Vhl Alliance Inc is located in Boston, MA. The organization was established in 1993. According to its NTEE Classification (E20) the organization is classified as: Hospitals, under the broad grouping of Health Care and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Vhl Alliance Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Vhl Alliance Inc generated $1.1m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.5% each year. All expenses for the organization totaled $980.2k during the year ending 06/2022. While expenses have increased by 5.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO SUPPORT EFFORTS TO CURE VON-HIPPEL-LINDAU DISEASE: TO PROVIDE A SUPPORT NETWORK FOR PATIENTS & THEIR FAMILIES: TO EDUCATE & INFORM THE PUBLIC & THE MEDICAL COMMUNITY ON CURRENT DEVELOPMENTS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE VHL ALLIANCE PROVIDES A QUARTERLY NEWSLETTER, ON-LINE SERVICES, TELEPHONE OUTREACH AND OTHER SERVICES FOR VHL PATIENTS & FAMILY MEMBERS TO BE ABLE TO COMMUNICATE CURRENT VHL RESEARCH & MEDICAL INFORMATION. THE VHL ALLIANCE ALSO PROVIDES EDUCATIONAL MATERIAL INCLUDING PATIENT HANDBOOKS AND BROCHURES ON LIVING WITH VHL DISEASE, THE VHL ALLIANCE ALSO HOLDS MEDICAL/RESEARCH SYMPOSIUMS, AN ANNUAL CONFERENCES & RECURRING SEMINARS, AND MAINTAINS EDUCATION & RESEARCH PROGRAMS SUCH AS THE TISSUE BANK AND THE CENTRAL VHL DATABASE.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Doug Karle Director | OfficerTrustee | 5 | $0 |
Emily Billcheck Secretary & Director | OfficerTrustee | 5 | $0 |
Camron King Board Chair | OfficerTrustee | 5 | $0 |
Seth Horwitz Treasurer & Director | OfficerTrustee | 5 | $0 |
Rohan Nirody Director | Trustee | 5 | $0 |
Cary Schwanitz Director | Trustee | 5 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $161,449 |
Related organizations | $0 |
Government grants | $66,392 |
All other contributions, gifts, grants, and similar amounts not included above | $797,586 |
Noncash contributions included in lines 1a–1f | $5,205 |
Total Revenue from Contributions, Gifts, Grants & Similar | $1,025,427 |
Total Program Service Revenue | $42,085 |
Investment income | $3,556 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | $0 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $1,073,740 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $0 |
Grants and other assistance to domestic individuals. | $292,761 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $135,000 |
Compensation of current officers, directors, key employees. | $14,850 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $242,366 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $28,409 |
Fees for services: Management | $0 |
Fees for services: Legal | $30,753 |
Fees for services: Accounting | $8,500 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $0 |
Advertising and promotion | $0 |
Office expenses | $61,318 |
Information technology | $12,290 |
Royalties | $0 |
Occupancy | $20,547 |
Travel | $25,006 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $0 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $23,437 |
All other expenses | $34,368 |
Total functional expenses | $980,202 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $239,973 |
Savings and temporary cash investments | $1,953,642 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $8,250 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $0 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $2,201,865 |
Accounts payable and accrued expenses | $8,702 |
Grants payable | $333,333 |
Deferred revenue | $175,801 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $517,836 |
Net assets without donor restrictions | $1,684,029 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $2,201,865 |
Over the last fiscal year, we have identified 6 grants that Vhl Alliance Inc has recieved totaling $41,345.
Awarding Organization | Amount |
---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $23,230 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $10,150 |
Chew Foundation Ridgeland, MS PURPOSE: PROMOTION OF CHARITABLE WORKS | $5,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $2,890 |
Pfizer Foundation Inc New York, NY PURPOSE: MATCHING GIFTS | $50 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: OPERATIONAL SUPPORT | $25 |
Organization Name | Assets | Revenue |
---|---|---|
Cayuga Medical Associates Pc Ithaca, NY | $9,424,563 | $97,237,418 |
Medical Care Of Queens Pc Westbury, NY | $21,678,110 | $91,754,608 |
Riverside Community Care Inc Dedham, MA | $58,699,955 | $95,150,404 |
South Nassau Communites Hospital Oceanside, NY | $45,244,502 | $90,458,185 |
University Associates In Obstetrics & Gynecology P C Stony Brook, NY | $4,022,809 | $92,008,924 |
Westchester Health Medical Pc Westbury, NY | $26,909,482 | $67,514,001 |
Montefiore Mount Vernon Hospital Mount Vernon, NY | $45,245,660 | $78,648,978 |
Vassar Health Connecticut Inc Sharon, CT | $42,119,488 | $49,443,431 |
Stony Brook Childrens Service University Faculty Practice Corp Stony Brook, NY | $5,785,790 | $65,452,488 |
Concord Hospital - Laconia Concord, NH | $50,420,745 | $53,154,882 |
Stony Brook Surgical Associates University Faculty Practice Corp Stony Brook, NY | $6,226,375 | $60,003,564 |
Gifford Medical Center Inc Randolph, VT | $106,034,169 | $58,940,770 |