Crohns & Colitis Foundation Inc is located in New York, NY. The organization was established in 1966. According to its NTEE Classification (G70) the organization is classified as: Digestive Diseases & Disorders, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, Crohns & Colitis Foundation Inc employed 377 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Crohns & Colitis Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Crohns & Colitis Foundation Inc generated $81.8m in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 2.5% each year. All expenses for the organization totaled $86.5m during the year ending 12/2023. While expenses have increased by 3.2% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2014, Crohns & Colitis Foundation Inc has awarded 655 individual grants totaling $159,514,232. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO CURE CROHN'S DISEASE AND ULCERATIVE COLITIS (CONTINUED ON SCHEDULE O)
Describe the Organization's Program Activity:
Part 3 - Line 4a
SINCE ITS INCEPTION, THE CROHN'S & COLITIS FOUNDATION HAS PROVIDED MORE THAN $500 MILLION FOR RESEARCH ON THE TREATMENT AND CURES OF IBD. THE FOUNDATION FUNDS A SET OF PRIORITY RESEARCH INITIATIVES: MULTI-INSTITUTIONAL, MULTI-DISCIPLINARY, COLLABORATIVE RESEARCH PROJECTS TARGETING AREAS OF SCIENCE WITH A HIGH PROBABILITY OF ADVANCING TREATMENT. THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). (CONTINUED IN SCHEDULE O)THE FOUNDATION'S RESEARCH PORTFOLIO IS A COMBINATION OF BASIC, TRANSLATIONAL, AND CLINICAL RESEARCH. DESIGNED TO CUT YEARS OFF THE RESEARCH PROCESS, IBD PLEXUS, THE FOUNDATION'S INNOVATIVE RESEARCH PLATFORM, IS THE SINGLE LARGEST IBD DATABASE IN THE US AND THE MOST COMPREHENSIVE IBD DATABASE IN THE WORLD. IT CURRENTLY PROVIDES RESEARCHERS WITH DATA FROM OVER 25,000 PATIENTS, INCLUDING 250,000 BIOSAMPLES (BLOOD, STOOL, AND INTESTINAL TISSUE).THE FOUNDATION LEADS THE WAY IN NEW, CRITICALLY IMPORTANT AREAS OF IBD RESEARCH, AND ACCELERATING NOVEL THERAPIES AND INNOVATIVE PRODUCTS THAT ADDRESS UNMET PATIENT NEEDS. IN 2020, THE FOUNDATION LAUNCHED THE MOST EXTENSIVE IBD-FOCUSED PRECISION NUTRITION EFFORT, TO BETTER UNDERSTAND THE DIRECT IMPACT THAT FOOD MAY HAVE IN THE MANAGEMENT OF IBD AND ON PATIENT QUALITY OF LIFE. THE FOUNDATION ALSO LAUNCHED THE SURGICAL RESEARCH NETWORK, OUR FIRST-EVER COORDINATED-FUNDING EFFORT TO STUDY SURGICAL OUTCOMES IN IBD, WITH OVER 50 CENTERS PARTICIPATING.
THE CROHN'S & COLITIS FOUNDATION PROVIDES INFORMATION AND EDUCATION FOR THE MILLIONS OF INDIVIDUALS WITH IBD AND THEIR LOVED ONES THROUGH A VARIETY OF CHANNELS AT THE NATIONAL AND LOCAL LEVEL INCLUDING IN-PERSON AND WEB-BASED EDUCATION, SUPPORT PROGRAMS INCLUDING PEDIATRIC AND ADULT FOCUS INITIATIVES, IBD HELP CENTER ANSWERING QUESTIONS AND PROVDING SUPPORT FOR THOSE WITH IBD, AND NUMEROUS PRINTED MATERIALS PROVIDINGACCURATE AND UP-TO-DATE INFORMATION. IN A RECENT IMPACT STUDY, OVER 85% OF PATIENTS CONNECTED WITH THE FOUNDATION STATED THAT THE FOUNDATION HAS HAD A POSITIVE IMPACT ON THEIR IBD JOURNEY. THESE PATIENTS ALSO REPORTED BETTER SYMPTOM CONTROL THAN NON-FOUNDATION CONNECTED PATIENTS. (CONTINUED IN SCHEDULE O)THE FOUNDATION ALSO OFFERS PROFESSIONAL EDUCATION THROUGH OUR TWO SCIENTIFIC JOURNALS, INFLAMMATORY BOWEL DISEASES AND CROHN'S & COLITIS 360, AS WELL AS THROUGH HEALTH PROFESSIONAL EDUCATION PROGRAMS BOTH IN-PERSON AND WEB-BASED. IN ADDITION THE FOUNDATION HOSTS THE ANNUAL CROHN'S & COLITIS CONGRESS CONFERENCE. IN THE PAST YEAR, THE FOUNDATION LAUNCHED A PUBLIC SERVICE AWARENESS CAMPAIGN TO INCREASE FAMILIARITY OF IBD WITH THE GENERAL PUBLIC AND REDUCE THE STIGMA FOR THOSE INDIVIDUALS WITH IBD.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Michael Osso President/ceo(non-Voting) | OfficerTrustee | 35 | $770,337 |
Alessandro Dinello Treasurer (thru 03/2023) | OfficerTrustee | 1 | $0 |
Alex Funderburg Trustee | Trustee | 1 | $0 |
Amber Backhaus Trustee | Trustee | 1 | $0 |
