Childrens Tumor Foundation
- Assets
- $29.6m
- Revenue
- $16.8m
- Investments
- $0.0
- Employees
- 43
- Location
- New York, NY
- Founding
- 07/1984
- Data as of
- 12/2021
- EIN
- 13-2298956
Organization Overview
Childrens Tumor Foundation is located in New York, NY. The organization was established in 1984. According to its NTEE Classification (H50) the organization is classified as: Nerve, Muscle & Bone Diseases Research, under the broad grouping of Medical Research and related organizations. As of 12/2021, Childrens Tumor Foundation employed 43 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Childrens Tumor Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Childrens Tumor Foundation generated $16.8m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 1.3% each year. All expenses for the organization totaled $10.4m during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Childrens Tumor Foundation has awarded 213 individual grants totaling $23,232,411. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A.) FUND RESEARCH, B.) INCREASE PUBLIC AWARENESS, C.) SUPPORT PATIENTS AND FAMILIES, D.) ENCOURAGE ESTABLISHMENT OF NF CLINICS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH - THE CHILDREN'S TUMOR FOUNDATION SUPPORTS NF RESEARCH THROUGH A RANGE OF FUNDING MECHANISMS. OUR INVESTMENTS IN RESEARCH ARE THREE-FOLD: 1) TO ATTRACT TALENTED INVESTIGATORS TO NF RESEARCH; 2) TO SUPPORT INNOVATIVE RESEARCH; AND 3) TO FOSTER COLLABORATIVE EFFORTS TO FIND TREATMENTS AND CURES FOR NEUROFIBROMATOSIS. THE FOUNDATION HAS BEEN AT THE FOREFRONT OF KEY ADVANCES IN NF RESEARCH INCLUDING FUNDING THE LABORATORIES THAT DISCOVERED THE NF1 AND NF2 GENES, SUPPORTING GROUNDBREAKING CLINICAL TRIALS, AND ESTABLISHING THE FIRST NATIONWIDE NF CLINIC NETWORK AND NF PATIENT REGISTRY. THE FOUNDATION SPONSORS AN ANNUAL SCIENTIFIC CONFERENCE WHICH BRINGS RESEARCHERS TOGETHER TO DISCUSS THE LATEST SCIENTIFIC DEVELOPMENTS RELATED TO NF. ADDITONALLY, OUR PORGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH.
PUBLIC EDUCATION AND PATIENT SUPPORT - THE CHILDREN'S TUMOR FOUNDATION ENGAGES IN PUBLIC EDUCATION THROUGH ITS WEBSITE, QUARTERLY NEWSLETTERS, MEDIA COVERAGE, AND ITS NATIONAL PROGRAMS. THROUGH OUR NF ENDURANCE AND NF WALK PROGRAMS, THE FOUNDATION HIGHLIGHTS NF HEROES AND THEIR TRIUMPHANT SPIRITS. THE FOUNDATION ALSO SPONSORS BENEFIT DINNERS AND REGIONAL AND LOCAL EVENTS TO PROMOTE AWARENESS. THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO SUPPORTING PATIENTS WITH NF AS WELL AS THEIR FAMILY MEMBERS. THROUGH THE NF CLINIC NETWORK AND THE ANNUAL NF FORUM, THE FOUNDATION BRINGS RESEARCHERS, PROVIDERS, AND FAMILIES TOGETHER TO DISCUSS DEVELOPMENTS IN TREATMENTS. THE FOUNDATION ALSO SPONSORS THE ANNUAL NF CAMP WHICH BRINGS NF TEENS TOGETHER FOR ONE WEEK TO ENJOY THE SUPPORT AND FELLOWSHIP OF THEIR PEERS. REGIONAL SYMPOSIA ARE ALSO HELD THROUGHOUT THE YEAR.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Annette Bakker President | Officer | 37.5 | $354,738 |
Michele Przypyszny Chief Advancement Officer | 37.5 | $253,400 | |
Salvatore La Rosa Chief Scientific Officer | 37.5 | $229,334 | |
Simon Vukelj Chief Marketing Officer | 37.5 | $219,900 | |
Sarah Bourne Vp, Finance And Operations | Officer | 37.5 | $152,105 |
Barbara Gallagher Vice President Of Dev. | 37.5 | $149,444 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Squire Patton Boggs Lobbying/advocacy | 12/30/21 | $351,389 |
Situation Interactive Marketing Services | 12/30/21 | $132,949 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $6,703 |
| Membership dues | $0 |
| Fundraising events | $1,715,102 |
| Related organizations | $0 |
| Government grants | $1,077,026 |
| All other contributions, gifts, grants, and similar amounts not included above | $12,357,737 |
| Noncash contributions included in lines 1a–1f | $676,761 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $15,156,568 |
| Total Program Service Revenue | $1,463,602 |
| Investment income | $89,863 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $6,161 |
