Matthew Siravo Memorial Foundation Inc Inc

Organization Overview

Matthew Siravo Memorial Foundation Inc Inc, operating under the name The Matty Fund, is located in Warwick, RI. As of 12/2016, Matty Fund employed 5 individuals. Matty Fund is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2016, Matty Fund generated $223.0k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 2 years, the organization has seen revenues fall by an average of (12.5%) each year. All expenses for the organization totaled $260.4k during the year ending 12/2016. As we would expect to see with falling revenues, expenses have declined by (10.8%) per year over the past 2 years. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2016

Describe the Organization's Mission:

Part 3 - Line 1

TO PROVIDE FAMILY RESOURCES, PROMOTE PATIENT SAFETY, AND IMPROVE THE QUALITY OF LIFE FOR CHILDREN AND FAMILIES WITH EPILEPSY.

Describe the Organization's Program Activity:

Part 3 - Line 4a

EPILEPSY AWARENESS AND EDUCATION: ESSENTIAL TO THE MISSION OF THE MATTY FUND ARE PROGRAMS THAT EDUCATE AND RAISE AWARENESS ABOUT THE REALITIES OF EPILEPSY, TEACH SEIZURE PROTOCOLS, AND PROMOTE PATIENT SAFETY. THESE PROGRAMS HELP TO REMOVE THE STIGMA ASSOCIATED WITH EPILEPSY AND SEIZURES TO ENCOURAGE A SAFE, PRODUCTIVE, AND INCLUSIVE ENVIRONMENT FOR CHILDREN LIVING WITH THIS CONDITION AT SCHOOL, HOME, AND PLAY. RAISING EPILEPSY AWARENESS IS A CORE ELEMENT INCLUDED IN THE PLANNING AND DELIVERY OF EVERY PROGRAM AND EVENT. THE MATTY FUND ALSO DESIGNS PROGRAMS TO MEET THE NEEDS OF MEDICAL AND EDUCATIONAL PROFESSIONALS.


CHILDREN AND FAMILIES SUPPORT AND ACTIVITIES: THE MATTY FUND WAS BUILT ON SEVERAL GUIDING PRINCIPLES. ONE, TO HELP PARENTS AND CAREGIVERS COPE WITH CHILDREN SUFFERING WITH SEIZURES AND THE SIDE EFFECTS OF STRONG MEDICATIONS. TWO, TO OFFER PROGRAMS AND ACTIVITIES FOR CHILDREN LIVING WITH EPILEPSY THAT ARE FUN, SAFE, AND INCLUSIVE. THE MATTY FUND'S EPILEPSY RESOURCE CENTER FOR CHILDREN AND FAMILIES, THE FIRST OF ITS KIND IN RHODE ISLAND, OFFERS THIS SUPPORT AND OUTREACH TO FAMILIES THROUGHOUT RHODE ISLAND AND BEYOND. THE RESOURCE CENTER OFFERS INFORMATION, ADVOCACY, AND EDUCATION IN A VARIETY OF WAYS. THE "DISCOVERING MY EPILEPSY SUPPORT GROUP" BRINGS PARENTS AND CAREGIVERS TOGETHER, BOTH IN-PERSON AND ELECTRONICALLY, TO SUPPORT AND LEARN FROM OTHERS WHO SHARE SIMILAR EXPERIENCES. PARTICIPANTS HELP EACH OTHER NAVIGATE COMPLEX MEDICAL, EDUCATION, AND SOCIAL SYSTEMS ON BEHALF OF THEIR CHILDREN; EDUCATE EACH OTHER ON POTENTIAL SOLUTIONS TO SOCIAL AND BEHAVIORAL ISSUES RELATED TO EPILEPSY; AND CONNECT TO LOCAL, STATE, AND PRIVATE RESOURCES, AND PARTICIPATE IN CHILDREN'S ACTIVITIES.


RESEARCH INITIATIVES: IN 2015, THE MATTY FUND AWARDED THE MATTHEW SIRAVO UNDERGRADUATE AWARDS IN EPILEPSY RESEARCH AT THE BROWN UNIVERSITY INSTITUTE FOR BRAIN SCIENCE. THIS AWARD ENCOURAGES WORK TOWARDS IMPROVING THE DIAGNOSIS, TREATMENT AND PREVENTION OF EPILEPSY.


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Board, Officers & Key Employees

Name (title)Compensation
Daniel Clayton
Board Of Directors
$0
Larry Fish
Board Of Directors
$0
Phyllis Fish
Vice President
$0
Robert Marcello
Board Of Directors
$0
Kathy Partington
Secretary
$0
Joseph Siravo
President
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$141,196
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$58,657
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$199,853
Total Program Service Revenue$0
Investment income $23,190
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $223,043

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