Louisiana Hemophilia Foundation

Organization Overview

Louisiana Hemophilia Foundation is located in Baton Rouge, LA. The organization was established in 1998. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Louisiana Hemophilia Foundation employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Louisiana Hemophilia Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Louisiana Hemophilia Foundation generated $485.9k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 8.9% each year. All expenses for the organization totaled $476.4k during the year ending 12/2021. While expenses have increased by 8.5% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

IMPROVE THE QUALITY OF LIFE FOR PERSONS AFFECTED BY INHERITED BLEEDING DISORDERS BY PROVIDING EDUCATION, ADVOCACY, ACCESS TO CARE SUPPORT SERVICES, AND RESEARCH.

Describe the Organization's Program Activity:

Part 3 - Line 4a

TO IMPROVE THE LIVES OF INDIVIUDALS WHO ARE AFFECTED BY INHERITED BLEEDING DISORDERS THROUGH PROGRAMS, INCLUDING ONGOING EDUCATION BY HOLDING APPROXIMATELY 20 EDUCATIONAL EVENTS THROUGHOUT THE YEAR, ACCESS TO MEDICAL CARE BY REMOVING OBSTACLES THAT PREVENT PATIENTS FROM GAINING MEDICAL CARE, SUMMER CAMP ACCESS TO CHILDREN, SUPPORT SERVICE RESOURCES AND CONNECTIONS WHEN NECESSARY, PATIENT ASSISTANCE PROGRAMS INCLUDING MEDIC ALETER SERVICES, GENERAL ASSISTANCE WHEN NEEDED, AND ADVOCACY.


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Board, Officers & Key Employees

Name (title)Compensation
Akesha Allen
President
$0
Subodh Pethe
Vice-President
$0
David Reynaud
Secretary
$0
Gwynn Shamlin
Trustee
$0
Jennifer Borrillo
Advisory
$0
Claudette Vicks
Advisory
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $15,625
All other contributions, gifts, grants, and similar amounts not included above$337,980
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$353,605
Total Program Service Revenue$132,265
Investment income $14
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $485,884

Grants Recieved

Over the last fiscal year, we have identified 7 grants that Louisiana Hemophilia Foundation has recieved totaling $71,436.

Awarding OrganizationAmount
Indiana Hemophilia And Thrombosis Center Inc

Indianapolis, IN

PURPOSE: SEE PART IV

$30,000
Pharmaceutical Research And Manufacturers Of America

Washington, DC

PURPOSE: General Contribution

$12,000
Hemophilia Alliance Group Purchasing Organization Inc

Lansdale, PA

PURPOSE: PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.

$10,000
Hemophilia Alliance Foundation

Lansdale, PA

PURPOSE: PROMOTE HEMOPHILIA

$10,000
Colburn-Keenan Foundation Inc

Enfield, CT

PURPOSE: SUPPORT ACTIVITIES THAT BENEFIT THE BLEEDING DISORDERS AND CHRONIC ILLNESS COMMUNITIE

$9,295
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$91
View Grant Recipient Profile

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