| Net Income from Fundraising Events | -$12,723 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $53,264 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $16,779,578 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $2,041,051 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $257,269 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $549,245 |
| Compensation of current officers, directors, key employees. | $121,810 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $2,881,482 |
| Pension plan accruals and contributions | $127,309 |
| Other employee benefits | $378,186 |
| Payroll taxes | $285,313 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $91,003 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $270,000 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $8,724 |
| Fees for services: Other | $1,347,670 |
| Advertising and promotion | $42,555 |
| Office expenses | $318,203 |
| Information technology | $409,839 |
| Royalties | $0 |
| Occupancy | $155,487 |
| Travel | $77,345 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $600,434 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $91,230 |
| Insurance | $33,416 |
| All other expenses | $36,984 |
| Total functional expenses | $10,418,437 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $3,376,893 |
| Savings and temporary cash investments | $15,249,203 |
| Pledges and grants receivable | $4,264,500 |
| Accounts receivable, net | $47,113 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $12,979 |
| Prepaid expenses and deferred charges | $371,447 |
| Net Land, buildings, and equipment | $217,231 |
| Investments—publicly traded securities | $5,979,457 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $81,978 |
| Total assets | $29,600,801 |
| Accounts payable and accrued expenses | $700,070 |
| Grants payable | $1,326,906 |
| Deferred revenue | $82,225 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $195,800 |
| Total liabilities | $2,305,001 |
| Net assets without donor restrictions | $13,479,621 |
| Net assets with donor restrictions | $13,816,179 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $29,600,801 |
Grants Awarded
Over the last fiscal year, Childrens Tumor Foundation has awarded $1,993,051 in support to 16 organizations.
| Grant Recipient | Amount |
|---|---|
Seattle, WA PURPOSE: RESEARCH - CONTRACT AWARDS | $480,105 |
Philadelphia, PA PURPOSE: RESEARCH - OPG & DDI | $279,576 |
Tuscaloosa, AL PURPOSE: RESEARCH - CONTRACT AWARD | $152,807 |
Bloomington, IN PURPOSE: RESEARCH - DDI & CONTRACT AWARDS | $135,000 |
New Haven, CT PURPOSE: RESEARCH - CONTRACT AWARDS | $126,878 |
Milwaukee, WI PURPOSE: RESEARCH - CONTRACT AWARDS | $124,000 |
Grants Recieved
Over the last fiscal year, we have identified 4 grants that Childrens Tumor Foundation has recieved totaling $15,200.
| Awarding Organization | Amount |
|---|---|
Rjl Charitable Foundation Douglaston, NY PURPOSE: GENERAL SUPPORT | $5,000 |
Organization Name not Listed PURPOSE: UNRESTRICTED CONTRIBUTIONS | | $5,000 |
Glen Bruemmer Family Foundation Dallas, TX PURPOSE: SERVE CHILDREN | $5,000 |
Gannett Foundations Inc Mclean, VA PURPOSE: CHARITABLE PURPOSE | $200 |
Endowment Analysis
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Christopher Reeve Foundation A New Jersey Nonprofit Corporation Short Hills, NJ | $8,265,891 | $16,839,665 |
Childrens Tumor Foundation New York, NY | $29,600,801 | $16,779,578 |
Jacobs Institute Inc Buffalo, NY | $6,391,620 | $10,387,796 |
Ao North America Charitable Fund Wayne, PA | $19,731,276 | $3,259,490 |
Charleys Fund Inc Great Barrington, MA | $5,463,767 | $1,781,625 |
Orthopaedic Foundation For Active Lifestyles Inc Stamford, CT | $3,883,565 | $1,438,636 |
Audre Lorde Project Inc Brooklyn, NY | $3,205,898 | $2,814,295 |
Foundation Of Orthopedics And Complex Spine Inc Garden City, NY | $1,400,092 | $518,962 |
Soft Bones Inc The Us Hypophosphatasia Foundation Boonton, NJ | $714,186 | $603,592 |
American Spinal Research Organization Incorporated Niagara Falls, NY | $1,635 | $244,758 |
Massachusetts Society Of Clinical Onocologists Inc Waltham, MA | $1,146,107 | $245,160 |
International Consensus Meeting On Infection Philadelphia, PA | $1,032,904 | $236,397 |