Epidermolysis Bullosa Medical Research Foundation
- Assets
- $3.9m
- Revenue
- $1.4m
- Investments
- $0.0
- Employees
- 0
- Location
- Los Angeles, CA
- Founding
- 03/1996
- Data as of
- 08/2023
- EIN
- 94-3130081
Organization Overview
Epidermolysis Bullosa Medical Research Foundation is located in Los Angeles, CA. The organization was established in 1996. According to its NTEE Classification (H11) the organization is classified as: Single Organization Support, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Epidermolysis Bullosa Medical Research Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 08/2023, Epidermolysis Bullosa Medical Research Foundation generated $1.4m in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 5.6% each year. All expenses for the organization totaled $345.8k during the year ending 08/2023. You can explore the organizations financials more deeply in the financial statements section below.
Since 2014, Epidermolysis Bullosa Medical Research Foundation has awarded 71 individual grants totaling $11,033,968. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
SEE SCHEDULE O
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE EBMRF IS DEDICATED TO FINDING A CURE FOR EPIDERMOLYSIS BULLOSA BY FUNDING THE BEST CUTTING EDGE AND INNOVATIVE RESEARCH AND SEEKING OUT NEW RESEARCHERS AND SCIENTISTS AT AMERICA'S TOP INSTITUTIONS. THROUGH OUR ONGOING JOINT FUNDING WITH EB RESEARCH PARTNERSHIP OF INDIVIDUAL RESEARCH STUDIES AND CLINICAL TRIALS AT ACCLAIMED UNIVERSITIES, 21 EB CLINICAL RESEARCH CONSORTIUM (EBCRC) SITES AND THROUGH OUR ANNUAL FUNDRAISERS, WE ARE COMMITTED TO FUNDING A CURE AND SUCCESSFUL TREATMENTS FOR EB. GRANTS ARE EVALUATED AND ONCE APPROVED, ARE FUNDED ON A 1 YEAR BASIS, AND ARE SUBJECT TO PROJECT MILESTONES. MULTI-YEAR GRANTS ARE REVIEWED ANNUALLY AND EVALUATED ON THEIR PROGRESS AND OUR AVAILABLE FUNDING. ALL GRANTS INCLUDE A 5% LIMIT ON INDIRECT COSTS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Andrea Pett-Joseph President/executive Director | OfficerTrustee | 5 | $0 |
Paul Joseph Chief Financial Officer | OfficerTrustee | 4 | $0 |
Marc Gurvitz Director | Trustee | 3 | $0 |
Persia Fardad-Finn Director | Trustee | 4 | $0 |
Lynn Anderson Founder, President Emeritus | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $1,152,423 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $217,494 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,369,917 |
| Total Program Service Revenue | $0 |
| Investment income | $99,039 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$114,836 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,354,120 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $296,743 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $4,150 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $13,326 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $12,553 |
| Advertising and promotion | $0 |
| Office expenses | $496 |
| Information technology | $751 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,523 |
| All other expenses | $4,541 |
| Total functional expenses | $345,807 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $85,844 |
| Savings and temporary cash investments | $2,729,263 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $549,532 |
| Investments—other securities | $0 |
| Investments—program-related | $495,000 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $3,859,639 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $3,859,639 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,859,639 |
Grants Awarded
Over the last fiscal year, Epidermolysis Bullosa Medical Research Foundation has awarded $290,974 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
COLUMBIA UNIVERSITY PURPOSE: RESEARCH | $9,589 |
PHOENIX CHILDRENS HOSPITAL PURPOSE: EB CLINICAL RESEARCH CONSORTIUM | $116,758 |
STANFORD UNIVERSITY PURPOSE: RESEARCH | $164,627 |