Lobular Breast Cancer Alliance Inc
- Assets
- $380.4k
- Revenue
- $599.6k
- Investments
- $0.0
- Employees
- 5
- Location
- White Horse Beach, MA
- Founding
- Data as of
- 06/2023
- EIN
- 86-2260246
Organization Overview
Lobular Breast Cancer Alliance Inc, operating under the name Lbca, is located in White Horse Beach, MA. According to its NTEE Classification (G32) the organization is classified as: Breast Cancer, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2023, Lbca employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Lbca is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
EDUCATING THE MEDICAL & GENERAL PUBLIC ABOUT INVASIVE LOBULAR CARCINOMA (ILC)/LOBULAR BREAST CANCER, PROVIDING TRAINING & INFORMATION TO SUPPORT VOLUNTEERS SEEKING TO ADVOCATE FOR GREATER ILC AWARENESS AND MORE RESEARCH, PROMOTING PATIENT & RESEARCHER COLLABORATIONS, AND MAKING GRANTS FOR ILC RESEARCH.
Describe the Organization's Program Activity:
Part 3 - Line 4a
DURING THE FISCAL YEAR, LBCA:- MANAGED WEBSITE WITH OVER 42,000 VISITS THAT PROVIDES DETAILED INFORMATION FOR THE PUBLIC ABOUT INVASIVE LOBULAR BREAST CANCER (ILC), ILC RESEARCH, CLINICAL TRIALS AND PATIENT ADVOCACY OPPORTUNITIES;- PRODUCED ILC AWARENESS-RAISING VIDEOS AND INTERVIEWS OF ILC RESEARCHERS.- PUBLISHED ILC FAQS AND FACT SHEETS IN 15 LANGUAGES, A "QUESTIONS FOR DOCTOR" GUIDE FOR ILC PATIENTS, AND A MONTHLY E-NEWSLETTER WITH OVER 5,200 SUBSCRIBERS;- PRESENTED ABSTRACT POSTER OF METASTATIC ILC PATIENT SURVEY RESULTS AT SABCS22, THE LARGEST US BREAST CANCER RESEARCH SYMPOSIUM; - FUNDED ILC RESEARCH GRANTS WITH THE SOCIETY OF (CONT'D IN SCHEDULE O) NUCLEAR MEDICINE AND MOLECULAR IMAGING AND THE AMERICAN ASSOCIATION FOR CANCER RESEARCH;-CREATED CAMPAIGN WITH APPROX. 24 OTHER NONPROFIT CANCER ORGANIZATIONS TO INCREASE PUBLIC AWARENESS THAT BREAST CANCER HAS SUBTYPES;- HOSTED WEBINARS FOR ILC PATIENT ADVOCATES ON RESEARCH AND OTHER TOPICS, AND SPONSORED VOLUNTEER PATIENT ADVOCATE ATTENDANCE AT BREAST CANCER CONFERENCES;- SPONSORED SCIENTIFIC ADVISORY BOARD MEETINGS TO INVOLVE ILC RESEARCHERS IN ADVOCACY AND IN THE DEVELOPMENT OF INFORMATION LBCA DISSEMINATES;- SPONSORED PATIENT ADVOCATE ADVISORY BOARD MEETINGS TO INVOLVE ILC PATIENT ADVOCATES IN ILC AWARENESS RAISING ACTIVITIES AND STRATEGIC PLANNING;- DEVELOPED AND SHARED ON WEBSITE AND SOCIAL MEDIA LAY SUMMARIES OF ALL ILC POSTERS PRESENTED AT SABCS22, TO MAKE THE RESEARCH PRESENTED ACCESSIBLE TO LAY AUDIENCES;- DEVELOPED SURVEY OF RADIOLOGISTS REGARDING ILC PATIENT IMAGING WITH THE SOCIETY OF BREAST IMAGERS;-FURNISHED ILC-RELATED INFORMATION TO THE AMERICAN CANCER SOCIETY, BREASTCANCER.ORG AND OTHER ORGANIZATIONS TO INCLUDE IN THEIR EDUCATIONAL CONTENT AND ACTIVITIES; AND-CO-AUTHORED AN ABSTRACT ABOUT HOW ILC IS AN OVERLOOKED SUBTYPE IN CLINICAL TRIALS, PUBLISHED IN THE EUROPEAN SOCIETY FOR MEDICAL ONCOLOGY ESMO OPEN SPECIAL ISSUE.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Laurie B Hutcheson Ms President, Ed, & Director | OfficerTrustee | 50 | $110,000 |
Mason Mitchell-Daniels Msw MPH Vice President & COO | Officer | 20 | $43,563 |
Rachel Jankowitz MD Director (until 9/2022) | Trustee | 1 | $0 |
Tanya Martin-Dick Director | Trustee | 1 | $0 |
Ramlah Nehring PHD Director | Trustee | 1 | $0 |
Deborah Mueller MD Director (until 2/2023) | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $599,316 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $599,316 |
| Total Program Service Revenue | $0 |
| Investment income | $265 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $599,581 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $131,500 |
| Grants and other assistance to domestic individuals. | $5,140 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $156,861 |
| Compensation of current officers, directors, key employees. | $21,625 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $89,080 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $20,199 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $24,343 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $63,386 |
| Advertising and promotion | $885 |
| Office expenses | $297 |
| Information technology | $6,879 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $5,077 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $510 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,952 |
| All other expenses | $0 |
| Total functional expenses | $526,217 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $16,812 |
| Savings and temporary cash investments | $312,806 |
| Pledges and grants receivable | $49,139 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $1,631 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $380,388 |
| Accounts payable and accrued expenses | $82,111 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $82,111 |
| Net assets without donor restrictions | $298,277 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $380,388 |
Grants Awarded
Over the last fiscal year, Lobular Breast Cancer Alliance Inc has awarded $131,500 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
SOCIETY OF NUCLEAR MEDICINE AND MOLECULAR IMAGING PURPOSE: TO FUND IMAGING RESEARCH FELLOWSHIP | $60,000 |
AMERICAN ASSOCIATION FOR CANCER RESEARCH PURPOSE: TO FUND RESEARCH FELLOWSHIP | $70,000 |
NATIONAL BREAST CANCER COALITION PURPOSE: SUPPORT PATIENT ADVOCATE TRAINING PROGRAM | $1,500 |