Care-For-Rare America Inc
- Assets
- $420.5k
- Revenue
- $366.7k
- Investments
- $0.0
- Employees
- 0
- Location
- Marblehead, MA
- Founding
- 07/2019
- Data as of
- 12/2021
- EIN
- 84-1825399
Organization Overview
Care-For-Rare America Inc is located in Marblehead, MA. The organization was established in 2019. According to its NTEE Classification (G98) the organization is classified as: Pediatrics, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Care-For-Rare America Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Care-For-Rare America Inc generated $366.7k in total revenue. This organization has experienced exceptional growth, as over the past 2 years, it has increased revenue by an average of 22.8% each year . All expenses for the organization totaled $222.0k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
RAISING AWARENESS AND KNOWLEDGE AND SUPPORTING RESEARCH IN RARE PEDIATRIC DISEASES AND THE DEVELOPMENT OF TREATMENTS FOR THESE DISEASES; FOSTERING THE EDUCATION AND TRAINING OF RESEARCH SCIENTISTS CLINICIANS AND STUDENTS; SUPPORTING CARE FOR CHILDREN WITH RARE AND COMPLEX DISEASES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE INTERNATIONAL CARE-FOR-RARE ALLIANCE IS A NETWORK OF RENOWNED DOCTORS SCIENTISTS RESEARCHERS AND CLINICIANS COMMITTED TO HELPING CHILDREN WITH RARE DISEASES THROUGH TRANSLATIONAL AND INTERDISCIPLINARY COLLABORATION. WE SUPPORT INCREASED RESEARCH ON INBORN ERRORS OF IMMUNITY IEI WHICH MAY PRESENT WITH SEVERE OR RECURRENT INFECTIONS KNOWN AS PRIMARY IMMUNODEFICIENCY DISEASES PID. WITH ROBUST AND GROWING PARTNERSHIPS IN THE MIDDLE EAST NORTHERN AFRICA SOUTHEAST ASIA AND SOUTH AMERICA MANY ALLIANCE PARTNERS ALSO FOCUS THEIR RESEARCH COLLABORATIONS ON RARE DISEASES OF THE BLOOD BONE MARROW AND THE IMMUNE SYSTEM. ONE OF THE MOST SUCCESSFUL INITIATIVES OF THE ALLIANCE IS THE VEOIBD CONSORTIUM.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Christoph Klein President Director | OfficerTrustee | 10 | $0 |
Thomas Jaschke Treasurer Director | OfficerTrustee | 7 | $0 |
Scott Snapper Vice President Clerk Director | OfficerTrustee | 3 | $0 |
Drew Schilson Director Of Administration | Officer | 40 | $32,100 |
Hannah Ewing Director Of Global Collaborations | Officer | 40 | $32,100 |
Jenna Belisle Director Of Donor Relations | Officer | 40 | $32,100 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $366,733 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $366,733 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $366,733 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $198,753 |
| Compensation of current officers, directors, key employees. | $29,813 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $4,794 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $6,533 |
| Information technology | $11,957 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $222,037 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $370,459 |
| Savings and temporary cash investments | $50,000 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $420,459 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $420,459 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $420,459 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Family Reach Foundation Boston, MA | $6,763,325 | $8,336,590 |
American Academy Of Pediatrics Inc Waltham, MA | $523,292 | $414,875 |
Pediatric Trauma Society Beverly, MA | $346,115 | $400,797 |
Care-For-Rare America Inc Marblehead, MA | $420,459 | $366,733 |
American Academy Of Pediatrics Inc Smithtown, NY | $251,441 | $0 |
Nidcap Federation Intl Inc Boston, MA | $125,069 | $205,250 |
Northeast Pediatric Specialists Inc Hartford, CT | $0 | $88,784 |
Nh Chapter Of The American Academy Of Pediatrics Concord, NH | $92,901 | $0 |
Moldova Outreach Foundation Inc Rochester, NY | $62,958 | $75,606 |
Buffalo Pediatric Society Inc Buffalo, NY | $20,766 | $0 |
Nassau Pediatric Society Inc Great Neck, NY | $12,363 | $0 |