Pediatric Research And Advocacy Initiative
- Assets
- $131.9k
- Revenue
- $12.3k
- Investments
- $0.0
- Employees
- 0
- Location
- Onley, VA
- Founding
- 06/2016
- Data as of
- 12/2021
- EIN
- 81-0744425
Organization Overview
Pediatric Research And Advocacy Initiative is located in Onley, VA. The organization was established in 2016. According to its NTEE Classification (H20) the organization is classified as: Birth Defects & Genetic Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Pediatric Research And Advocacy Initiative is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Pediatric Research And Advocacy Initiative generated $12.3k in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 10.9% each year . All expenses for the organization totaled $54.5k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
PRAI EXISTS TO SPREAD AWARENESS OF NEUROIMMUNE DISORDERS, ADVOCATE FOR PATIENT CARE AND SUPPORT DATA-DRIVEN RESEARCH THAT WILL ULTIMATELY LEAD TO EFFECTIVE TREATMENTS AND CURES FOR THESE DISORDERS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH: - PRAI HAS FOSTERED RELATIONSHIPS WITH CLINICIANS AND SCIENTISTS AT THE UNIVERSITY OF ARIZONA, STANFORD, MASS GENERAL AND THE UNIVERSITY OF WASHINGTON AND BUILT A COLLABORATIVE NETWORK FOR RESEARCH. THE INTERNATIONAL PANS/PANDAS PATIENT REGISTRY IN THE US AND CANADA RESULTED IN IN 2100 FULLY ENROLLED PARTICIPANTS AND 1,500 CONSENTED FAMILIES. THE INFRASTRUCTURE FOR THIS PATIENT REGISTRY HAS BEEN BUILT AND THE PROJECT NOW RESIDES AT THE UNIVERSITY OF WASHINGTON. FUTURE PROJECTS INCLUDE GROWING THE IPR THROUGHOUT EUROPE. SEVERAL EPIDEMIOLOGICAL SCIENTIFIC PUBLICATIONS ARE UNDER WAY TO BETTER CHARACTERIZE THESE PEDIATRIC NEUROIMMUNE DISORDERS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jessica Gavin Executive Director | OfficerTrustee | 40 | $0 |
Christina Teague Board Chair | OfficerTrustee | 5 | $0 |
Spencer Broadbent Vice Chair | OfficerTrustee | 2 | $0 |
Amy Gregory Treasurer | OfficerTrustee | 2 | $0 |
Jenny Mease Secretary | OfficerTrustee | 2 | $0 |
Jill Lemon Board Member | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $8,282 |
| All other contributions, gifts, grants, and similar amounts not included above | $3,965 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $12,247 |
| Total Program Service Revenue | $0 |
| Investment income | $8 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $12,255 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $579 |
| Advertising and promotion | $0 |
| Office expenses | $3,069 |
| Information technology | $510 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $99 |
| Insurance | $137 |
| All other expenses | $50,131 |
| Total functional expenses | $54,525 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $48,806 |
| Savings and temporary cash investments | $82,966 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $148 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $131,920 |
| Accounts payable and accrued expenses | $22 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $22 |
| Net assets without donor restrictions | $131,898 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $131,920 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Pediatric Research And Advocacy Initiative has recieved totaling $295.
| Awarding Organization | Amount |
|---|---|
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $295 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
American Society Of Human Genetics Rockville, MD | $24,149,284 | $8,094,459 |
Community Health Interventions And Sickle Cell Agency Inc Fayetteville, NC | $519,573 | $2,014,356 |
Spinal Research Foundation Reston, VA | $4,971,083 | $1,609,882 |
National Fragile X Foundation Mclean, VA | $1,539,237 | $1,652,718 |
Rilite Foundation Charlottesville, VA | $256,412 | $479,471 |
Parkinson Association Of The Carolinas Charlotte, NC | $2,104,348 | $268,064 |
Childrens Roads To Recovery Inc Baltimore, MD | $30,652 | $19,883 |
International Neurosurgery Education And Research Foundation Raleigh, NC | $274,447 | $152,970 |
Peoples Clinic Foundation Inc Morehead, KY | $113,820 | $0 |
Pediatric Research And Advocacy Initiative Onley, VA | $131,920 | $12,255 |
Advance The Cure Knoxville, TN | $24,902 | $0 |
Clara Inspired Midlothian, VA | $44,408 | $33,330 |