Dyrk1a Syndrome Us
- Assets
- $0.0
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- Otsego, MI
- Founding
- 04/2019
- Data as of
- EIN
- 83-3342162
Organization Overview
Dyrk1a Syndrome Us, operating under the name Dyrk1a Syndrome International Association, is located in Otsego, MI. The organization was established in 2019. According to its NTEE Classification (H20) the organization is classified as: Birth Defects & Genetic Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Dyrk1a Syndrome International Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
Describe the Organization's Mission:
Part 3 - Line 1
DYRK1A SYNDROME US IS NON-PROFIT 501(C)3, TAX EXEMPT ORGANIZATION WITH A MAIN PURPOSE OF IMPROVING THE QUALITY OF LIFE FOR THOSE AFFECTED BY DYRK1A SYNDROME. THROUGH SUPPORT, EDUCATION, RESEARCH AND COLLABORATION WE ARE WORKING TO IMPROVE FAMILY LIFE, DAILY LIVING AND CLINICAL CARE FOR THOSE WITH DYRK1A SYNDROME. IN DOING SO WE ALSO IMPROVE THE LIVES OF THEIR CAREGIVERS AND THEIR FAMILIES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
DYKR1A SYNDROME FAMILY SUPPORT & EDUCATION.
EDUCATION AND OUTREACH TO CLINICAL AND SCIENTIFIC COMMUNITIES ABOUT DYRK1A SYNDROME.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Amy Clugston President | OfficerTrustee | 12 | $0 |
Adrianne Apodaca Secretary | OfficerTrustee | 2 | $0 |
Priscilla Guzman Treasurer | OfficerTrustee | 2 | $0 |
Ana Downey Director | Trustee | 2 | $0 |
Johnna Rogers Graves Director | Trustee | 2 | $0 |
Ashley Allen Director | Trustee | 2 | $0 |
Grants Recieved
Over the last fiscal year, we have identified 5 grants that Dyrk1a Syndrome Us has recieved totaling $21,257.
| Awarding Organization | Amount |
|---|---|
Paypal Charitable Giving Fund Washington, DC PURPOSE: General Support | $12,874 |
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $7,236 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $897 |
Pfizer Foundation Inc New York, NY PURPOSE: MATCHING GIFTS | $200 |
Pfizer Foundation Inc New York, NY PURPOSE: VOLUNTEER PROGRAM | $50 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
The American Society Of Gene & Cell Therapy Waukesha, WI | $11,546,982 | $6,516,210 |
Porter Hills Home Health West Grand Rapids, MI | $637,150 | $3,427,551 |
St Croix Therapy Inc Hudson, WI | $2,512,408 | $2,378,126 |
International Zebrafish Society Inc Milwaukee, WI | $421,036 | $263,799 |
Rock Steady Boxing Of Brownsburg Inc Brownsburg, IN | $41,574 | $0 |
K-T Support Group Milford, OH | $129,397 | $0 |
Matthews Wish Ypsilanti, MI | $1,364 | $0 |