Hemophilia Association Of New York Inc
- Assets
- $3.7m
- Revenue
- $563.5k
- Investments
- $0.0
- Employees
- 6
- Location
- New York, NY
- Founding
- 02/1954
- Data as of
- 06/2022
- EIN
- 13-5650955
Organization Overview
Hemophilia Association Of New York Inc is located in New York, NY. The organization was established in 1954. According to its NTEE Classification (G03) the organization is classified as: Professional Societies & Associations, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2022, Hemophilia Association Of New York Inc employed 6 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hemophilia Association Of New York Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Hemophilia Association Of New York Inc generated $563.5k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (4.5%) each year. All expenses for the organization totaled $1.0m during the year ending 06/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO PROVIDE INFORMATION, ADVOCACY, ASSISTANCE AND SCHOLARSHIPS FOR THOSE WITH BLEEDING DISORDERS, AS WELL AS PROVIDE RESEARCH FUNDING FOR BETTER THERAPIES AND POTENTIAL CURES FOR BLEEDING DISORDERS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PATIENT SERVICES: MOST OF THE ASSOCIATION'S ACTIVITY IS DIRECTED TOWARD PROVIDING INFORMATION AND ASSISTANCE TO THE BLEEDING DISORDERS COMMUNITY AND TO SPECIFIC INDIVIDUALS AND FAMILIES THEREIN. DURING 2020-2021, 52.7% OF STAFF TIME-EFFORT WAS EXPENDED IN THIS SERVICE FUNCTION, WHICH INCLUDES PROVIDING FINANCIAL ASSISTANCE, SPECIFIC PROBLEM RESOLUTION, COUNSELING, OUT-REFERRALS, EDUCATION, ADVOCACY, AND INFORMATIONAL AND EDUCATIONAL MATERIALS FOR PATIENTS/CLIENTS. DURING THE FISCAL YEAR 21/22, 787 PERSONS WITH BLEEDING DISORDERS AND THEIR FAMILIES WERE SERVED. EIGHT PERCENT (8%) OF CLIENTS RECEIVED EMERGENCY FINANCIAL ASSISTANCE OR OTHER FORMS OF SPECIFIC INTERVENTION TOTALING $53515. FIFTEEN GROUP MEETINGS WERE CONDUCTED THROUGHOUT THE YEAR. A TEEN CONFERENCE (SELF ADVOCACY, INDEPENDENCE, AND LEADERSHIP -S.A.I.L.) WAS HELD, A FULL-DAY SYMPOSIUM "FINDING YOUR SUPER HERO" WAS HELD. THERE WERE 4 NEWSLETTERS PUBLISHED AND DISTRIBUTED TO THE COMMUNITY, AND THERE WAS AN EDUCATIONAL PAMPHLET DEVELOPED, PUBLISHED, AND DISTRIBUTED THAT PROVIDED INFORMATION, IN SPANISH AND ENGLISH, TO OUR COMMUNITY THAT WAS ON MENTAL HEALTH ISSUES RECOGNITION AND COPING. THE ASSOCIATION DOES NOT CHARGE MEMBERSHIP NOR DOES IT CHARGE FOR ATTENDANCE TO ANY PROGRAMS.
THE COMMUNITY SERVICE PROGRAM - USED TO MEET THE NEEDS OF THOSE IMPACTED BY DISRUPTIONS TO THEIR ACADEMIC STANDARDS OF LEARNING.
PUBLIC AND PROFESSIONAL HEALTH EDUCATION: IN FY 2021-22, THE ASSOCIATION HOSTED A ONE-DAY SYMPOSIUM (WITH C.M.E.S) TITLED, HEMATOLOGY AND PREGNANCY; PROBLEMS & ISSUES. THIS VIRTUAL PROGRAM WAS ATTENDED LIVE BY 140 MEDICAL PROFESSIONALS WHO WERE ELIGIBLE TO RECEIVE C.M.E.S, AND DURING THE REST OF THE YEAR, OVER 1,000 VIEWED THE PROGRAMS.
RESEARCH: THE ORGANIZATION SUPPORTS SCIENTIFIC STUDIES AND INVESTIGATIONS AT QUALIFIED INSTITUTIONS TOWARD FINDING ALLEVIATIONS OF THE MEDICAL PROBLEMS OF HEMOPHILIA AND OTHER BLEEDING DISORDERS AND THEIR COMPLICATIONS. DURING THE FY 21/22, THE ASSOCIATION PUT OUT A NEW REQUEST FOR PROPOSALS TO THE RESEARCH COMMUNITY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Edward G Rogoff PHD Chairperson | OfficerTrustee | 2 | $0 |
Mariam Voutsis President | OfficerTrustee | 2 | $0 |
Eileen Margolies Vice President | OfficerTrustee | 2 | $0 |
Jeffrey Zacharia Vice President | OfficerTrustee | 2 | $0 |
Mark K Svenningson Treasurer | OfficerTrustee | 2 | $0 |
Joanna Baquero Trustee | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $112,228 |
| Related organizations | $0 |
| Government grants | $79,322 |
| All other contributions, gifts, grants, and similar amounts not included above | $200,790 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $392,340 |
| Total Program Service Revenue | $0 |
| Investment income | $63,713 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$153,028 |
| Net Income from Fundraising Events | $253,971 |
| Net Income from Gaming Activities | $2,470 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $563,478 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $181,002 |
| Grants and other assistance to domestic individuals. | $53,515 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $189,907 |
| Compensation of current officers, directors, key employees. | $91,155 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $214,601 |
| Pension plan accruals and contributions | $21,717 |
| Other employee benefits | $56,319 |
| Payroll taxes | $32,732 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $4,994 |
| Fees for services: Accounting | $37,086 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $42,284 |
| Advertising and promotion | $8,750 |
| Office expenses | $48,918 |
| Information technology | $7,412 |
| Royalties | $0 |
| Occupancy | $22,099 |
| Travel | $14,349 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $7,215 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $29,474 |
| Insurance | $7,559 |
| All other expenses | $0 |
| Total functional expenses | $1,016,115 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $104,771 |
| Savings and temporary cash investments | $120,800 |
| Pledges and grants receivable | $685,696 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $30,108 |
| Net Land, buildings, and equipment | $881,829 |
| Investments—publicly traded securities | $1,834,702 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $3,657,906 |
| Accounts payable and accrued expenses | $143,971 |
| Grants payable | $0 |
| Deferred revenue | $13,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $156,971 |
| Net assets without donor restrictions | $2,680,717 |
| Net assets with donor restrictions | $820,218 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,657,906 |
Grants Awarded
Over the last fiscal year, Hemophilia Association Of New York Inc has awarded $141,587 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
VARIOUS RESEARCH CENTERS PURPOSE: THROUGH THIS FUNCTION GRANTS-IN-AID OR FELLOWSHIPS ARE MADE AVAILABLE | $141,587 |