National Down Syndrome Congress

Organization Overview

National Down Syndrome Congress is located in Roswell, GA. The organization was established in 1975. According to its NTEE Classification (G25) the organization is classified as: Down Syndrome, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, National Down Syndrome Congress employed 6 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Down Syndrome Congress is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, National Down Syndrome Congress generated $732.2k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (3.7%) each year. All expenses for the organization totaled $930.6k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (2.9%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

SEE SCHEDULE O

Describe the Organization's Program Activity:

Part 3 - Line 4a

NDSC RESOURCE CENTER - NDSC CONTINUES ITS OUTREACH TO UNDERSERVED POPULATIONS, EXPANDING ITS CONTACT WITH HISPANIC, AFRICAN AMERICAN, AND MIDDLE EASTERN FAMILIES. NDSC ALSO HAS A GOVERNMENT AFFAIRS FUNCTION, WHICH INCLUDES A REPRESENTATIVE IN WASHINGTON, DC WHO INFORMS THE MEMBERSHIP OF CURRENT LEGISLATIVE INITIATIVES REGARDING DOWN SYNDROME AND RELATED TOPICS. NDSC ALSO HAS AN AWARENESS CAMPAIGN WHEREBY IT PRINTS ADVERTISEMENTS AND PUBLIC SERVICE ANNOUCEMENTS BROADCASTED TO BRING AWARENESS TO THE DISPARITIES THAT PEOPLE WITH DOWN SYNDROME FACE IN EDUCATION, THE WORK FORCE AND THE GENERAL COMMUNITY.


CONVENTION - ANNUAL CONFERENCE HELD TO EDUCATE PARENTS, PERSONS WITH DOWN SYNDROME, AND PROFESSIONALS ON A VARIETY OF TOPICS INCLUDING HEALTHCARE, EDUCATION, AND ADVOCACY.NDSC'S 49TH ANNUAL CONVENTION PROVIDED SEMINARS ON A VARIETY OF TOPICS SPANNING THE LIFESPAN OF INDIVIDUALS WITH DOWN SYNDROME. THE ANNUAL CONVENTION WAS A VIRTUAL PLATFORM THIS YEAR DUE TO THE COVID-19 PANDEMIC.


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Board, Officers & Key Employees

Name (title)Compensation
David Tolleson
Executive Director
$133,750
Shauntel Neal-Howe
President
$0
Valerie Williams
2nd Vice President
$0
Kate Dougherty
1st Vice President
$0
Dana Halle
4th Vice President
$0
Zachary Carroll
Treasurer
$0

Financial Statements

Statement of Revenue
Federated campaigns$1,844
Membership dues$0
Fundraising events$0
Related organizations$117,900
Government grants $75,900
All other contributions, gifts, grants, and similar amounts not included above$354,860
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$550,504
Total Program Service Revenue$107,805
Investment income $5,760
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $68,086
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $732,155

Grants Recieved

Over the last fiscal year, we have identified 7 grants that National Down Syndrome Congress has recieved totaling $39,894.

Awarding OrganizationAmount
The Anna And John J Sie Foundation

Denver, CO

PURPOSE: PROVIDES INFORMATION, ADVOCACY AND SUPPORT CONCERNING ALL ASPECTS OF LIFE FOR INDIVIDUALS WITH DOWN SYNDROME

$12,500
The Anna And John J Sie Foundation

Denver, CO

PURPOSE: PROVIDES INFORMATION, ADVOCACY AND SUPPORT CONCERNING ALL ASPECTS OF LIFE FOR INDIVIDUALS WITH DOWN SYNDROME

$12,500
Schwab Charitable Fund

San Francisco, CA

PURPOSE: HEALTH

$7,042
Kim Edwards Charitable Foundation Inc

Lexington, KY

PURPOSE: CHARITABLE

$5,000
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$2,752
Baird Foundation Inc

Milwaukee, WI

PURPOSE: HEALTH AND HUMAN SERVICES

$50
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$3,138,540
Earnings$383,488
Net Contributions$30,000
Other Expense$131,978
Ending Balance$3,420,050

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