Epidermolysis Bullosa Medical Research Foundation
- Assets
- $3.9m
- Revenue
- $772.7k
- Investments
- $1.1m
- Employees
- 0
- Location
- Los Angeles, CA
- Founding
- 03/1996
- Data as of
- 08/2021
- EIN
- 94-3130081
Organization Overview
Epidermolysis Bullosa Medical Research Foundation is located in Los Angeles, CA. The organization was established in 1996. According to its NTEE Classification (H11) the organization is classified as: Single Organization Support, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Epidermolysis Bullosa Medical Research Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 08/2021, Epidermolysis Bullosa Medical Research Foundation generated $772.7k in total revenue. The organization has seen a slow decline revenue. Over the past 6 years, revenues have fallen by an average of (2.1%) each year. All expenses for the organization totaled $1.5m during the year ending 08/2021. As we would expect to see with falling revenues, expenses have declined by (0.6%) per year over the past 6 years. You can explore the organizations financials more deeply in the financial statements section below.
Since 2014, Epidermolysis Bullosa Medical Research Foundation has awarded 71 individual grants totaling $11,332,018. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990T
Mission & Program ActivityExcerpts From the 990T Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO FUND MEDICAL RESEARCH TO FIND A CURE FOR EPIDERMOLYSIS BULLOSA. EBMRF FUNDS VARIOUS RESEARCH ORGANIZATION ACROSS THE UNITED STATES FOR CHILDREN'S HEALTH.
Describe the Organization's Program Activity:
TO FUND MEDICAL RESEARCH.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Paul Joseph CFO | OfficerTrustee | 5 | $0 |
Andrea Pett-Joseph President/executive Direct | OfficerTrustee | 1 | $0 |
Marc Gurvitz Board Of Director | Trustee | 1 | $0 |
Olivia Lapides Board Of Director | Trustee | 1 | $0 |
Lynn Anderson Board Of Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $531,133 |
| Noncash contributions included in lines 1a–1f | $99,181 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $531,133 |
| Total Program Service Revenue | $0 |
| Investment income | $13,406 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $228,187 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $772,726 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,139,929 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $232,994 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $32,156 |
| Fees for services: Accounting | $70,980 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $6,597 |
| Advertising and promotion | $0 |
| Office expenses | $8,180 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $7,035 |
| Total functional expenses | $1,497,871 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $321,772 |
| Savings and temporary cash investments | $237,957 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $533,177 |
| Investments—other securities | $1,147,851 |
| Investments—program-related | $1,622,720 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $3,863,477 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $3,863,477 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,863,477 |
Grants Awarded
Over the last fiscal year, Epidermolysis Bullosa Medical Research Foundation has awarded $1,139,929 in support to 6 organizations.
| Grant Recipient | Amount |
|---|---|
Redwood City, CA PURPOSE: RESEARCH | $741,407 |
Denver, CO PURPOSE: RESEARCH | $333,333 |
Cincinnati, OH PURPOSE: RESEARCH | $43,296 |
Philadelphia, PA PURPOSE: RESEARCH | $8,480 |
New York, NY PURPOSE: RESEARCH | $7,413 |
Evanston, IL PURPOSE: RESEARCH | $6,000 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Epidermolysis Bullosa Medical Research Foundation has recieved totaling $19,717.
| Awarding Organization | Amount |
|---|---|
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $13,200 |
Louis & Rose Klosk Fund Uw L Klost T-7002 Chicago, IL PURPOSE: GENERAL | $5,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,517 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Movember Foundation Santa Monica, CA | $31,257,231 | $18,583,289 |
Translational Genomics Research Institute Foundation Phoenix, AZ | $24,235,369 | $3,772,453 |
Research Development Foundation Carson City, NV | $46,239,131 | $15,306,815 |
Lucky Duck Foundation San Diego, CA | $8,092,715 | $3,783,020 |
Epidermolysis Bullosa Medical Research Foundation Los Angeles, CA | $3,863,477 | $772,726 |
Healthy Brains Global Initiative Inc Rutherford, CA | $908,350 | $655,748 |
Hoffman Institute Supportingfoundation San Rafael, CA | $24,584,790 | $6,921,250 |
E C Fuller Trust U Art 16 Main Las Vegas, NV | $8,830,122 | $1,205,687 |
Health 2 0 Advocates Inc San Anselmo, CA | $214,477 | $668,370 |
Cruisin For A Cure Lake Forest, CA | $1,800,129 | $335,524 |
Brain Mapping Support Foundation Los Angeles, CA | $17,938,053 | $1,060,841 |
Navajo Hopi Health Foundation Inc Tuba City, AZ | $9,740,178 | $592,118 |