Crohns & Colitis Foundation Inc
- Assets
- $57.7m
- Revenue
- $78.0m
- Investments
- $587.9k
- Employees
- 376
- Location
- New York, NY
- Founding
- 07/1966
- Data as of
- 12/2021
- EIN
- 13-6193105
Organization Overview
Crohns & Colitis Foundation Inc is located in New York, NY. The organization was established in 1966. According to its NTEE Classification (G70) the organization is classified as: Digestive Diseases & Disorders, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Crohns & Colitis Foundation Inc employed 376 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Crohns & Colitis Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Crohns & Colitis Foundation Inc generated $78.0m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 2.1% each year. All expenses for the organization totaled $78.3m during the year ending 12/2021. While expenses have increased by 2.2% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2014, Crohns & Colitis Foundation Inc has awarded 520 individual grants totaling $131,311,583. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO CURE CROHN'S DISEASE AND ULCERATIVE COLITIS (CONTINUED ON SCHEDULE O)
Describe the Organization's Program Activity:
Part 3 - Line 4a
SINCE ITS INCEPTION, THE CROHN'S & COLITIS FOUNDATION HAS PROVIDED MORE THAN $450 MILLION FOR RESEARCH ON THE TREATMENT AND CURES OF IBD. THE FOUNDATION FUNDS A SET OF PRIORITY RESEARCH INITIATIVES: MULTI-INSTITUTIONAL, MULTI-DISCIPLINARY, COLLABORATIVE RESEARCH PROJECTS TARGETING AREAS OF SCIENCE WITH A HIGH PROBABILITY OF ADVANCING TREATMENT. THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). (CONTINUED IN SCHEDULE O)THE FOUNDATION'S RESEARCH PORTFOLIO IS A COMBINATION OF BASIC, TRANSLATIONAL, AND CLINICAL RESEARCH. DESIGNED TO CUT YEARS OFF THE RESEARCH PROCESS, IBD PLEXUS, THE FOUNDATION'S INNOVATIVE RESEARCH PLATFORM, IS THE SINGLE LARGEST IBD DATABASE IN THE US. IT CURRENTLY PROVIDES RESEARCHERS WITH DATA FROM OVER 25,000 PATIENTS, INCLUDING 160,000 BIOSAMPLES (BLOOD, STOOL, AND INTESTINAL TISSUE).THE FOUNDATION LEADS THE WAY IN NEW, CRITICALLY IMPORTANT AREAS OF IBD RESEARCH, AND ACCELERATING NOVEL THERAPIES AND INNOVATIVE PRODUCTS THAT ADDRESS UNMET PATIENT NEEDS. IN 2020, THE FOUNDATION LAUNCHED THE MOST EXTENSIVE IBD-FOCUSED PRECISION NUTRITION EFFORT, TO BETTER UNDERSTAND THE DIRECT IMPACT THAT FOOD MAY HAVE IN THE MANAGEMENT OF IBD AND ON PATIENT QUALITY OF LIFE. THE FOUNDATION ALSO LAUNCHED THE SURGICAL RESEARCH NETWORK, OUR FIRST-EVER COORDINATED-FUNDING EFFORT TO STUDY SURGICAL OUTCOMES IN IBD.
THE CROHN'S & COLITIS FOUNDATION PROVIDES INFORMATION AND EDUCATION FOR THE MILLIONS OF IBD PATIENTS AND THEIR LOVED ONES THROUGH A VARIETY OF CHANNELS AT THE NATIONAL AND LOCAL LEVEL. WEBCASTS, SUPPORT GROUPS, IBD HELP CENTER, AND PRINTED MATERIALS PROVIDE ACCURATE AND UP-TO-DATE INFORMATION. THE FOUNDATION ALSO OFFERS PROFESSIONAL EDUCATION THROUGH OUR TWO SCIENTIFIC JOURNALS, INFLAMMATORY BOWEL DISEASES AND CROHN'S & COLITIS 360, AS WELL AS THROUGH HEALTH PROFESSIONAL WORKSHOPS, AND ITS ANNUAL CROHN'S & COLITIS CONGRESS CONFERENCE. IN A RECENT IMPACT STUDY, OVER 70% OF PATIENTS CONNECTED WITH THE FOUNDATION STATED THAT THE FOUNDATION HAS HAD A POSITIVE IMPACT ON THEIR IBD JOURNEY. THESE PATIENTS ALSO REPORTED BETTER SYMPTOM CONTROL THAN NON-FOUNDATION CONNECTED PATIENTS. (CONTINUED ON SCHEDULE O)IN 2021 THE FOUNDATION LAUNCHED A PUBLIC SERVICE AWARENESS CAMPAIGN TO INCREASE FAMILIARITY WITH IBD, AND EDUCATE PEOPLE EXPERIENCING SYMPTOMS ABOUT THE IMPORTANCE OF SEEING A SPECIALIST TO GET DIAGNOSED FASTER AND REDUCE SUFFERING.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Michael Osso President/ceo(non-Voting) | OfficerTrustee | 35 | $587,399 |
Caren Heller Chief Science Officer | Officer | 35 | $388,803 |
Robert Territo Cfo/coo | Officer | 35 | $296,257 |
Rohit Suri Chief Technology Officer | Officer | 35 | $272,418 |
Michael Elkow Chief Field Officer | Officer | 35 | $261,144 |
Allison Coffey Chief Development Officer | Officer | 35 | $249,186 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Blackbaud Donor Database | 12/30/21 | $914,222 |
Salesforcecom Inc Salesforce Platform Transfer | 12/30/21 | $785,426 |
Deloitte Consulting Llp It Support For Ibd Plexus | 12/30/21 | $1,337,594 |
Nagarro Inc Project Support | 12/30/21 | $983,976 |
Chapman Cubine And Hussey Inc Marketing Consultants | 12/30/21 | $577,867 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $1,337,175 |
| Membership dues | $0 |
| Fundraising events | $25,249,968 |
| Related organizations | $0 |
| Government grants | $6,393,325 |
