Sebastianstrong Foundation

Organization Overview

Sebastianstrong Foundation is located in Miami Springs, FL. The organization was established in 2017. According to its NTEE Classification (G30) the organization is classified as: Cancer, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Sebastianstrong Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Sebastianstrong Foundation generated $724.3k in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 16.2% each year . All expenses for the organization totaled $397.9k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.

Since 2018, Sebastianstrong Foundation has awarded 15 individual grants totaling $1,095,950. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

BASED IN MIAMI, FLORIDA, SEBASTIANSTRONG FOUNDATION IS A REGISTERED 501(C)(3) CHARITY THAT HONORS THE LIFE OF SEBASTIAN "SEBS ORTIZ (2000-2016) BY INCREASING AWARENESS OF CHILDHOOD CANCER AND RAISING MONEY TO FUND RESEARCH FOR LESS TOXIC, MORE TARGETED CHILDHOOD CANCER CURES. THIS MISSION WAS BORN FROM THE EXAMPLE OF STRENGTH SET FORTH BY SEBS DURING HIS COURAGEOUS 14-MONTH BATTLE WITH RHABDOMYOSARCOMA. SINCE HIS PASSING, THE FOUNDATION BEARING HIS NAME HAS BOLSTERED THE SUPPORT OF DONORS FROM ACROSS THE COUNTRY. SEBASTIANSTRONG HAS AWARDED SEVERAL GRANTS TO DATE FOR PEDIATRIC CANCER RESEARCH.

Describe the Organization's Program Activity:

Part 3 - Line 4a

SEBASTIANSTRONG FOUNDATION'S FOCUS IS ON FUNDING CUTTING-EDGE PEDIATRIC CANCER RESEARCH. WE AIM TO FUND RESEARCH THAT FOCUSES ON LESS TOXIC AND MORE TARGETED TREATMENTS AND CURES - FROM FINDING WAYS TO MAKE CHEMOTHERAPY TREATMENT LESS TOXIC AND MORE EFFECTIVE, TO FINDING WAYS TO TEACH THE BODY TO FIGHT CANCER. PROJECTS ARE SELECTED THROUGH A RIGOROUS REVIEW PROCESS BY OUR MEDICAL ADVISORY BOARD. AT TIMES, PROJECTS GO THROUGH MORE THAN ONE REVIEW CYCLE, AS WHEN WE PARTNER WITH OTHER FOUNDATIONS TO JOINTLY FUND A PROJECT. IN THOSE CASES, PROJECTS ARE REVIEWED BY SCIENTISTS AND DOCTORS ON MORE THAN ONE MEDICAL ADVISORY BOARD.


SEBASTIANSTRONG FOUNDATION WORKS TO BRING AWARENESS AND KNOWLEDGE OF CHILDHOOD CANCER TO THE GENERAL PUBLIC AS WELL AS CHILDHOOD CANCER FAMILIES THROUGH AWARENESS, EDUCATIONAL AND VOLUNTEER ACTIVITIES. SEBASTIANSTRONG ROUTINELY EDUCATES THE GENERAL PUBLIC THROUGH GUEST LECTURES/PRESENTATIONS AT SCHOOLS AND COMMUNITY EVENTS. WE ALSO PARTICIPATE IN FAMILY/PATIENT ACTIVITIES AT LOCAL HOSPITALS. WE OFFER VOLUNTEER ACTIVITIES, WHICH ALLOW PEOPLE TO GET INVOLVED IN INCREASING AWARENESS AND KNOWLEDGE OF THE CAUSE. WE PROVIDE SCHOLARSHIPS TO HIGH SCHOOL SENIORS PURSUING STEM CAREERS TO ENCOURAGE GROWTH IN THE FIELD AND TO FEED THE WELL OF FUTURE RESEARCHERS.


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Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$92,005
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$197,406
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$289,411
Total Program Service Revenue$0
Investment income $1,670
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $432,548
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $635
Miscellaneous Revenue$0
Total Revenue $724,264

Grants Awarded

Over the last fiscal year, Sebastianstrong Foundation has awarded $274,950 in support to 5 organizations.

Grant RecipientAmount

CURESEARCH FOR CHILDREN'S CANCER

Org PageRecipient Profile

Bethesda, MD

PURPOSE: To advance the organization's charitable purpose.

$171,950

UNIVERSITY OF MIAMI

Org PageRecipient Profile

Coral Gables, FL

PURPOSE: To advance the organization's charitable purpose.

$100,000

ALEX'S LEMONADE STAND FOUNDATION

Org PageRecipient Profile

Wynnewood, PA

PURPOSE: To advance the organization's charitable purpose.

$1,000

NICKY'S CELEBRATION INC

Org PageRecipient Profile

Key West, FL

PURPOSE: To advance the organization's charitable purpose.

$1,000

DANA-FARBER CANCER INSTITUTE - THE JIMMY FUND

Org PageRecipient Profile

Boston, MA

PURPOSE: To advance the organization's charitable purpose.

$1,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 5 grants that Sebastianstrong Foundation has recieved totaling $20,193.

Awarding OrganizationAmount
The@robin And Bill King Family Foundation

Nashville, TN

PURPOSE: FIGHTING CHILDHOOD CANCER

$10,000
Alchemical Courtyard Foundation Inc

Aventura, FL

PURPOSE: GENERAL OPERATIONS

$7,500
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$1,413
Bv Miami Inc

Cooper City, FL

PURPOSE: DONATION

$1,030
Baird Foundation Inc

Milwaukee, WI

PURPOSE: HEALTH AND HUMAN SERVICES

$250
View Grant Recipient Profile

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