Cure Kcnh1 Foundation
- Assets
- $114.2k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- Encinitas, CA
- Founding
- Data as of
- 12/2023
- EIN
- 87-2041980
Organization Overview
Cure Kcnh1 Foundation is located in Encinitas, CA. According to its NTEE Classification (H01) the organization is classified as: Alliances & Advocacy, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cure Kcnh1 Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Cure Kcnh1 Foundation generated $52.2k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 2 years, the organization has seen revenues fall by an average of (56.6%) each year. All expenses for the organization totaled $76.9k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
CURE KCNH1 FOUNDATION IS A PATIENT ADVOCACY ORGANIZATION DEDICATED TO RAISING AWARENESS ABOUT KCNH1 GENETIC DISORDERS AND IMPROVING THE LIVES OF CHILDREN AND FAMILIES BY ADVANCING RESEARCH IN THE SEARCH FOR BETTER TREATMENT OPTIONS AND A CURE.
Describe the Organization's Program Activity:
Part 3
IN A LITTLE OVER A YEAR SINCE WE CREATED THE FOUNDATION WE HAVE GATHERED A SCIENTIFIC TEAM DEVELOPED INVALUABLE RESEARCH TOOLS IN COLLABORATION WITH OUR ACADEMIC PARTNERS FUNDED PIVOTAL RESEARCH PROJECTS AND HOSTED THE FIRST-EVER KCNH1 CONFERENCE. OUR FOUNDATION HAS FUNDED THE DESIGN MANUFACTURE AND SCREENING OF A BATCH OF ANTISENSE OLIGONUCLEOTIDES A TYPE OF GENETIC THERAPY AS WELL AS A REPURPOSED DRUG SCREEN WHICH IDENTIFIES EXISTING APPROVED MEDICATIONS THAT COULD BE REPURPOSED TO HELP CORRECT THE POTASSIUM-CHANNEL OVERACTIVITY CAUSED BY KCNH1 MUTATIONS.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Michaelle Jinnette President | 20 | $0 | |
Noreen Haider Director | 5 | $0 | |
Kevin Witt Director | 5 | $0 | |
James Pearson Secretary | 5 | $0 | |
Joshua Yelsey Treasurer | 5 | $0 | |
Amy Finnigan Director | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $50,734 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $1,454 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $0 |
| Total Revenue | $52,188 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $76,802 |
| Occupancy, rent, utilities, and maintenance | $0 |
| Printing, publications, postage, and shipping | $52 |
| Other expenses | $0 |
| Total expenses | $76,854 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $114,174 |
| Other assets | $0 |
| Total assets | $114,174 |
| Total liabilities | $0 |
| Net assets or fund balances | $114,174 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Californians For Treatments Research Education Access And Ther Sherman Oaks, CA | $0 | $1,504,565 |
Whole Systems Healthcare Portland, OR | $172,781 | $776,328 |
International Dermatology Outcome Measures Roseville, CA | $2,508,318 | $574,443 |
National Purchasing Institute Inc Las Vegas, NV | $202,445 | $408,958 |
Cure Kcnh1 Foundation Encinitas, CA | $114,174 | $0 |
Opencures Inc Novato, CA | $131,578 | $0 |
American Longevity Alliance San Francisco, CA | $346 | $0 |