| All other contributions, gifts, grants, and similar amounts not included above | $37,258,235 |
| Noncash contributions included in lines 1a–1f | $511,238 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $70,238,703 |
| Total Program Service Revenue | $6,695,152 |
| Investment income | $298,743 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $486,445 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $302,534 |
| Net Income from Fundraising Events | -$505,293 |
| Net Income from Gaming Activities | $505,294 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $78,027,022 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $25,715,354 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $1,856,017 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $2,762,346 |
| Compensation of current officers, directors, key employees. | $570,150 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $21,896,037 |
| Pension plan accruals and contributions | $996,413 |
| Other employee benefits | $3,325,820 |
| Payroll taxes | $3,728,915 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $103,811 |
| Fees for services: Accounting | $455,857 |
| Fees for services: Lobbying | $149,010 |
| Fees for services: Fundraising | $577,867 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $8,264,690 |
| Advertising and promotion | $546,757 |
| Office expenses | $401,449 |
| Information technology | $1,557,986 |
| Royalties | $0 |
| Occupancy | $1,787,959 |
| Travel | $255,469 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $261,000 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $835,873 |
| Insurance | $408,109 |
| All other expenses | $996,071 |
| Total functional expenses | $78,323,556 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $17,745,545 |
| Pledges and grants receivable | $7,078,400 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $914,717 |
| Prepaid expenses and deferred charges | $2,646,181 |
| Net Land, buildings, and equipment | $1,696,742 |
| Investments—publicly traded securities | $26,691,956 |
| Investments—other securities | $587,914 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $302,573 |
| Total assets | $57,664,028 |
| Accounts payable and accrued expenses | $8,984,303 |
| Grants payable | $28,503,624 |
| Deferred revenue | $6,368,699 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $2,407,408 |
| Total liabilities | $46,264,034 |
| Net assets without donor restrictions | $3,576,676 |
| Net assets with donor restrictions | $7,823,318 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $57,664,028 |
Grants Awarded
Over the last fiscal year, Crohns & Colitis Foundation Inc has awarded $15,250,359 in support to 71 organizations.
| Grant Recipient | Amount |
|---|---|
Somerville, MA PURPOSE: RESEARCH | $1,328,873 |
WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY PURPOSE: RESEARCH | $754,121 |
Chapel Hill, NC PURPOSE: RESEARCH | $710,957 |
Philadelphia, PA PURPOSE: RESEARCH | $671,739 |
New York, NY PURPOSE: RESEARCH | $610,551 |
Somerville, MA PURPOSE: RESEARCH | $566,255 |
Grants Recieved
Over the last fiscal year, we have identified 6 grants that Crohns & Colitis Foundation Inc has recieved totaling $13,000.
| Awarding Organization | Amount |
|---|---|
Forest Fund Inc Indianapolis, IN PURPOSE: OPERATIONS | $5,000 |
Edmund J And Afton S Greenwell Foundation Mantua, UT PURPOSE: FUND RESEARCH | $5,000 |
Loeb Family Foundation Inc Winnetka, IL PURPOSE: CHARITABLE CONTRIBUTION | $1,000 |
Coddon Family Foundation Nashville, TN PURPOSE: UNRESTRICTED GIFT - MEDICAL RESEARCH | $1,000 |
Hagani Foundation Woodbridge, CT PURPOSE: MEDICAL RESEARCH | $500 |
Hagani Foundation Woodbridge, CT PURPOSE: MEDICAL RESEARCH | $500 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Crohns & Colitis Foundation Inc New York, NY | $57,664,028 | $78,027,022 |
Life Raft Group Inc Wayne, NJ | $3,390,555 | $1,973,515 |
Gastroenterology & Hepatology Advanced Practice Providers Inc Clark, NJ | $1,094,862 | $2,355,713 |
Wilson Disease Association New York, NY | $361,542 | $335,326 |
Society For Surgery Of The Alimentary Tract Beverly, MA | $5,114,902 | $1,207,660 |
National Celiac Association Inc Needham, MA | $874,314 | $860,498 |
American Legion Clayton, NY | $434,217 | $242,230 |
Marks Colorectal Surgical Foundation Wynnewood, PA | $478,003 | $0 |
A Mothers Wish Media, PA | $78,055 | $0 |
Pennsylvania Society Of Gastroenterology Mechanicsburg, PA | $1,064,044 | $174,295 |
Cure For Ibd Basking Ridge, NJ | $131,265 | $103,462 |
Project Clio Inc Boston, MA | $162,211 | $0 |