Galactosemia Foundation
- Assets
- $564.2k
- Revenue
- $376.6k
- Investments
- $0.0
- Employees
- 0
- Location
- Albany, NY
- Founding
- 08/1990
- Data as of
- 12/2022
- EIN
- 13-3349708
Organization Overview
Galactosemia Foundation is located in Albany, NY. The organization was established in 1990. According to its NTEE Classification (F19) the organization is classified as: Support N.E.C., under the broad grouping of Mental Health & Crisis Intervention and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Galactosemia Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Galactosemia Foundation generated $376.6k in total revenue. This organization has experienced exceptional growth, as over the past 8 years, it has increased revenue by an average of 10.1% each year . All expenses for the organization totaled $301.0k during the year ending 12/2022. While expenses have increased by 13.9% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO SPREAD AWARENESS OF GALACTOSEMIA; TO PROVIDE SUPPORT FOR PARENTS OF CHILDREN WITH GALACTOSEMIA THROUGH EDUCATION AND FUNDING RESEARCH.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROVIDED SUPPORT TO INDIVIDUALS WITH GALACTOSEMIA AND SPREAD AWARENESS BY PUBLISHING TWO NEWSLETTERS WORLDWIDE, SETTING UP A NATIONWIDE WEBSITE DISCUSSION FORUM, THROUGH TELEPHONE SUPPORT, AND A BIENNIAL CONFERENCE.
HOSTED THE 2022 BI-ANNUAL CONFERENCE FOR THOSE SUFFERING FOR GALACTOSEMIA AS WELL AS MEDICAL PROFESSIONALS AND RESEARCHERS.
CO-HOSTED A PATIENT FOCUSED DRUG DEVELOPMENT WITH THE FDA TO ADVOCATE FOR THE NEED FOR BETTER TREATMENT.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Nicole Casale President | OfficerTrustee | 10 | $0 |
Scott Saylor Treasurer | OfficerTrustee | 5 | $0 |
Cari Miller Secretary | OfficerTrustee | 2 | $0 |
Brittany Cudzilo Vice President | OfficerTrustee | 2 | $0 |
Jodi Solari Communications Lead | Trustee | 2 | $0 |
Keith Topper Member At Large | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $221,219 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $221,219 |
| Total Program Service Revenue | $155,345 |
| Investment income | $14 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $376,578 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $36,153 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $11,909 |
| Advertising and promotion | $0 |
| Office expenses | $66,406 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $184,102 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $2,442 |
| Total functional expenses | $301,012 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $507,580 |
| Savings and temporary cash investments | $56,643 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $564,223 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $507,580 |
| Net assets with donor restrictions | $56,643 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $564,223 |
Grants Awarded
Over the last fiscal year, Galactosemia Foundation has awarded $92,542 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF UTAH PURPOSE: GALACTOSEMIA RESEARCH | $36,153 |
EMORY UNIVERSITY SCHOOL OF MEDICINE PURPOSE: GALACTOSEMIA RESEARCH - DR. JUDITH FRIDOVICH-KEIL | $50,000 |
AMERICAN INSTITUTE OF BIOLOGICAL SCIENCES PURPOSE: Research-Peer Review | $6,389 |