Acmg Foundation For Genetic And Genomic Medicine

Organization Overview

Acmg Foundation For Genetic And Genomic Medicine is located in Bethesda, MD. The organization was established in 1993. According to its NTEE Classification (B82) the organization is classified as: Scholarships & Student Financial Aid, under the broad grouping of Education and related organizations. As of 12/2021, Acmg Foundation For Genetic And Genomic Medicine employed 60 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Acmg Foundation For Genetic And Genomic Medicine is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Acmg Foundation For Genetic And Genomic Medicine generated $1.6m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.9% each year. All expenses for the organization totaled $702.0k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Acmg Foundation For Genetic And Genomic Medicine has awarded 42 individual grants totaling $3,616,628. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

SEE PART III, LINE 1.

Describe the Organization's Program Activity:

Part 3 - Line 4a

SUMMER GENETICS SCHOLARS PROGRAM: IN 2021 THERE WERE 8 SUMMER SCHOLARS ENROLLED IN THE SUMMER GENETICS SCHOLARS PROGRAM. ACMG FOUNDATION TREATMENT GUIDELINES DEVELOPMENT FUND: THE ACCELERATION OF SCIENTIFIC DISCOVERY OVER THESE LAST FEW YEARS HAS PUT INCREASING DEMANDS ON THE ACMG TO INTENSIFY ITS WORK IN THE DEVELOPMENT OF PRACTICE GUIDELINES, PARTICULARLY TO BE ABLE TO RESPOND QUICKLY AS NEW THERAPEUTICS FOR GENETIC DISEASES EMERGE.THE ACMG FOUNDATION, ON BEHALF OF ACMG, HAS ESTABLISHED A FUND TO DEVELOP AND DISSEMINATE BEST-PRACTICE GUIDELINES THAT RESPOND TO AND INCORPORATE FREQUENT, NEW SCIENTIFIC DISCOVERIES IN THE DIAGNOSIS, MANAGEMENT, AND TREATMENT OF GENETIC CONDITIONS, FROM DETECTION THROUGH NEWBORN SCREENING TO COMMON PROBLEMS OF ADULTHOOD.DAY OF CARING: THE DAY OF CARING IS AN EVENT WHERE FUNDS ARE RAISED TO PROVIDE BICYCLES AND HELMETS TO CHILDREN WITH GENETIC DISEASES. LOCAL GENETICS ORGANIZATIONS ARE TAPPED TO FIND RECIPIENTS AND AN EVENT IS HELD DURING THE ACMG ANNUAL MEETING TO PRESENT THESE BICYCLES.THE PURPOSE OF THE PFIZER/ACMG FOUNDATION'S "TRANSLATIONAL GENOMICS SCHOLARS" AWARD PROGRAM IS TO ADVANCE EDUCATION, RESEARCH AND STANDARDS OF PRACTICE IN MEDICAL GENETICS, AND TO DEVELOP AND EXPAND CLINICAL AND LABORATORY EXPERTISE IN MEDICAL GENETICS IN THE UNITED STATES. IT ALSO SEEKS TO INITIATE AND DEVELOP A BROAD-BASED INFRASTRUCTURE FOR INDUSTRY FUNDING OF HIGH QUALITY PROJECTS IN THE FIELDS OF MEDICAL GENETICS.OTHER AWARDS AND FELLOWSHIPS:- GENZYME CORPORATION FELLOWSHIP- SHIRE CORPORATION FELLOWSHIP


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Board, Officers & Key Employees

Name (title)Compensation
Maxmilian Muenke
Chief Executive Officer
$412,000
Melanie Wells
Chief Operating Officer
$221,205
Bruce R Korf
President
$0
David A Whiteman
Vice President
$0
Madhiri Hedge
Secretary/treasurer
$0
Robert G Best
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$1,499,648
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$1,499,648
Total Program Service Revenue$0
Investment income $8,181
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $80,239
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $1,600,164

Grants Awarded

Over the last fiscal year, Acmg Foundation For Genetic And Genomic Medicine has awarded $283,631 in support to 5 organizations.

Grant RecipientAmount

CHILDREN'S HOSPITAL CORPORATION

Org PageRecipient Profile

Boston, MA

PURPOSE: 2021-2022 PFIZER FELLOWSHIP, 2020-2021 TAKEDA FELLOWSHIPS, 2020-2021 GENZYME FELLOWSHIP

$151,250

STANFORD UNIVERSITY

Org PageRecipient Profile

Redwood City, CA

PURPOSE: 2021-2022 PFOZER FELLOWSHIP

$42,500

UNIVERSITY OF NORTH CAROLINA

Org PageRecipient Profile

Chapel Hill, NC

PURPOSE: 2020-2021 TAKEDA FELLOWSHIP

$37,500

Atlanta, GA

PURPOSE: 2020-2021 TAKEDA FELLOWSHIP

$37,500

THE BOARD OF TRUSTEES OF THE UNIV OF ALABAMA AT BIRMINGHAM

PURPOSE: 2020-2021 TAKEDA FELLOWSHIP

$14,881
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 2 grants that Acmg Foundation For Genetic And Genomic Medicine has recieved totaling $90,045.

Awarding OrganizationAmount
Illumina Corporate Foundation

Wilmington, DE

PURPOSE: HEALTHCARE INTERPRETER GENETICS AND GENOMICS EDUCATION PROGRAM

$50,045
Illumina Corporate Foundation

Wilmington, DE

PURPOSE: MOC4 MPHI TO IMPROVE GENETICS CARE BY PRIMARY CARE

$40,000
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$85,889
Earnings$129,139
Other Expense$22,540
Ending Balance$192,488

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