Trisomy 18 Support Inc
- Assets
- $123.0k
- Revenue
- $196.3k
- Investments
- $0.0
- Employees
- 2
- Location
- Flushing, MI
- Founding
- 01/2004
- Data as of
- 06/2022
- EIN
- 77-0600393
Organization Overview
Trisomy 18 Support Inc is located in Flushing, MI. The organization was established in 2004. According to its NTEE Classification (G25) the organization is classified as: Down Syndrome, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2022, Trisomy 18 Support Inc employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Trisomy 18 Support Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Trisomy 18 Support Inc generated $196.3k in total revenue. The organization has seen a slow decline revenue. Over the past 7 years, revenues have fallen by an average of (0.3%) each year. All expenses for the organization totaled $134.5k during the year ending 06/2022. As we would expect to see with falling revenues, expenses have declined by (3.3%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TRISOMY 18 FOUNDATION IS DEDICATED TO ACCELERATING RESEARCH INTO THE CAUSES AND TREATMENTS OF TRISOMY 18, AND SUPPORTING ALL FAMILIES IMPACTED BY A TRISOMY 18 DIAGNOSIS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
EDUCATION AND SUPPORT PROGRAMS: TRISOMY 18'S NATIONALLY-RECOGNIZED PROGRAM SUPPORTS AND EDUCATES BOTH PATIENT FAMILIES AND MEDICAL PROVIDERS WHO TREAT FAMILIES AND CHILDREN WITH TRISOMY 18 THOUGH DIRECT SERVICE CALLS TO SUPPORT PROGRAM STAFF, WORKSHOPS, PUBLIC PRESENTATIONS, EDUCATIONAL MATERIALS AND TECHNOLOGY ENABLED PEER SUPPORT PROGRAMS.THE RESEARCH ADVOCACY AND PUBLIC ENGAGEMENT PROGRAM: THIS PROGRAM SUPPORTS CONSTITUENT ENGAGEMENT IN THE RESEARCH AND HEALTH POLICY-MAKING PROCESS AT FEDERAL AND STATE LEVEL ON LEGISLATIVE AND REGULATORY INITIATIVES THAT IMPACT THE LIVES OF FAMILIES AND THEIR CHILDREN WITH TRISOMY 18.THIS PROGRAM INVOLVES AND ENGAGES THE PUBLIC IN NATIONAL AWARENESS CAMPAIGNS TO SUPPORT OUR CAUSE TO MAKE TRISOMY 18 A PREVENTABLE AND TREATABLE CONDITION SO THAT LESS FAMILIES LOSE THEIR PRECIOUS NEWBORNS AND INFANTS TO THIS CONDITION. VOLUNTEERS ARE SUPPORTED IN HOSTING SPECIAL AWARENESS AND FUNDRAISING EVENTS BENEFITTING THE FOUNDATION IN LOCATIONS ACROSS THE UNITED STATES. THESE EVENTS HELP DEVELOP AND EXPAND PHILANTHROPIC PARTNERSHIPS TO ACCELERATE PROGRESS TOWARD TREATMENTS AND IMPROVED HEALTH OUTCOMES FOR CHILDREN IMPACTED BY TRISOMY 18 DIAGNOSIS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kristine Shaughnessy Executive Director | OfficerTrustee | 40 | $79,040 |
Catherine Howard Treasurer | Officer | 1 | $2,250 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $196,269 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $196,269 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $3 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $196,272 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $91,040 |
| Compensation of current officers, directors, key employees. | $4,000 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $7,354 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $1,631 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $24,612 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $1,419 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $1,116 |
| Insurance | $1,056 |
| All other expenses | $724 |
| Total functional expenses | $134,486 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $111,875 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $7,501 |
| Prepaid expenses and deferred charges | $2,044 |
| Net Land, buildings, and equipment | $1,622 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $123,042 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $656 |
| Total liabilities | $656 |
| Net assets without donor restrictions | $122,386 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $123,042 |
Grants Awarded
Over the last fiscal year, Trisomy 18 Support Inc has awarded $7,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
Cold Spring Harbor, NY PURPOSE: BASIC RESEARCH INTO CAUSES AND POTENTIAL TREATMENTS FOR TRISOMY 18 AND RELATED ANEUPLOIDY CONDITIONS | $5,000 |
East Greenwich, RI PURPOSE: TO SUPPORT JUNIOR RESEARCHERS ATTENDANCE AT NATIONAL CONFERENCE ON MEIOSIS THAT CAUSES TRISOMY 18 CHROMOSOMAL DISORDER AND RELATED TRISOMY CONDITIONS | $2,000 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Trisomy 18 Support Inc has recieved totaling $1,473.
| Awarding Organization | Amount |
|---|---|
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,473 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Down Syndrome Association Of Central Ohio Columbus, OH | $2,192,988 | $4,282,695 |
Down Syndrome Association Of Greater Cincinnati Cincinnati, OH | $2,318,538 | $1,930,904 |
J1224 Seeds Of Hope Inc Elkhorn, WI | $474,017 | $710,611 |
Down Syndrome Association Of Western Michigan Grand Rapids, MI | $151,885 | $391,804 |
Trisomy 18 Support Inc Flushing, MI | $123,042 | $196,272 |
Down Syndrome Association Of Northeast Indiana Inc Fort Wayne, IN | $262,056 | $0 |
Down Syndrome Association Of Greater Toledo Sylvania, OH | $587,681 | $197,069 |
Down Syndrome Association Of Thevalley Boardman, OH | $805,090 | $229,132 |
Down Syndrome Guild Of Southeast Michigan Royal Oak, MI | $120,190 | $0 |
Down Syndrome Association Of Northwest Indiana Inc Schererville, IN | $237,812 | $0 |
Chasing Dreams Inc Valparaiso, IN | $49,992 | $0 |
Country Club At Muirfield Village Foundation Dublin, OH | $83,359 | $0 |