Childhood Arthritis & Rheumatology Research Alliance
- Assets
- $18.8m
- Revenue
- $6.5m
- Investments
- $0.0
- Employees
- 0
- Location
- Washington, DC
- Founding
- 12/2014
- Data as of
- 12/2021
- EIN
- 46-4152355
Organization Overview
Childhood Arthritis & Rheumatology Research Alliance is located in Washington, DC. The organization was established in 2014. According to its NTEE Classification (G51) the organization is classified as: Arthritis, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Childhood Arthritis & Rheumatology Research Alliance is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Childhood Arthritis & Rheumatology Research Alliance generated $6.5m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 9.2% each year. All expenses for the organization totaled $10.0m during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Childhood Arthritis & Rheumatology Research Alliance has awarded 81 individual grants totaling $2,799,436. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
CARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CARRA REGISTRY: CARRA AND THE DUKE CLINICAL RESEARCH INSTITUTE (DCRI) ARE COLLABORATING TO LAUNCH THE SECOND PHASE OF THE CARRA REGISTRY, A REGISTRY OF CHILDREN AND YOUNG ADULTS WITH PEDIATRIC-ONSET RHEUMATIC CONDITIONS SUCH AS JUVENILE IDIOPATHIC ARTHRITIS (JIA). THE REGISTRY IS A CORNERSTONE OF CARRA AND PROVIDES DISEASE AND TREATMENT DATA ON CHILDREN WITH A VARIETY OF RHEUMATIC DISEASES.
ANNUAL MEETING: PROVIDES MANY OPPORTUNITIES TO DEVELOP AND REFINE SCIENTIFIC APPROACHES TO QUESTIONS IN CLINICAL AND TRANSLATIONAL RESEARCH, WHILE NETWORKING WITH COLLEAGUES. THE MEETING OFFERS A UNIQUE, INTERACTIVE FORMAT WITH SESSIONS THAT ENCOURAGE ACTIVE PARTICIPATION, INCLUDING BRAINSTORMING AND CONTRIBUTING TO NEW RESEARCH INITIATIVES AND IDEAS.
GRANT SUPPORT TO OTHERS: CARRA OFFERS MEMBERS VARIOUS FUNDING AND INTERNSHIP OPPORTUNITIES TO FURTHER RESEARCH THAT LEVERAGES THE CARRA NETWORK AND POSITIVELY IMPACTS THE PEDIATRIC RHEUMATOLOGY SCIENTIFIC COMMUNITY AND ADVANCES THE CARRA MISSION.
OTHER PROGRAM SERVICES: INFORMATICS/PROGRAMING, LEADERSHIP SERVICE ASSOCIATED WITH FURTHERING THE MISSION AND ACR MEETING EXPENSES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Emily Von Scheven MD Mas President | OfficerTrustee | 12 | $87,930 |
Robert Fuhlbrigge MD PHD Past President | OfficerTrustee | 10 | $68,040 |
Stacy Ardoin MD Treasurer | OfficerTrustee | 10 | $67,500 |
Robert Colbert MD PHD Vice President | OfficerTrustee | 8 | $40,000 |
Christy Sandborg MD Chair | OfficerTrustee | 3 | $0 |
Carol Wallace MD Director | Trustee | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Duke Clinical Research Institute Carra Registry Management | 12/30/21 | $4,250,011 |
Executive Director Inc Management Services | 12/30/21 | $1,354,905 |
Boston Children's Hospital Informatics Support For Registry | 12/30/21 | $322,233 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $205,868 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $205,868 |
| Total Program Service Revenue | $6,231,027 |
| Investment income | $1,422 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $6,468,070 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $886,074 |
| Grants and other assistance to domestic individuals. | $5,000 |
| Grants and other assistance to Foreign Orgs/Individuals | $150,918 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $263,470 |
| Compensation of current officers, directors, key employees. | $124,490 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $1,569,201 |
| Fees for services: Legal | $33,977 |
| Fees for services: Accounting | $8,100 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $5,651,556 |
| Advertising and promotion | $22,287 |
| Office expenses | $6,511 |
| Information technology | $572,312 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $15,682 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $267,781 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $4,240 |
| Insurance | $33,433 |
| All other expenses | $26,767 |
| Total functional expenses | $10,024,485 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $5,149,688 |
| Savings and temporary cash investments | $11,025,195 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $2,548,898 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $30,467 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $1,060 |
| Other assets | $0 |
| Total assets | $18,755,308 |
| Accounts payable and accrued expenses | $2,700,890 |
| Grants payable | $365,747 |
| Deferred revenue | $1,714,118 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $4,780,755 |
| Net assets without donor restrictions | $13,974,553 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $18,755,308 |
Grants Awarded
Over the last fiscal year, Childhood Arthritis & Rheumatology Research Alliance has awarded $870,584 in support to 15 organizations.
| Grant Recipient | Amount |
|---|---|
Durham, NC PURPOSE: LARGE GRANT | $177,480 |
Jacksonville, FL PURPOSE: LARGE GRANT | $100,000 |
Salt Lake City, UT PURPOSE: LARGE GRANT | $99,896 |
Ann Arbor, MI PURPOSE: LARGE GRANT | $98,329 |
Cincinnati, OH PURPOSE: PRECISION DECISION | $69,998 |
Edison, NJ PURPOSE: SMALL GRANT | $53,034 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Childhood Arthritis & Rheumatology Research Alliance has recieved totaling $4,545,343.
| Awarding Organization | Amount |
|---|---|
Arthritis Foundation Inc Atlanta, GA PURPOSE: RESEARCH | $4,333,333 |
Cure Jm Foundation Leesburg, VA PURPOSE: SUPPORT THE EXPANSIO | $142,010 |
Lupus And Allied Diseases Association Inc Verona, NY PURPOSE: Pediatric Lupus Research | $70,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Ecog-Acrin Medical Research Foundation Inc Philadelphia, PA | $11,624,125 | $49,270,427 |
Aids Care Group Chester, PA | $22,286,127 | $51,683,726 |
Amyotrophic Lateral Sclerosis Assn Arlington, VA | $98,343,083 | $39,792,803 |
Chambersburg Health Services York, PA | $113,289,176 | $40,579,886 |
American Association For Cancer Research Foundation Philadelphia, PA | $8,465,630 | $44,029,054 |
Whitman-Walker Clinic Inc Washington, DC | $38,849,652 | $45,821,161 |
Honorbridge Greenville, NC | $47,931,856 | $45,140,800 |
Advanced Medical Technology Association Washington, DC | $28,228,671 | $41,851,836 |
Optical Society Of America Inc Washington, DC | $157,741,246 | $51,003,670 |
United Cerebral Palsy Of Cental Pennsylvania Inc Camp Hill, PA | $23,326,722 | $39,610,119 |
The Heart Group Of Lancaster General Health Lancaster, PA | $8,306,445 | $18,701,008 |
Nashville C A R E S Inc Nashville, TN | $11,405,752 | $35,952,679 |