Sumaira Foundation
- Assets
- $457.1k
- Revenue
- $1.5m
- Investments
- $0.0
- Employees
- 0
- Location
- Somerville, MA
- Founding
- 12/2014
- Data as of
- 12/2022
- EIN
- 47-2398246
Organization Overview
Sumaira Foundation is located in Somerville, MA. The organization was established in 2014. According to its NTEE Classification (H96) the organization is classified as: Neurology & Neuroscience Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Sumaira Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Sumaira Foundation generated $1.5m in total revenue. All expenses for the organization totaled $1.4m during the year ending 12/2022.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE SUMAIRA FOUNDATION, INC. (THE ORGANIZATION"), A 501(C)(3) ORGANIZATION, THAT IS DEDICATED TO GENERATING GLOBAL AWARENESS OF NEUROMYELITIS OPTICA SPECTRUM DISORDER ("NMOSD"), FUNDRAISING TO HELP FIND A CURE, AND CREATING A COMMUNITY OF SUPPORT FOR PATIENTS AND THEIR CAREGIVERS. THE ORGANIZATION IS SUPPORTED PRIMARILY THROUGH GRANTS AND FUNDRAISING EVENTS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
GRANTS TO FACILITATE RESEARCH FOR THE TREATMENT OF NEUROMYELITIS OPTICA AND MYELIN OLIGODENDROCYTE GLYCOPROTEIN ANITBODY DISEASE.
WORKING TO GENERATE GLOBAL AWARENESS OF NEUROMYELITIS OPTICA SPECTRUM DISORDER (NMOSD) AND MYELIN OLIGODENDROCYTE GLYCOPROTEIN ANITBODY DISEASE (MOGAD), AND CREATING A COMMUNITY OF SUPPORT FOR PATIENTS + THEIR CAREGIVERS.
FROM THE EXPERTS - A FACEBOOK LIVE SERIES DESIGNED TO EDUCATE AND DISCUSS A VARIETY OF TOPICS RELEVANT TO OUR COMMUNITY. EACH WEBINAR IS HOSTED BY AN EXPERT IN THE FIELD AND OFFERS VIEWERS A CHANCE TO ASK QUESTIONS IN REAL TIME.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Sumaira Ahmed President | OfficerTrustee | 15 | $224,539 |
Melissa Barash Director | Trustee | 1 | $0 |
Michael Devlin Director | Trustee | 1 | $210,719 |
Lauren Michaels Director | Trustee | 1 | $0 |
Stephanie Hamzo Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $216,000 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,265,066 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,481,066 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$12,971 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | -$10,404 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,457,691 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $75,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $105,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $435,258 |
| Compensation of current officers, directors, key employees. | $108,814 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $7,675 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $15,653 |
| Advertising and promotion | $17,235 |
| Office expenses | $14,889 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $7,056 |
| Travel | $101,614 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $4,328 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $3,959 |
| Insurance | $0 |
| All other expenses | $14,011 |
| Total functional expenses | $1,372,269 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $403,045 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $2,581 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $51,486 |
| Total assets | $457,112 |
| Accounts payable and accrued expenses | $59,218 |
| Grants payable | $150,000 |
| Deferred revenue | $15,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $224,218 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $232,894 |
| Total liabilities and net assets/fund balances | $457,112 |
Grants Awarded
Over the last fiscal year, Sumaira Foundation has awarded $75,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF UTAH HEALTH PURPOSE: THE PURPOSE OF THIS GRANT IS TO ASSIST THE UNIVERSITY OF UTAH HEALTH IN THEIR MISSION. | $25,000 |
MAYO CLINIC JACKSONVILLE PURPOSE: THE PURPOSE OF THIS GRANT IS TO ASSIST THE UNIVERSITY OF UTAH HEALTH IN THEIR MISSION. | $25,000 |
CASE WESTERN RESERVE UNIVERSITY PURPOSE: THE PURPOSE OF THIS GRANT IS TO ASSIST CASE WESTERN RESERVE UNIVERSITY IN THEIR MISSION. | $25,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Winifred Masterson Burke Medical Research White Plains, NY | $7,862,877 | $14,526,927 |
Institute For Neurodegenerative Disorders Inc New Haven, CT | $6,387,631 | $12,127,200 |
Regenerative Research Foundation Rensselaer, NY | $5,981,949 | $7,532,149 |
Foundation For Neurologic Diseases Newburyport, MA | $29,946,123 | $4,406,988 |
Dent Neurosciences Research Center Inc Amherst, NY | $4,849,310 | $2,556,784 |
Harvard Neurodiscovery Center Inc Boston, MA | $1,937,988 | $93,242 |
Sumaira Foundation Somerville, MA | $457,112 | $1,457,691 |
Pediatric Neurotransmitter Disease Association Inc Farmingdale, NY | $0 | $2,481 |
International Behavioural And Neural Genetics Society Corporatio Wakefield, MA | $171,226 | $0 |
Pediatric Neurocritical Care Research Group Inc New York, NY | $65,075 | $0 |
Thames Neurological Institute Inc Norwich, CT | $2,632 | $13,042 |
Chiari & Syringomyelia Research Foundation Inc West Seneca, NY | $336,876 | $0 |
Alliance For The Study Of Cognitive Disorders Inc New York, NY | $150,973 | $0 |