Rep Ander Crenshaw Trustee (thru 03/2023) | Trustee | 1 | $0 |
Annette Martinez Trustee | Trustee | 1 | $0 |
Vendor Name (Service) | Service Year | Compensation |
---|---|---|
Nagarro Inc Project Support | 12/30/23 | $1,542,758 |
C4g Llc Dba Cloud For Good Llc Cloud Implementation | 12/30/23 | $2,400,851 |
Srijan Technologies Usainc Web Development Services | 12/30/23 | $1,423,376 |
Salesforcecom Inc Database/it Services | 12/30/23 | $952,611 |
Deloitte Consulting Llp It Support | 12/30/23 | $836,967 |
Statement of Revenue | |
---|---|
Federated campaigns | $1,254,587 |
Membership dues | $0 |
Fundraising events | $25,425,654 |
Related organizations | $0 |
Government grants | $473,436 |
All other contributions, gifts, grants, and similar amounts not included above | $41,554,091 |
Noncash contributions included in lines 1a–1f | $604,919 |
Total Revenue from Contributions, Gifts, Grants & Similar | $68,707,768 |
Total Program Service Revenue | $11,417,426 |
Investment income | $475,561 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $597,854 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $253,699 |
Net Income from Fundraising Events | -$376,806 |
Net Income from Gaming Activities | $376,806 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $81,765,248 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $20,365,558 |
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $3,329,085 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $3,106,969 |
Compensation of current officers, directors, key employees. | $573,685 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $28,186,811 |
Pension plan accruals and contributions | $1,081,039 |
Other employee benefits | $5,074,530 |
Payroll taxes | $3,942,809 |
Fees for services: Management | $0 |
Fees for services: Legal | $24,760 |
Fees for services: Accounting | $172,249 |
Fees for services: Lobbying | $118,336 |
Fees for services: Fundraising | $651,257 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $8,151,114 |
Advertising and promotion | $753,875 |
Office expenses | $603,236 |
Information technology | $2,254,362 |
Royalties | $0 |
Occupancy | $1,982,346 |
Travel | $1,175,791 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $366,482 |
Interest | $380,104 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $982,438 |
Insurance | $401,780 |
All other expenses | $1,254,361 |
Total functional expenses | $86,537,979 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $0 |
Savings and temporary cash investments | $9,517,214 |
Pledges and grants receivable | $12,397,945 |
Accounts receivable, net | $2,024,846 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $328,281 |
Prepaid expenses and deferred charges | $1,281,499 |
Net Land, buildings, and equipment | $6,000,274 |
Investments—publicly traded securities | $12,848,228 |
Investments—other securities | $581,681 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $9,020,156 |
Total assets | $54,000,124 |
Accounts payable and accrued expenses | $5,068,454 |
Grants payable | $30,248,553 |
Deferred revenue | $1,750,389 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $5,989,390 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $8,978,528 |
Total liabilities | $52,035,314 |
Net assets without donor restrictions | -$6,495,911 |
Net assets with donor restrictions | $8,460,721 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $54,000,124 |
Over the last fiscal year, Crohns & Colitis Foundation Inc has awarded $15,641,669 in support to 76 organizations.
Grant Recipient | Amount |
---|---|
ADA SCIENCE & RESEARCH INSTITUTE LLC PURPOSE: RESEARCH | $65,000 |
ALBERT EINSTEIN COLLEGE OF MEDICINE PURPOSE: RESEARCH | $115,830 |
AETION INC PURPOSE: RESEARCH | $250,000 |
BAYLOR COLLEGE OF MEDICINE PURPOSE: RESEARCH | $47,876 |
BENAROYA RESEARCH INSTITUTE OF VIRGINIA PURPOSE: RESEARCH | $130,000 |
BAYLOR SCOTT & WHITE RESEARCH INSTITUTE PURPOSE: RESEARCH | $140,160 |