Nonprofit OrganizationsBirth Defects & Genetic Diseases

MISSION:

TURNER SYNDROME SOCIETY OF THE UNITED STATES (TSSUS) ADVANCES KNOWLEDGE, FACILITATES RESEARCH AND PROVIDES SUPPORT FOR ALL PERSONS TOUCHED BY TURNER SYNDROME.

MISSION:

TO STRENTHEN THE LIVES OF INDIVIDUALS WITH DISABILITES BY CREATING INCUSLIVE OPPORTUNITIES FOR COMMUNITY INVOLVEMENT, ACCESS TO MEANINGFUL EMPLOYMENT AND BETTER OPTIONS FOR INDEPENDENT LIVING.

MISSION:

TO EMPOWER ALL MICHIGANDERS WITH DISABILITIES STATEWIDE.

MISSION:

THE FOUNDATION SERVES THE COMMUNITY BY PROVIDING INDIVIDUALS AFFLICTED WITH CRITICAL ILLNESSES AND THEIR FAMILIES WITH FINANCIAL AND EDUCATIONAL RESOURCES.

MISSION:

IMPROVE THE QUALITY OF MATERNAL FETAL MEDICINE CLINICAL SERVICES BY PROVIDING STATE OF THE ART EVIDENCE-BASED EDUCATIONAL PROGRAMS AND STATISTICALLY VALID MONITORING SYSTEMS TO EVALUATE CURRENT PRACTICES AND FACILITATE THE TRANSISTION OF AN EMERGING TECHNOLOGY INTO CLINICAL CARE.

MISSION:

TO ACCELERATE THE DISCOVERY OF TREATMENTS FOR CHROMOSOME 8P DISORDERS.

MISSION:

CONNECT PEOPLE WITH DISABILITIES TO OPPORTUNITIES & RESOURCES TO LIVE PRODUCTIVE, INDEPENDENT LIVES.

MISSION:

UCP OF S.D.'S MISSION IS TO ADVANCE THE INDEPENDENCE, PRODUCTIVITY AND FULL CITIZENSHIP OF PEOPLE AFFECTED BY CEREBRAL PALSY AND OTHER DISABILITIES. A VARIETY OF PROGRAMS AND SERVICES ARE OFFERED FOR CHILDREN AND ADULTS WITH DISABILITIES AND THEIR FAMILIES IN S.D. COUNTY.

MISSION:

TO PROVIDE HOUSING FOR ADULTS WITH DEVELOPMENTAL DISABLITIES

MISSION:

GATEWAY HEMOPHILIA ASSOCIATION IS A NON-PROFIT, COMMUNITY BASED ORGANIZATION, DEDICATED TO THE ADVOCACY, EDUCATION AND SUPPORT OF FAMILIES AFFECTED BY BLEEDING DISORDERS.

MISSION:

TO PROVIDE THERAPEUTIC, EDUCATIONAL, AND CAREGIVING SERVICES TO CHILDREN WITH DISABILITIES AND OTHER SPECIAL NEEDS.

MISSION:

TO PROVIDE HOUSING, NURSING CARE AND LIVING SKILLS TRAINING FOR MULTI-HANDICAPPED BLIND ADULTS.

MISSION:

PROVIDING EDUCATION AND SUPPORT SERVICES FOR INDIVIDUALS AND FAMILIES WITH BLEEDING DISORDERS AND EMPOWERING THEM TO LIVE HEALTHIER AND MORE SELF- SUFFICIENT LIVES.

MISSION:

THE MISSION OF THE GENESIS FOUNDATION FOR CHILDREN IS TO PROVIDE FUNDING FOR THE DIAGNOSIS AND COMPASSIONATE, COORDINATED CARE OF CHILDREN BORN WITH PHYSICAL, INTELLECTUAL, DEVELOPMENTAL, AND GENETIC DISORDERS, AND TO AID THEM IN ACHIEVING THEIR FULL POTENTIAL.

MISSION:

DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES.

MISSION:

MYHRE SYNDROME FOUNDATION IS A FUNDING RESEARCH AND PATIENT ADVOCACY ORGANIZATION DEDICATED PROVIDING HOPE AND IMPROVING THE LIVES OF THOSE IMPACTED BY MYHRE SYNDROME.

MISSION:

TO ASSOCIATE PERSONS INTERESTED IN, AND CARRY ON ACTIVITIES RELATED TO, THE SCIENCE AND PRACTICE OF CONGENITAL HEART SURGERY, TO SPONSOR AND OVERSEE MULTI-INSTITUTIONAL CLINICAL STUDIES EVALUATING THE APPLICATION OF SURGICAL INTERVENTIONS IN CONGENITAL HEART DISEASE, TO ENCOURAGE AND STIMULATE INVESTIGATION AND STUDY THAT WILL INCREASE THE KNOWLEDGE OF CONGENITAL CARDIAC PHYSIOLOGY, PATHOLOGY AND THERAPY, AND TO CORRELATE AND DISSEMINATE SUCH KNOWLEDGE, TO HOLD SCIENTIFIC MEETINGS FEATURING FREE DISCUSSION OF PROBLEMS AND DEVELOPMENTS RELATING TO CONGENITAL HEART SURGERY, AND TO SUCCEED TO, AND CONTINUE TO CARRY ON THE ACTIVITIES FORMERLY CONDUCTED BY THE CONGENITAL HEART SURGEONS SOCIETY, AN UNINCORPORATED ASSOCIATION.

MISSION:

TBRS COMMUNITY AIMS TO SUPPORT ALL FAMILIES AFFECTED BY TBRS AND ADVANCE RESEARCH TOWARD INTERVENTIONS.

MISSION:

TO FIND SPECIFIC TREATMENT OPTIONS AND A CURE FOR CACNA1A PATIENTS. (SEE SCHEDULE O FOR FULL MISSION)

MISSION:

The goal of this organization is to assiste in the prevention or treatment of illnesses or conditions that are hereditary and passed from parent to offspring. Use this code for organizations that focus on a wide variety of genetic disorders or on genetic disorders.