Yaya Foundation For 4h Leukodystrophy
- Assets
- $441.3k
- Revenue
- $210.5k
- Investments
- $0.0
- Employees
- 2
- Location
- Minneapolis, MN
- Founding
- 07/2018
- Data as of
- 12/2023
- EIN
- 82-3888108
Organization Overview
Yaya Foundation For 4h Leukodystrophy is located in Minneapolis, MN. The organization was established in 2018. According to its NTEE Classification (E12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Health Care and related organizations. As of 12/2023, Yaya Foundation For 4h Leukodystrophy employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Yaya Foundation For 4h Leukodystrophy is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Yaya Foundation For 4h Leukodystrophy generated $210.5k in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 4.8% each year.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
FOUNDED AND LAUNCHED THE 4H LEUKODYSTROPHY COLLABORATION NETWORK (4HLCN), A GLOBAL, CROSS-FUNCTIONAL COLLABORATION OF PATIENTS, FAMILIES, RESEARCHERS, AND CLINICIANS DEDICATED TO ADVANCING THERAPEUTIC DISCOVERY THAT WILL ENABLE PEOPLE AFFECTED BY 4H (POLR3-RELATED) LEUKODYSTROPHY TO LIVE LONGER, BETTER LIVES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
LAUNCHED #4HLFAMILIES, COMPRISED OF PROGRAMMING AND SUPPORTIVE RESOURCES FOR FAMILIES AFFECTED BY 4H LEUKODYSTROPHY. #4HLFAMILIES AIMS TO CONNECT AFFECTED FAMILIES SO THAT THEY CAN SHARE EXPERIENCES AND BEST PRACTICES AND PROVIDE EMOTIONAL AND EDUCATIONAL SUPPORT FOR ONE ANOTHER, PROVIDE EDUCATIONAL RESOURCES FOR FAMILIES AND THEIR HEALTHCARE PROVIDERS IN ORDER TO STREAMLINE AND IMPROVE THE STANDARD OF CARE FOR PATIENTS AFFECTED BY 4H LEUKODYSTROPHY, AND TO SHARE PATIENT STORIES TO RAISE AWARENESS OF THE DISEASE. THE YAYA FOUNDATION HELD SEVERAL VIDEOCONFERENCES ATTENDED BY FAMILIES AND CHILDREN AFFECTED BY 4H AND BEGAN CREATION OF A SUITE OF EDUCATIONAL RESOURCES FOR NEWLY DIAGNOSED FAMILIES AND THEIR HEALTHCARE PROVIDERS AIMED AT STREAMLINING AND IMPROVING THEIR CARE.
FOUNDED AND LAUNCHED THE 4H LEUKODYSTROPHY COLLABORATION NETWORK (4HLCN), A GLOBAL, CROSS-FUNCTIONAL COLLABORATION OF PATIENTS, FAMILIES, RESEARCHERS, AND CLINICIANS DEDICATED TO ADVANCING THERAPEUTIC DISCOVERY THAT WILL ENABLE PEOPLE AFFECTED BY 4H (POLR3-RELATED) LEUKODYSTROPHY TO LIVE LONGER, BETTER LIVES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Benjamin Smith Executive Director | 40 | $126,602 | |
Gabriel Bassin CFO & Director | Trustee | 7 | $0 |
Zhu Cheng Vice Chair | Trustee | 2 | $0 |
Chris Cleary Director | Trustee | 2 | $0 |
Marcia Cleary Director | Trustee | 5 | $0 |
Ron Garber Secretary | Trustee | 15 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $204,677 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $204,677 |
| Total Program Service Revenue | $0 |
| Investment income | $5,813 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $210,490 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $24,699 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $174,568 |
| Compensation of current officers, directors, key employees. | $80,696 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $77,068 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $18,008 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $2,256 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $7,921 |
| Office expenses | $10,402 |
| Information technology | $5,935 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $60,200 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,067 |
| All other expenses | $600 |
| Total functional expenses | $524,912 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $438,174 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $3,155 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $441,329 |
| Accounts payable and accrued expenses | $5,000 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $16,925 |
| Total liabilities | $21,925 |
| Net assets without donor restrictions | $419,404 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $441,329 |
Grants Awarded
Over the last fiscal year, Yaya Foundation For 4h Leukodystrophy has awarded $200,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
MCGILL UNIVERSITY PURPOSE: Research | $140,000 |
UNIVERSITY OF MA MEDICAL SCH PURPOSE: Research | $60,000 |