Pkd Outreach Foundation Ltd
- Assets
- $527.1k
- Revenue
- $979.6k
- Investments
- $453.4k
- Employees
- 0
- Location
- Westbury, NY
- Founding
- Data as of
- 12/2022
- EIN
- 87-1389001
Organization Overview
Pkd Outreach Foundation Ltd is located in Westbury, NY. According to its NTEE Classification (E12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Health Care and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Pkd Outreach Foundation Ltd is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE PKD OUTREACH FOUNDATION (PKDO) HAS A MISSION TO END POLYCYSTIC KIDNEY DISEASE. WE PARTNER WITH TRANSPLANT CENTERS, NUTRITIONISTS, AND REPRODUCTIVE SPECIALISTS TO HELP FAMILIES FIND LIVE KIDNEY DONORS, DISCOVER WAYS TO SLOW THE PROGRESSION OF PKD, AND TO ULTIMATELY ELIMINATE PKD FROM BEING PASSED DOWN TO THE NEXT GENERATION. OUR PARTNERS ARE THE TOP EXPERTS IN THEIR FIELDS AND USE THE LATEST PROVEN TREATMENTS FOR PKD.
Describe the Organization's Program Activity:
Part 3 - Line 4a
EXPAND LIVE DONOR POOLPKDO HAS SPONSORED TRIALS AT BOTH UOFU AND NORTHWELL HEALTH TO INCREASE LIVE KIDNEY DONATION. WE EXPECT TO SEE REAL RESULTS FROM BOTH INITIATIVES DURING 2023.DELAY PROGRESSION OF PKDWHILE THERE HAS BEEN GREAT PROGRESS IN IDENTIFYING SOLUTIONS TO HELP YOUNG ADULTS SLOW THE PROGRESSION OF THE DISEASE AND SIGNIFICANTLY DELAY KIDNEY FAILURE AS WELL AS PROVIDE A PROVEN SOLUTION TO PREVENT PKD FROM BEING PASSED DOWN TO FUTURE GENERATIONS, THESE SOLUTIONS ARE NOT WELL KNOWN WITHIN THE BROADER MEDICAL COMMUNITY AND ARE NOT ADEQUATELY BEING COMMUNICATED TO THE YOUNG ADULTS THAT CAN ACT ON THIS INFORMATION. PKDO IS ACTIVELY WORKING ON DEVELOPING EFFECTIVE CALL TO ACTION HANDOUTS WITH QR CODES TO COMPELLING VIDEO CONTENT TO CREATE AWARENESS AMONGST YOUNG ADULTS AND POINT THEM TO THE MEDICAL PROFESSIONALS THAT CAN HELP THEM.STOP PASSING TO THE NEXT GENERATIONPKDO HAS CREATED PARTNERSHIPS BETWEEN THE TRANSPLANT CLINICS, DIETITIANS, AND MATERNAL MEDICINE DEPARTMENTS AT BOTH UOFU AND NORTHWELL HEALTH TO PROVIDE YOUNG ADULTS WITH THE MEDICAL SERVICES THEY NEED TO IMPLEMENT THESE SOLUTIONS. IN 1Q23 BOTH UOFU AND NORTHWELL HEALTH ARE TARGETED TO START HAVING THEIR NURSES SHARE PKDOS HANDOUTS TO THEIR PATIENTS IN THE TRANSPLANT CLINICS IN THE HOPE THAT THESE PATIENTS WILL SHARE THIS CONTENT WITH THEIR YOUNG ADULT CHILDREN. PKDO WILL ALSO PROVIDE FUNDING FOR PGT-M FOR THOSE IN NEED.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Richard Kellner President | OfficerTrustee | 10 | $0 |
Marlene Wald Director | Trustee | 1 | $0 |
Larry Wald Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $976,031 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $976,031 |
| Total Program Service Revenue | $0 |
| Investment income | $3,419 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $5 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $979,586 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $201,475 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $10,494 |
| Fees for services: Accounting | $1,599 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $29,499 |
| Advertising and promotion | $14,835 |
| Office expenses | $107 |
| Information technology | $3,510 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $2,115 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $444,922 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $73,653 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $453,419 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $527,072 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $527,072 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $527,072 |