Alagille Syndrome Alliance
- Assets
- $501.6k
- Revenue
- $571.6k
- Investments
- $0.0
- Employees
- 2
- Location
- Collierville, TN
- Founding
- 10/1998
- Data as of
- 12/2023
- EIN
- 93-1243619
Organization Overview
Alagille Syndrome Alliance, operating under the name Algsa, is located in Collierville, TN. The organization was established in 1998. According to its NTEE Classification (H41) the organization is classified as: Eye Diseases, Blindness & Vision Impairments Research, under the broad grouping of Medical Research and related organizations. As of 12/2023, Algsa employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Algsa is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Algsa generated $571.6k in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 22.5% each year . All expenses for the organization totaled $539.7k during the year ending 12/2023. While expenses have increased by 15.2% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
MOBILIZE RESOURCES, FACILITATE CONNECTIONS, PROMOTING UNITY, AND ADVOCATING FOR A CURE TO INSPIRE, EMPOWER, AND ENRICH THE LIVES OF PEOPLE LIVING WITH ALAGILLE SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
ALGSA AND SCIENCE
VARIOUS OTHER PROGRAMS
ALGSA ASSISTANCE
ALGSA AWARENESS
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Roberta Smith President | Officer | 40 | $110,839 |
Sean Kelly Director | Trustee | 2 | $0 |
Mike Larosa Director | Trustee | 2 | $0 |
Shamy Ravishankar Director | Trustee | 2 | $0 |
Todd Allen Treasurer | Officer | 10 | $0 |
Julia Bird Chairman | Officer | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $554,643 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $554,643 |
| Total Program Service Revenue | $750 |
| Investment income | $16,252 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $571,645 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $75,000 |
| Grants and other assistance to domestic individuals. | $59,757 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $216,199 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $14,668 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $15,780 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $9,909 |
| Office expenses | $996 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $824 |
| All other expenses | $25,264 |
| Total functional expenses | $539,670 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $82,064 |
| Savings and temporary cash investments | $350,066 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $69,421 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $501,551 |
| Accounts payable and accrued expenses | $2,780 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $2,780 |
| Net assets without donor restrictions | $470,334 |
| Net assets with donor restrictions | $28,437 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $501,551 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
American Association For Pediatric Ophthalmology & Strabismus Brentwood, TN | $4,731,021 | $2,462,692 |
American Society Of Cataract And Refractive Surgery Foundation Fairfax, VA | $6,426,034 | $1,064,638 |
Odylia Therapeutics Inc Atlanta, GA | $10,021,651 | $1,098,401 |
Alagille Syndrome Alliance Collierville, TN | $501,551 | $571,645 |
Helen Keller Foundation For Research & Education Inc Birmingham, AL | $40,015 | $416,371 |
Christian Ophthalmology Society Inc Paducah, KY | $294,999 | $310,271 |
Retina Research & Development Foundation Saint Louis, MO | $3,030,037 | $116,711 |
Lions Eye Foundation Of District 26-M2 Washington, MO | $1,190,720 | $45,424 |
Collaborative Community On Ophthalmic Imaging Foundation Reston, VA | $69,978 | $0 |
Charlesson Foundation Lewisville, NC | $3,545,819 | $171,861 |
Missouri Optometric Foundation Inc Bolivar, MO | $1,045,749 | $42,416 |
Retina Center Research Fund Chesterfield, MO | $33,963 | $0 |