Lewy Body Dementia Association Inc
- Assets
- $6.0m
- Revenue
- $2.9m
- Investments
- $0.0
- Employees
- 19
- Location
- Lilburn, GA
- Founding
- 02/2004
- Data as of
- 12/2021
- EIN
- 05-0577683
Organization Overview
Lewy Body Dementia Association Inc is located in Lilburn, GA. The organization was established in 2004. According to its NTEE Classification (G96) the organization is classified as: Neurology & Neuroscience, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Lewy Body Dementia Association Inc employed 19 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Lewy Body Dementia Association Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Lewy Body Dementia Association Inc generated $2.9m in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 14.6% each year . All expenses for the organization totaled $2.4m during the year ending 12/2021. While expenses have increased by 19.9% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THROUGH OUTREACH, EDUCATION AND RESEARCH, WE SUPPORT THOSE AFFECTED BY LEWY BODY DEMENTIAS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
LEWY BODY DEMENTIA ASSOCIATION, INC. (LBDA) PROVIDES INFORMATION ON LEWY BODY DEMENTIAS TO CAREGIVERS, FAMILIES, PROFESSIONALS AND THE GENERAL PUBLIC AND ENCOURAGES SCIENTIFIC ADVANCEMENTS. LBDA PROGRAMS INCLUDE A NATIONAL SUPPORT GROUP NETWORK, EXTENSIVE WEBSITE AND ONLINE COMMUNITIES, EMAIL AND TOLL FREE TELEPHONE HELP LINES, AND INFORMATION PACKETS AND BROCHURES. LBDA REPRESENTATIVES ATTEND SCIENTIFIC CONFERENCES, HOST EXHIBITS AT NATIONAL MEDICAL CONFERENCES, AND SUPPORT THE LBDA SCIENTIFIC ADVISORY COUNCIL. THROUGH LBDA'S RESEARCH CENTERS OF EXCELLENCE GRANT PROGRAM, LBDA HELPS FUND ACADEMIC RESEARCH CENTERS DELIVERING CLINICAL CARE, OUTREACH, AND EDUCATION OF PUBLIC AND PROFESSIONALS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Todd Graham Executive Director | Officer | 40 | $132,394 |
Mark Wall Executive Director | Officer | 40 | $132,394 |
Shannon Mccarty-Caplan Vice President | OfficerTrustee | 8 | $0 |
Andy Matteis Treasurer | OfficerTrustee | 8 | $0 |
Marshall Cannon Secretary | OfficerTrustee | 8 | $0 |
Christina M Christie President | OfficerTrustee | 8 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,871,842 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,871,842 |
| Total Program Service Revenue | $0 |
| Investment income | $500 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,872,342 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $45,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $264,788 |
| Compensation of current officers, directors, key employees. | $72,816 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $907,568 |
| Pension plan accruals and contributions | $7,273 |
| Other employee benefits | $176,635 |
| Payroll taxes | $91,717 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $3,095 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $469,971 |
| Advertising and promotion | $0 |
| Office expenses | $89,495 |
| Information technology | $119,148 |
| Royalties | $0 |
| Occupancy | $54,311 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $47,358 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $2,382,784 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $5,961,964 |
| Savings and temporary cash investments | $51,420 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $6,013,384 |
| Accounts payable and accrued expenses | $48,872 |
| Grants payable | $25,000 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $73,872 |
| Net assets without donor restrictions | $5,856,766 |
| Net assets with donor restrictions | $82,746 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $6,013,384 |
Grants Awarded
Over the last fiscal year, Lewy Body Dementia Association Inc has awarded $72,500 in support to 5 organizations.
| Grant Recipient | Amount |
|---|---|
Rochester, MN PURPOSE: Scientific Research, Medical Education, Clinical Trials, Patient Support | $50,000 |
Washington, DC PURPOSE: Scientific Research, Medical Education, Clinical Trials, Patient Support | $9,000 |
Chicago, IL PURPOSE: Scientific Research, Medical Education, Clinical Trials, Patient Support | $6,750 |
Coral Gables, FL PURPOSE: Scientific Research, Medical Education, Clinical Trials, Patient Support | $6,750 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Lewy Body Dementia Association Inc has recieved totaling $1,000.
| Awarding Organization | Amount |
|---|---|
Patsy And Michael Hochman Charitable Foundation Dallas, TX PURPOSE: PROGRAM SUPPORT | $1,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
American College Of Neuropsychopharmacology Inc Brentwood, TN | $21,198,783 | $3,872,941 |
Lewy Body Dementia Association Inc Lilburn, GA | $6,013,384 | $2,872,342 |
South Carolina Neurological Assn Columbia, SC | $71,036 | $0 |
Atlanta Neuroscience Foundation Inc Atlanta, GA | $430,523 | $455,502 |
North Carolina Neurological Society Raleigh, NC | $487,356 | $0 |
Carolina Neurosurgery & Spine Education And Research Foundation Charlotte, NC | $251,329 | $106,750 |
Columbia Parkinsons Support Group Columbia, SC | $1,989 | $0 |
International Society Of Interventional Neurology Inc Duluth, GA | $5,926 | $0 |