrictions | $386,250 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $6,262,145 |