Middle East Cystic Fibrosis Association
- Assets
- $43.5k
- Revenue
- $304.8k
- Investments
- $0.0
- Employees
- 0
- Location
- Chestnut Hill, MA
- Founding
- Data as of
- 12/2023
- EIN
- 85-1096028
Organization Overview
Middle East Cystic Fibrosis Association is located in Chestnut Hill, MA. According to its NTEE Classification (G45) the organization is classified as: Lung Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Middle East Cystic Fibrosis Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Middle East Cystic Fibrosis Association generated $304.8k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 4 years, the organization has seen revenues fall by an average of (8.1%) each year. All expenses for the organization totaled $310.1k during the year ending 12/2023. As we would expect to see with falling revenues, expenses have declined by (3.5%) per year over the past 4 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF THE ORGANIZATION IS TO IMPROVE THE HEALTH OUTCOMES OF CYSTIC FIBROSIS PATIENTS IN THE MIDDLE EAST THROUGH EARLY DIAGNOSIS, QUALITY CARE, MEDICATIONS, AND EQUIPMENT THAT EXTENDS THE LIFE EXPECTANCY.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ORGANIZATION WORKS TO ESTABLISH CARE CENTERS TO MANAGE CLINICAL ASPECTS OF PATIENTS WITH CYSTIC FIBROSIS. FOLLOWING BEST EVIDENCE-BASED CARE GUIDELINES AND ADAPTING THEM IN HOSPITALS IN MIDDLE EAST. PROVIDE NEEDED EQUIPMENT AND TRAINING TO HOSPITAL TEAMS AS WELL AS CYSTIC FIBROSIS HEALTH WORKSHOPS AT THE ANNUAL CONFERENCE SPECIFICALLY FOR ALLIED HEALTH PROFESSIONALS.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Christine Marie Noke President | OfficerTrustee | 10 | $60,950 |
Jill Weinstien Clerk | Trustee | 1 | $0 |
Bulent Karadag Treasurer | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $243,970 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $243,970 |
| Total Program Service Revenue | $60,840 |
| Investment income | $6 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $304,816 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $1,368 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $71,585 |
| Advertising and promotion | $0 |
| Office expenses | $3,220 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $7,515 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,031 |
| All other expenses | $0 |
| Total functional expenses | $310,088 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $43,463 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $43,463 |
| Accounts payable and accrued expenses | $6,000 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $6,000 |
| Net assets without donor restrictions | $37,463 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $43,463 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Breathe New Hampshire Manchester, NH | $17,834,525 | $553,793 |
Middle East Cystic Fibrosis Association Chestnut Hill, MA | $43,463 | $304,816 |
Innovators In Health Newton, MA | $114,301 | $218,144 |
National Emphysema Foundation Inc Norwalk, CT | $3,069,492 | $341,256 |
Closing The Gap Foundation Scituate, MA | $102,944 | $0 |
Angela Marotta Inho Foundation Inc Rocky Hill, CT | $5,150 | $0 |
Cystic Dreams Inc Manchester, MA | $133,942 | $0 |
Mother Mary Breathe Easy Inc West Hempstead, NY | $4,041 | $0 |