Rarekc Foundation
- Assets
- $46.3k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- Overland Park, KS
- Founding
- 01/2018
- Data as of
- 12/2021
- EIN
- 82-3511792
Organization Overview
Rarekc Foundation is located in Overland Park, KS. The organization was established in 2018. According to its NTEE Classification (G01) the organization is classified as: Alliances & Advocacy, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Rarekc Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Rarekc Foundation generated $19.0k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 4 years, the organization has seen revenues fall by an average of (24.6%) each year. All expenses for the organization totaled $32.3k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2021
Describe the Organization's Program Activity:
Part 3
THROUGHOUT NEARLY ALL OF 2021, MUCH OF THE WORK OF RAREKC WAS PAUSED AS A RESULT OF THE COVID-19 PANDEMIC. HOWEVER, A NEW CEO WAS HIRED IN 2021 AND LED THE ORGANIZATION IN STRATEGIC PLANNING, EVENT PLANNING FOR 2022 AND EVALUATION OF THE INFRASTRUCTURE AND OPERATIONS OF THE ORGANIZATION, INCLUDING BOARD COMPOSITION AND ORGANIZATIONAL BY-LAWS. ALSO IN 2021, RAREKC CONTINUED TO ADVOCATE FOR RARE DISEASE PATIENTS AND AMPLIFY THEIR VOICE IN COMMUNITY EFFORTS, INCLUDING THE ETHICAL AI INITIATIVE, PCORI PATIENT NAVIGATORS AND REGIONAL NAVIGATORS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kelly Ranallo Director | 2 | $0 | |
Angie Dunbar Chair | 1 | $0 | |
Dennis Ridenour Treasurer | 2 | $0 | |
Kim Kimminau Secretary | 1 | $0 | |
Jay Vivian Director | 1 | $0 | |
Amber Heineman Director | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $19,010 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $0 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $0 |
| Total Revenue | $19,010 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $30,216 |
| Occupancy, rent, utilities, and maintenance | $0 |
| Printing, publications, postage, and shipping | $0 |
| Other expenses | $2,069 |
| Total expenses | $32,285 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $46,259 |
| Other assets | $0 |
| Total assets | $46,259 |
| Total liabilities | $0 |
| Net assets or fund balances | $46,259 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Rarekc Foundation has recieved totaling $7,500.
| Awarding Organization | Amount |
|---|---|
Global Genes Aliso Viejo, CA PURPOSE: FAIR IMPACT GRANT | $7,500 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Alpine Autism Center Colorado Springs, CO | $2,660,038 | $3,462,124 |
Stowers Policy Institute Inc Kansas City, MO | $30,537,171 | $3,100,830 |
Vail Breast Cancer Awareness Group Edwards, CO | $0 | $0 |
Loveu2pieces Saint Louis, MO | $118,001 | $0 |
Rarekc Foundation Overland Park, KS | $46,259 | $0 |
National Pain Advocacy Center Boulder, CO | $42,592 | $0 |
Delivering Hope The Cash And Cooper Foundation Omaha, NE | $4,123 | $0 |
Partners For The Advancement Of Surgical Education St Louis, MO | $0 | $0 |