Arizona Hemophilia Association Inc

Organization Overview

Arizona Hemophilia Association Inc, operating under the name Arizona Bleeding Disorders, is located in Phoenix, AZ. The organization was established in 1973. As of 06/2022, Arizona Bleeding Disorders employed 15 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Arizona Bleeding Disorders is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 06/2022, Arizona Bleeding Disorders generated $1.1m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (6.5%) each year. All expenses for the organization totaled $995.4k during the year ending 06/2022. As we would expect to see with falling revenues, expenses have declined by (10.3%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

THE AHA IS DEDICATED TO ENHANCING THE QUALITY OF LIFE FOR THOSE LIVING WITH CHRONIC BLEEDING DISORDERS WHILE ADVOCATING FOR A CURE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

COMMUNITY EDUCATION - PROMOTE COMMUNITY AWARENESS THROUGH VARIOUS CONFERENCES AND OTHER MEDIA:1. VIRTUAL NORTH AMERICAN CAMPING CONFERENCE FOR HEMOPHILIA ORGANIZATIONS - ANNUAL CONFERENCE FOR 200 NATIONAL AND INTERNATIONAL ATTENDEES TO PROMOTE AND ENHANCE THE SUMMER CAMP EXPERIENCE OF CHILDERN WITH BLEEDING DISORDERS.2. VIRTUAL ANNUAL STATEWIDE EDUCATIONAL SYMPOSIUM - BRINGS TOGETHER THOSE WITH BLEEDING DISORDERS AND THEIR FAMILIES FROM ACROSS THE STATE TO PROVIDE EDUCATION TO HELP THEM BETTER MANAGE THIS CHRONIC CONDITION.3. CONDUCTED AN ADVOCACY SUMMIT CONFERENCE VIA ZOOM TO PROMOTE AWARENESS WITHIN THE BLEEDING DISORDER COMMUNITY AND THE GENERAL PUBLIC.4. CONDUCTED A VIRTUAL HISPANIC HERITAGE DAY WITH THE HISPANIC POPULATION AFFECTED BY BLEEDING DISORDERS TO EDUCATE AND SUPPORT THEIR UNIQUE STRUGGLES IN THEIR NATIVE LANGUAGE.5. CONDUCTED A (NOW) CONFERENCE (NATIONAL EDUCATIONAL CONFERENCE FOR INDIVIDUALS AND FAMILIES WHO ARE LIVING WITH VONWILLEBRANDS).


HEALTH CENTER - ADULT HEALTH CENTER ESTABLISHED TO PROVIDE PRIMARY CARE AND BLEEDING DISORDERS CARE TO TREAT THE WHOLE PERSON. IT IS OPEN TO THOSE WITH BLEEDING DISORDERS AND THEIR ADULT FAMILY MEMBERS. AHA PURCHASED A BUILDING AND RENOVATED IT FOR THE HEALTH CENTER. THE PROGRAM WAS DISCONTINUED IN SEPTEMBER 2021 AND THE BUIDLING WAS SUBSEQUENTLY SOLD.


COMMUNITY SUPPORT PROGRAMS - PROVIDE EDUCATION AND SUPPORT GROUP MEETINGS INCLUDING:1. QUARTERLY MEETINGS FOR THE COMMUNITY AS A WHOLE THAT INCLUDE EDUCATION, PHARMACEUTICAL INFORMATION, AND TIME FOR INTERACTION.2. EDUCATIONAL MEETINGS THAT INCLUDED: A. LEARNING TO DISCLOSE YOUR BLEEDING DISORDER IN A SAFE WAY. B. UNDERSTANDING INSURANCE AND OPTIONS AVAILABLE TO OUR COMMUNITY. C. HOW TO INTERACT WITH LEGISLATORS TO PROMOTE INSURANCE REFORM. D. NUTRITION AND EXERCISE - HOW TO IMPROVE QUALITY OF LIFE. E. MENTAL HEALTH - HOW TO IMPROVE QUALITY OF LIFE. F. EDUCATIONAL MEETINGS FOR SPANISH-SPEAKING COMMUNITY. G. ON-GOING PROGRAM FOR AT-RISK YOUTH.


FAMILY ASSISTANCE - PROVIDE EMERGENCY AND TEMPORARY FINANCIAL ASSISTANCE TO HEMOPHILIA PATIENTS AND THEIR FAMILIES. LIFELINE- PROVIDES ASSISTANCE FOR MEDICAL BILLS, INSURANCE PREMIUMS AND COBRA PAYMENT ASSISTANCE FOR THE COMMUNITY.


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Board, Officers & Key Employees

Name (title)Compensation
Chastity Fermoile
Executive Director
$121,268
Victor I Alonzo
Treasurer
$0
Karin Gerlach
Secretary
$0
Al Schmeiser
Chair
$0
William Kirschner
President
$0
Ellen Owens-Karcsay
Vice-President
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$38,465
Related organizations$0
Government grants $204,463
All other contributions, gifts, grants, and similar amounts not included above$490,311
Noncash contributions included in lines 1a–1f $850
Total Revenue from Contributions, Gifts, Grants & Similar$733,239
Total Program Service Revenue$11,823
Investment income $75,284
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income -$10,970
Net Gain/Loss on Asset Sales $321,178
Net Income from Fundraising Events $5,208
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $1,135,762

Grants Recieved

Over the last fiscal year, we have identified 3 grants that Arizona Hemophilia Association Inc has recieved totaling $18,554.

Awarding OrganizationAmount
American Endowment Foundation

Hudson, OH

PURPOSE: GENERAL OPERATING SUPPORT

$10,000
Hemophilia Alliance Foundation

Lansdale, PA

PURPOSE: PROMOTE HEMOPHILIA

$8,000
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$554
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$607,315
Net Contributions$289,000
Other Expense$219,919
Ending Balance$676,396

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